If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Life after Cancer treatment
Hello, I’m Caitlin and I’m 19. I was diagnosed with acute myeloid leukaemia back in 2018 and had a donor bone marrow transplant the same year. I had extremely intense treatment and I’m struggling to cope with the side effects and adjust to my new normal. I need the aid of a wheelchair, I’ve lost many friends since I don’t like drinking due to also being epileptic. I only get invited out if they can use me for my disability “privileges” like better seating at theatres, cheap or free football/concert tickets. I’m wondering if anyone else has felt like they’ve been exploited? I’m constantly told to be grateful for each day since my transplant didn’t reject but I’m struggling with the crippling side effects. I feel like I can’t complain otherwise I come across as bitter and selfish. I’ve felt like a burden when I tried going on nights out with my friends, traumatic things have happened and recently a friend said to me that I should forgive this other girl because she didn’t “break my f-king legs” when she actually left me alone in a club that I’d never been to before. When I did have cancer people constantly checked in on me, but once I rang that end of treatment bell the support just faded away. My journey has made me closer with certain family members, but I’ve lost friends as a result. I started seeing a psycho-oncologist to address my cancer related ptsd however I feel like I’m finally ready to make better friends who understand me and I can relate to. I’ve been reconsidering my education and I want to do psychology and potentially become a support worker for future teenage and young adult cancer patients.