Hi, my name is Rosies_Dad! Just received a CP diagnosis for my daughter, any book recommendations?

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Rosies_Dad
Rosies_Dad Online Community Member Posts: 3 Listener
edited July 21 in Cerebral Palsy Network

Yesterday I took my twin daughters to Hospital for a routine physio appt and was blind sided with a Cerebral Palsy diagnosis for Rosie it now makes sense why she can’t walk. My wife is away with the Army so wasn’t there is person. We are now waiting to go back for more physio and hopefully some sort of walker. Can anyone recommend a book about CP as I know very little.

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  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 13,007 Championing

    Hello @Rosies_Dad welcome to the Community. I have copied in @Richard_Scope and @Lucy_Scope who are Cerebral Palsy Specialists on the forum. Hopefully they will be able to help you.

    Take care.

  • Rosies_Dad
    Rosies_Dad Online Community Member Posts: 3 Listener
  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 13,007 Championing

    Hi @Rosies_Dad did you have a question?

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 293 Empowering

    Hi @Rosies_Dad

    Welcome to the community. I'm Sara and part of the CP Network.

    Receiving a cerebral palsy diagnosis for your child can be overwhelming, especially if your wife is away with work and you are processing the news alone.

    If you have any questions or need to talk, please contact our team. CP Network

    Kind regards.

  • Rosies_Dad
    Rosies_Dad Online Community Member Posts: 3 Listener

    if someone could recommend a book that explains CP what should and more importantly shouldn’t be done that would be a great help. 🙂

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 293 Empowering

    Hi @Rosies_Dad

    Cerebral palsy is a condition that affects muscle control and movement. It affects about one in every 400 children in the UK.

    It is usually caused by an injury to the brain before, during or after birth, but there may be no obvious single reason.

    The CP Network have a great parenting resource that explains all aspects of cerebral palsy and I could send you a copy of this if you would like. Please email us at cpnetwork@scope.og.uk

    I can send you links to some great Facebook pages where other parents and carers support each other. I'm mindful of not wanting to overwhelm you.

    Manny thanks.

  • forgoodnesssake
    forgoodnesssake Online Community Member Posts: 517 Empowering
    edited July 29

    The Cerebral Palsy Handbook by Marion Stanton (a parent and teacher) or Understanding Cerebral Palsy https://uk.jkp.com/products/understanding-cerebral-palsy

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