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Help with my 15 year old son
Hi, I am a father of 6, one of my boys who's a teen (15), has ASD + ADHD. He has social interaction and emotional difficulties and currently attends a special school. He has never had a good relationship with his siblings, he is very jealous if I show them attention or care. ( doing normal dad things ). He has a volatile…
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Marfan Syndrome
Hello, I need some advice please, my 16 year old grandson has been diagnosed with Marfan, he has a video consultation with a heart specialist in early February, he has curvature of the spine and an indentation in his rib cage, letter received today from this specialist says he may have to wear a brace for six months or…
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Information Sharing
I wonder if anyone else gets totally frustrated with almost every organisation or company, refusing to allow me to speak to them on my husband's behalf, because they don't have a power of attorney on file? The health services in England are so fragmented now... I have sent the power of attorney to a number of "NHS"…
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Carers Wellbeing COVID Fund
Has anyone got any information re the Carers Wellbeing COVID Fund? Thanks
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Hi, my name is Dreambig82! I'm a single mum to a child with autism and ADHD. I want to chat
I'm a single mum to a 9 year old child with autism and adhd just trying to find information and chat
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Are you disabled and pregnant?
We have an opportunity for any disabled mums-to-be who'd like to share their pregnancy story with a disability magazine. If this sounds like you, and you'd be happy to talk more about your experience, the support you've received and any wisdom you can share with others, let us know :) Leave your comment below and one of…
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Opportunity to share your story about being a parent to a disabled child
Would you be interest in speaking with a magazine about your experience of parenting? If so, we have an opportunity that might just be up your street. We are looking for new parents (either mums or dads) who would like to talk about their experiences of having a disabled child and hopes for the future. The finished…
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Ami2301 "shuts down the idea you can’t be a good parent when you’re... disabled"
You might spot a familiar face in today's Metro newspaper. Why? Because our very own @Ami2301 features in a powerful interview sharing her story of being disabled and having a baby. Speaking to Hattie Gladwell, Ami tells all about having experienced a potentially fatal pneumonia infection in 2018 and her later diagnosis of…
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I need advice
My son was diagnosed "next door" so I never really had any guidance. He is 25yo Bachelors Degree Computer Science. He is working his 1st job from home. Doesn't drive. Doesn't like to leave the house Now Covid, It has probably been almost a year since he left house. He has had problems, like it takes him a minute to hear…
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Did you know what support was available for you and your child?
I am an SEN teacher in the early years and I am always so astounded that many parents come to me when first starting at school, with such lack of support. I would love to be able to offer more support but I am not sure how to do this?
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I think 13yo son has CP? How do I investigate? Should I even bother?
New here. Came with a very specific question. 13yo boy. Has diagnosis of ASD and DCD (dyspraxia). I've always wondered how they ruled out CP? He had his first ear infection causing perforated ear drum at 3 weeks. Then hospitalised again at 5 weeks for same. Then in and out of hospital for first 4 years with infections and…
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Behavioural vomiting
Hi. My 10 year old son with Down Syndrome is burping lots and being sick after food/drink several times daily pretty much every time he eats or drinks. He has been doing this for months but it has got very bad lately. It's thought to be behavioural as reflux medications have not helped. He is to have some bloods done and a…
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Babywearing as a disabled parent
This week (28th September - 4th October) is International Babywearing Week. I hope this short piece will explain what that is and who this could be helpful as a disabled parent. What is babywearing? Babywearing simply means carrying your baby in a sling or baby carrier. This could be while you're out and about, instead of…
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Hi, my name is Sarahlou2!
My daughters school is closed age 5 and sons school age 7 will be opening tomorrow. We are on the extremely vulnerable list and have been told today if I do not send him in tomorrow it will be unauthorised and I will be reported, my son will also receive no home education and will not be supported to remain at home. I’m…
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emotional support
Hi, i have a diagnosis of autism myself and my 11 year old son is currently being assessed, so he has undiagnosed autism. Lately, ive been finding iv'e simply 'had enough' of dealing with the issues we face on a daily basis. I think im facing a kind of burnout scenario. My son has his needs, he's abov aerage average in…
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Hi I'm new to the group
Hi I'm Helen, parent of one boy who is 8 and has additional needs. He currently goes to a specialist school after 4 years in mainstream, with each year getting worse for him with the additional pressure. Currently tho, with the EHCP and new school he is managing to complete his work, which he was refused to even attempt…
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My son is 20 has autism,adhd and depression
My son is 20 has autism,adhd and depression,things are just getting worse and we get no support and never have. I feel so alone and I am thinking about looking into independent living with support but so unsure where to start.
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Minister insists disabled pupils are ‘No.1 priority’ after parents say they’ve been ‘abandoned'
The quotes below have been taken from this article on The Metro. Do you think disabled children have been a number one priority during the pandemic? Has your child been able to attend school as usual? Do you think disabled children should be prioritised regarding the coronavirus vaccine?
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Support - What to do when developmentally disabled family member is being catfished/scammed?
Hello all, My adult brother, who has a developmental disability, is being catfished. He connected with someone through instagram, they moved the conversation to Whatsapp and for the last couple of weeks he has been exchanging money to giftcards to send to the person. He is not forthcoming with much information, and this…
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Some unsupportive family
This is hard one to write, but imagine others have experienced this. Our child is 3 and on the autism spectrum. As such he won’t acknowledge you when you enter the room etc. We know that’s him and nothing to be offended by. He also has to sleep with us as it’s unsafe for him to sleep in his own bed as he moves about so…
