Ageing and cerebral palsy

DeeAb

Hello I’ve just joined this community and I’m hoping to discuss ageing and Cerebral Palsy. As an adult I feel support and information for people with Cerebral Palsy as they get older is lacking. I’ve noticed a lot of changes such as more memory loss, increased pain, being unable to do tasks as well as I’ve got older. Anyone have information, tips for ageing with Cerebral palsy? Thank you

Richard_Scope

Hi @DeeAb
Thanks for posting and a warm welcome to the community. I have emailed some information that I hope is helpful. 

sonic1989

@Richard_Scope could I have info I have cp and feel same  @DeeAb

Richard_Scope

Hi @sonic1989
Here you go:

Ageing and cerebral palsy | Disability charity Scope UK

Physiotherapy | Disability charity Scope UK

Hydrotherapy | Disability charity Scope UK

Post Impairment Syndrome and Cerebral Palsy — Scope | Disability forum

Cerebral Palsy vs Mental Health — Scope | Disability forum

Here is the CP Adult Care Pathway that G.Ps should know about:

Managing cerebral palsy in people aged 25 or over - NICE Pathways

Richard_Scope

Also really happy to answer any questions you may have @sonic1989

Wibbles

Could someone please confirm that it is not possible to develop CP later in life as an adult? 
https://forum.scope.org.uk/discussion/95182/campaign-for-better-disabled-medical-care/p2

Thia

https://forum.scope.org.uk/discussion/77793/ageing-and-cerebral-palsy

Thia

I am now aged 70 have right side hemiparalysis and Epilepsy. Last year found out I have severe osteoporosis.several spinal fractures. For years I was told just trapped nerve. Feel very angry at the lack of understanding and knowledge of G.P. I always get told problems I have are due to old age my cerebral palsy is never mentioned. As for mentioning post impairment syndrome I think my GP would think I had lost the plot 😆Not funny but so frustrating.