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Activities for autistic children
Hi. I have recently been given custody of my 12 year old nephew. He has been through some very traumatic events and I’m working hard to provide him with stability. He won’t allow me to play with him and I feel I’m failing him by always allowing him to play alone. Does anyone please have any advice on how I can interact…
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Child's DLA
First time here. I think I want to rant more than anything. My 9 year old has ASD. I applied for DLA for him and got refused. Appealed and got refused again based on a report from the school that they requested. I checked with the school and they have told me that no one has done a report, they didn't even get a request.…
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New to Forum - Australian
Hi, I
from Australia and have 3 sons, a 15 year old singleton (the eldest) and
identical twins (12 years). One on my twins has autism and is non-verbal.
Recently my cousin, who is an obstetrician, told me about the most wonderful
podcast, presented by two mums (from Melbourne). Both mums have twins (&
singletons as well) &…
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Daughter has recently been through a clinical assessment, can anyone advise me further?
Hello I've been given link to here as I'm a parent carer to my daughter who is 14. She has recently been through a clinical assessment due to struggles with social anxiety, depression and agoraphobia. Shes missed 3 years schooling now and lives pretty much cut off from outside world. It's not how I want it for her and her…
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Help
l became ill 3 years ago. Changed my life. I had issues with osteoarthritis my knee ankles and neck, which l knew off. I had septis which was missed, this lead to 3 years of hell with the NHS missed diagnosed and passed from surgeon to surgeon. Fisula, whole in my bladder, lump biopsies all not followed up. I eventually…
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Appoinment Tracking
Hello and thankyou for welcoming me to this group. I was wondering how other parents keep track of all the different appointments, from speech and language to Child in need meetings, physiotherapy, incontinence appointments etc. I am ok at adding appointments to my phone, but find it hard to remember what each professional…
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Encouraging my 2 year old with CP to walk
Hello all. First time posting on here! My daughter is just over 2 and was diagnosed with PVL resulting in diaplegic CP. She's so keen to be independent (she has a twin brother who is very active) but refuses to use the Kaye Walker our physio has given us. This results in frustration and tears (from both of us) as she wants…
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BLUE BADGE, daughter
hi everyone, I could do with some advice. My daughter 5 suffers from mitochondrial disease which has presented itself in many ways and leaves her unable to walk at all. She uses a walking frame. I have recently seperated from my wife and have regular access. My wife has since we seperated attempted to make my life very…
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We are looking to talk to parents about Medical Negligence
Are you the parent of a disabled child and currently going through the medical negligence process? Are you able to help? We are looking for parents to test Scope's medical negligence advice. Please contact me on richard.luke@scope.org.uk
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Sleep issues
Hi, recently my daughter suffered a horrendous stroke on 29th May - still in hospital now but recovering as best she can after 4 life saving surgeries in 5 days. She’s had 12 surgeries so far. She is really struggling to sleep for longer than an hour. I am really struggling myself with this, I don’t get a break with the…
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Mum to a child with additional needs
Hi :-) I'm Nicola and I have joined the group today to seek out support / advice / help others if I can and generally know that I am not alone in the world. A little about my story - I have 2 children (5 year old daughter & 3 year old son). My daughter was born suffering HIE grade 2, meconiam aspiration syndrome and nearly…
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Struggling with the care my adult son is been given in his home (severe autism and LD)
Hi all, I’m Karen, 41 with 5 children. My eldest Jack is 22 and was diagnosed with severe autism and learning difficulties when he was 2 and a half. He has always required a rigid routine and when he turned 10 the school he attended (special needs but not specifically autism) could no longer meet his needs as the head of…
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reasonable adjustments eczema/allergies
Hello, my son is 3 and has just started pre-school. I'm wondering what reasonable adjustments I should expect/what you've experienced. There is a 1-8 adult-chid ratio and they aren't managing to watch him, he scratching, having allergic reactions and they aren't noticing because there are 7 other children. I feel there…
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Living Independently with Care
Hi - we’re in limbo as Panel (Social Services) are looking at my daughter’s situation. She’s hoping to live where we are now (Housing Association bungalow). We have assigned the tenancy to her and hope to move out. The agency care Social Services wanted to use can’t meet our daughter’s needs at the ludicrously low price…
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My princess - anxiety at secondary school - blind and autistic
I am new on this forum. My daughter is blind and autistic. She has just started secondary school and has stared going on transport. She is struggling with it at the moment, she is anxious and gets upset. Has anyone else been through a similar situation?
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appointee
Hi i am appointee for my daughter who is over 18..Can anyone give me advice on applying for lasting power of attorney or financial deputyship or do i just stay as appointee
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deputyship
Hi can anyone give me advice on who fills in cop 3 capacity form to apply for deputyship Will your community care officer do it for you
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How can we get our complaints taken seriously?
Hi, I am mum to a 30yr old young man with Autism & challenging behaviour. My son lives in supported living with 24/7 support. Sadly my son has been left a broken young man following physical, mental & financial abuse by his previous care provider. We raised 6 safeguardings in 4 months, involved CQC, commissioners, the…
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I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD
Hi i have Fibromyalgia, Osteoarthritis, in my knees, and back. I am a single mum to my daughter she lives with her boyfriend and they just had a beautiful baby boy, I'm a first time nanny. I have a 16 year old son who has medium to severe Autistic spectrum disorder, ADHD, and ODD, i am his full time carer 24/7, no…
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Family with autism and dyslexia
Does anyone struggle to cope with family member who has autism My husband has autism and my 14 year old daughter has dyspraxia some times I feel I'm all on my own my mum say I'm very strong sometime I don't feel it as iam a carer for them both and have bipolar my self Anyone understand how I feel it would nice to know iam…
