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Is there hope for the future? World Alzheimer's Month 2020
Although there isn't currently a cure for Alzheimer's disease, professionals from a range of disciplines are working hard to both find a cure, and to make the world a more dementia-friendly place. What research is currently being done? I
spoke to Selina Wray, Alzheimer's Research UK Senior Research Fellow at UCL
Institute…
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Depression
Friends say they are to overwhelmed. By my the state of my. Home to help me...exactly why I asked them to help me
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Shelding
I am on a c pat machine i was told i would not have shield if you have coved they ventilate you so whats the difference I know ventilatering is more invasive but air is still pumped in
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Forgotten about
I understand that due to the virus a lot of places are put under pressure to meet the social distancing criteria but am I wrong to feel angry when I see new procedures not considering or taking into account the needs of disabled people? I’m witnessing Wheelchair areas being taped off, food courts not allowing the use of…
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A round of applause for our Caeden’s Ben Nevis triumph
You might have spotted one of our community members in the news during the last week or so. Our very own @caedenthomson2020 has walked up Ben Nevis, the highest mountain in the British Isles, in a bid to raise money for Scope. That is a whopping 1,345 metres above sea level! This is an incredible achievement for Caeden,…
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Hate Crime - Police help perpetrators escape justice
Hi, Yes there has been some problems alright I think you guy's have a right to know what really happens when you report disability hate crime in Removed by moderator. If you read my introduction summery. Thanks In our case the Police also moved in the same fofices as Removed by moderator Council and not only did they get…
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Are you worried about your job in these times of coronavirus?
Today the news have reported on Scope's research findings that many disabled people are experiencing post-lockdown worry about their jobs. Of the 874 disabled adults spoken to, the BBC tell us: These worries are just some of the reasons behind Scope's open letter to the government which calls for more attention to be given…
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Bridging the Gap: Translating Disabled Women's Sexual Health/care Stories using performance
Wednesday 14 & 21 October 2020, 4-6 pm on Zoom Women & Theatre and the University of Birmingham are running two exploratory online workshops in October as part of a new project to see how theatre can be used to translate research about experiences of sexual & reproductive health and healthcare (for women with CP).These…
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How can we care for people with Alzheimer's?
Although
the NHS explain that
social services can help with many aspects of supporting people living with
Alzheimer's disease, there are also things we can all do. Communicating with someone with Alzheimer's disease The
NHS have some tips for communicating
with someone with Alzheimer’s disease, which state that you should:…
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Wearing a face mask
A little bit of a rant tbh I’ve been exempt rom wearing a mask due to current health conditions normally when I go places I sometimes get asked have u got your mask etc which doesn’t annoy me in the slightest as with everything going on and government guidelines and normally when I reply I exempt nothing else gets said…
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Diagnosis of ME/ CFS and struggling to comprehend or acknowledge it
I am new to this site.I have had a diagnosis of ME/ CFS for a year and seriously struggles to comprehend or acknowledge it and the changes in lifestyle that I have to face.
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Accessing medical records
Good Morning Folks I am a male in my 50s and have had health issues from birth. A few years ago, I managed to get a record of my medical history from my doctor. However, there are lots of medical terms and hand written notes that I cannot understand or don't know what they mean. I contacted the doctor last year (before the…
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Do I or Don't I
It's very simple, do I shower or not tomorrow. It is extremely painful for me to shower without because of removing strapping and replacing it before and after. I have put off showering all week but, with the heat around, desperately want to feel clean. However, 2 weeks ago I tried to kill myself on the Sunday due to the…
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Covid
Hi everyone hope your all ok. Can anyone help me with this question. My daughter who is my carer has been tested positive for covid 19 and is at her home isolating. I've had a test which was negative but not sure if I still need to isolate. I was with my daughter the day before she became ill. Also because I have…
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Is Alzheimer's Disease a Disability?
September is World Alzheimer’s Month, so I thought I’d write a little bit over the next 2 weeks about what Alzheimer's disease is, how we might be able to treat it, Alzheimer's disease as a disability, how we can care for people with Alzheimer's disease, and what hope there is for the future. You can read more about what…
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World Alzheimer's Month- What is Alzheimer's?
September is World Alzheimer’s Month, so I
thought I’d write a little bit over the next 2 weeks about what Alzheimer's disease is, how we might be able to treat it, Alzheimer's disease as a disability, how we can care for people with Alzheimer's disease, and what hope there is for the future. What is
Alzheimer’s disease?…
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bipolar disorder and alcoholism
ho everyone my son suffers from bipolar disorder 1 rapid cycling he is also an alcoholic. Although he was in recovery and didn't drink for 6 years. He has been on a rollercoaster with both illnesses for 2 years and was hospitalised several time for his bipolar. Unfortunately thing got really bad 8 weeks ago and he became…
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Teachers with invisible disabilities
Is there anyone here that has an invisible disability that is a chronic pain and fatigue disorder who also teaches?
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Notional Capital
If I use some inheritance money to purchase a disabled accessible property to live in will the DWP and Housing Benefit still regard it as Notional Capital despite my Housing Support officer confirming that I am living in an unsuitable property at present? I would appreciate some advice on this rather "greyarea", thanks. I…
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How to talk about sex - information booklet and webinar on 16 Sept 2020
Our community members have been invited to a Zoom webinar celebrating the launch of: ‘Talking about Sex: A booklet for young people with life-limiting or life-threatening conditions and their carers’. The webinar will be held this Wednesday 16 September at 11 am. If you want to submit any questions to the webinar please…
