If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Seeking other parents of kids with LD / neurological conditions
Options
LexWood
Community member Posts: 5 Listener
Hi parents and carers,
Our 7 month old has an undiagnosed brain condition and developmental delay. We’ve been told to expect life long learning disabilities given his MRI results.
It’s a lot to take in and we’d love to connect with parents going through a similar road towards acceptance of an alternative family life. Anyone up for sharing tips, uplifting experiences and possibly a dark sense of humour?!
Our 7 month old has an undiagnosed brain condition and developmental delay. We’ve been told to expect life long learning disabilities given his MRI results.
It’s a lot to take in and we’d love to connect with parents going through a similar road towards acceptance of an alternative family life. Anyone up for sharing tips, uplifting experiences and possibly a dark sense of humour?!
Comments
-
Welcome to the community @LexWood! Great to have you with us.
Dark sense of humour you have come to the right place.
I'm disabled myself. However, my mum has always been my biggest cheerleader. We laugh about things, sometimes have a big old cry then dust ourselves off and start again. Do what works right for you and your family and you can't go wrong.
Scope -
Thanks so much Chloe! It’s so nice to hear that.
-
-
HI, I'm very sorry to hear you are struggling and no doubt feeling a little overwhelmed.
I feel the key is that whilst your child may be a little more challenging than some other children the same age. Your child is unique, never stop feeling grateful for the bundle of joy, laughter, fun, trials and tribulations you have with you always. The key really is to never accept limitations, encourage your child to be the best they can in everything they try. No one can say as yet what level of delay your child may face so don't go looking for limitations as yet.
Some handy community sights are listed if you put in "Parenting children with development delays".
I hope you find strength, encouragement and love enough to make this a much easier journey than you might otherwise be thinking.
Cindy -
Welcome to the community @LexWood I’m Emma, I’m not a parent myself but, if you ever need a chat or anything please let me know.
-
Hi @LexWood, there are some ideas on this page about finding support groups for parents - hope this helps!
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.