Parents, carers and disabled parents
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Seeking other parents of kids with LD / neurological conditions

LexWoodLexWood Member Posts: 5 Listener
Hi parents and carers,
Our 7 month old has an undiagnosed brain condition and developmental delay. We’ve been told to expect life long learning disabilities given his MRI results.
It’s a lot to take in and we’d love to connect with parents going through a similar road towards acceptance of an alternative family life. Anyone up for sharing tips, uplifting experiences and possibly a dark sense of humour?!

Replies

  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Welcome to the community @LexWood! Great to have you with us.

    Dark sense of humour ;) you have come to the right place.  :D

    I'm disabled myself. However, my mum has always been my biggest cheerleader. We laugh about things, sometimes have a big old cry then dust ourselves off and start again. Do what works right for you and your family and you can't go wrong.  <3
    Scope

  • LexWoodLexWood Member Posts: 5 Listener
    Thanks so much Chloe! It’s so nice to hear that. 
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    No problem @LexWood! How are you doing today? :)
    Scope

  • Cindy7007Cindy7007 Member Posts: 30 Connected
    HI, I'm very sorry to hear you are struggling and no doubt feeling a little overwhelmed.

    I feel the key is that whilst your child may be a little more challenging than some other children the same age.  Your child is unique, never stop feeling grateful for the  bundle of joy, laughter, fun, trials and tribulations you have with you always.  The key really is to never accept limitations, encourage your child to be the best they can in everything they try.  No one can say as yet what level of delay your child may face so don't go looking for limitations as yet. 

    Some handy community sights are listed if you put in "Parenting children with development delays".

    I hope you find strength, encouragement and love enough to make this a much easier journey than you might otherwise be thinking.

    Cindy
  • emmarenshawemmarenshaw Member Posts: 712 Pioneering
    Welcome to the community @LexWood I’m Emma, I’m not a parent myself but, if you ever need a chat or anything please let me know.
  • AlexW_ScopeAlexW_Scope Scope Posts: 217 Pioneering
    Hi @LexWood, there are some ideas on this page about finding support groups for parents - hope this helps!
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