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Thinking About the future.
:) Hi all. I've thinking about the future with regards to independent living. I dont how I would be possible for all those who need a P.A or similar. Perhaps one solution is.... Assistance dogs. They different ones. Thanks to the advice of several people on here. I checked out the Assistance dogs international for uk.…
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Free Online Yoga for Carers
**Funded Yoga Session for Carers of all ages and abilities on Friday 12th June at 10:30am** In partnership with Cerebral Palsy Midlands, Noah’s Star have planned a funded virtual get together for unpaid carers. The session will start with a 30 minute beginners yoga session to encourage positive health and well being. This…
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Life after Cancer treatment
Hello, I’m Caitlin and I’m 19. I was diagnosed with acute myeloid leukaemia back in 2018 and had a donor bone marrow transplant the same year. I had extremely intense treatment and I’m struggling to cope with the side effects and adjust to my new normal. I need the aid of a wheelchair, I’ve lost many friends since I don’t…
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Are there any social groups that meet up over zoom for disabled people
Hi folks, I'm new here and I'm starting to feel a bit isolated because of the lockdown.I was just wondering if there are any social groups of people my age, 20s or 30s that meet up over zoom. I also have a disability, a visual impairment.
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Something i have been thinking about with BLM
Hi all! I have recently joined this forum and would like to ask my fellow community members their thoughts on this: BLM is a truly important issue and is utterly heartbreaking and i am so glad things are being done. it breaks my heart and i just cry when i see how dreadful this world is. i don't physically understand how…
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Broad Independent Treatment Plan?
Morning all, I don't know what to title this, or where to put it on the forum, which is quite fitting for the topic really! :D I feel like I have now been given some DWP lemons in the form of PIP...but still don't have the recipe for lemonade. I've been struggling financially for a while, especially over the last couple of…
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Tips for volunteering as a disabled person
This week, 1st-7th June, is Volunteers' Week. To say thank you to all of our amazing community champions, we are hearing from @emmarenshaw who is sharing her experiences and top tips. The online community would be a very different place without a team of volunteers who work hard to support other disabled people. Hello,…
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Degenerative back pain complicated by EDS and heart arrhythmias
Hi , I am looking for resources, people experiencing similar issues and support to improve my understanding and options in respect of degenerative back pain complicated by EDS and heart arrhythmias
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Carers
My carers come from an agency funded by the government. An aide comes 2 -4 hours a day to help with for cleaning, shopping. My question is this: the agency sends whoever they want never consulting me was to when someone is coming. I get used to an aidd, a relationship is formed, then the carer never comes back. The agency…
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Not trusting our support worker
Hi there my children and I have dyslexia and my daughter and I sometimes have anxiety we help each other a lot through what were going through and talk a lot we have people judging us and sometimes not being nice online and in the community we have a support worker that whispers to our newly met social worker about us and…
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Worried about going out, especially to the shops, due to mobility
This is my first message here ? I've come here to find out if there are people struggling like I am at the moment. I am worried about going out, especially to the shops. I have mobility issues and a blue badge but I can't stand in long queues without getting tired. Is there anyone else struggling with this? I don't want to…
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Hello
Hello it's Jujus back again after a while. I'm not used to writing and finding responses as yet..technology is not my best friend but I keep trying. Thank you to those that did welcome me here,it brought a smile and urged me to return. I've had to cut back on the Gabapentin I was taking as it caused terrible stomach pains.…
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Well..I'm kinda the same...
Nothing in my life has really changed apart from family get togethers I suppose n choosing to go sumwere wen having a better day,,,I sleep the majority of the day ,,I'm trying So hard to get out this rut n JUST DO SOMETHING wen I'm asleep I'm at peace I'm sorry to sound depressing but it's the way it is with me..but if u…
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Non Scary exercise incentive for Zimmer users
Shouty sport people are dismaying . Loud music is disconcerting. Nhs chair exercise sheets are dispiriting. Someone somewhere recommended a user friendly you tube or similar, but the link was lost. Any ideas please?
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Your relationship with family
How do people find getting along with and being part of their wider family? I find it quite difficult due to ableism, which I know is not deliberate but it makes relationships hard. I can't keep pretending things don't upset me. It's sad because I feel a remove from my wider family. It makes life very small. How do others…
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'I had an active life': How are shielders surviving lockdown?
How are you coping with lockdown? If you're shielding, do you feel confident about what to when the initial 12-week period ends, or are you confused? Do you feel included in the guidance being laid out by the government, do you have enough information?
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How do I apply for an assistance dog?
Don's anyone know how apply for or be referred for assistant dog. Multiple disabilities a nd deaf. I seen the sites but confused as to whether in need to be referred or apply direct. I'd be grateful any help. I know they not pets. I still trying to navigate the many posts here. I keep ending up in the lounge.
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Questions regarding care costs as a young person.
Hey there, I'm hoping to get some answers to a few questions I have regarding trying to save as a young person who requires continuing care. If anyone has been in the same position and can offer some clarification it'd be extremely helpful! The government seems to have a cap where if you have more than £23,250 in cash or…
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have ceabalplasy and epilepsy and ceabalplasy asthma depression and anxiety
Im new here
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Accessing the community
Hello there, I am a support worker looking to better myself
in terms of the support I provide to individuals in the community. I am wanting
to organize activities and was wondering what some of the common issues you, as
parents and carers come across on a day to day basis when out and about. I
would like it, if you could…
