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Hi, my name is Amyknott! My daughter is two years old and has been diagnosed with epilepsy
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Amyknott
Community member Posts: 5 Listener
Hi my daughter is 2 years old has been diagnosed with epilepsy and isnt great on her feet I've been advised to get her a swifty pram to help her get around we are based in Blackpool I cant afford the prices of one of these prams I'm just wondering how I'd go about getting one were not under occupational therapy yet is there a charity that help fund them
Thankyou
Amy
Thankyou
Amy
Comments
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Hi,There's "family fund" that give grants to families of disabled children. You need to be claiming certain means tested benefits for this, full details here. https://www.familyfund.org.uk/FAQs/are-we-eligible-to-applyThere's more information here for grants. https://www.disability-grants.org/grants-for-children.htmlYou can also try googling your local area to see what's available. Hope this helps.
I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help. -
Hello @Amyknott
Wishing you a warm welcome, I hope you are well today.
Have you discussed with your daughter's doctor about an OT review? That could help to get certain mobility aids for her. The NHS website has this information:"You can get occupational therapy free through the NHS or social services, depending on your situation.
You can:
- speak to a GP about a referral
- search for your local council to ask if you can get occupational therapy"
Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Sorry I've only just seen this I'm not sure when we will get the review hopefully be soon as my little girl needs a specialist pram to help keep her safe aswell
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Thankyou poppy we get carers allowance and dla for my little girl will that make me eligible plus I wasnt sure if they did stuff like that thankyou I'll print off the form
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Amyknott said:Hi my daughter is 2 years old has been diagnosed with epilepsy and isnt great on her feet I've been advised to get her a swifty pram to help her get around we are based in Blackpool I cant afford the prices of one of these prams I'm just wondering how I'd go about getting one were not under occupational therapy yet is there a charity that help fund them
Thankyou
AmyLilly Josh -
She hasn't been reffered yet x
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Hi, definitely speak to your doctor regarding getting an ot referral and see also what aids and adaptions she will around your property if you are thinking about her safety. Do you live in a house with stairs? are there any times when she will be unsupervised such as if you are on the phone, cooking dinner all these questions will need to be answered. Social services may have to be involved to see how they can assist in terms of individual budgets and longer term planning, emergency planning, respite care.You are welcome to message me further and we can discuss as I’m student who studying in this area and would be find information for you, check eligibility, and check my books for anything that you may need.
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Could you message me about this please as I do need more support xx
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