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Hi, my name is bella17 and I have a question about managing my child's temper tantrums
Hi there, I have a 3 1/2 year old child with mild cerebral palsy and I just really want some advice on how to deal with temper tantrums (include hitting himself and me if he can reach) ..how to introduce new foods.. just any help is greatly appreciated :)
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Using Direct Payments to purchase goods (trike) instead of care
Hi,I receive direct payments for my son (13) who has quad cerebral palsy and requires 24/7 care, hoisting and is non verbal. We have had no carers coming in from March to mid July (and he hasn’t been at school either) so we have unused DPs. Mencap have just started coming back into our home for 7 hours a week. My son has…
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How to help your child return to school after COVID-19
Scope's Activities for All team have put together a list of resources to help parents and children with the return back to school this September. Please feel free to have a browse and let us know if you have any questions. Transitions back to school This Youtube video is a recording of a workshop that discusses preparing…
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Any suggestions??
Hi all I have 2 boys one 4yrs old and 4 month old boy who s new baby during lockdown my big boy has learning difficulties who cannot communicate about his needs and wants . He s screaming a lots too , lockdown made him worse than before. Sometimes I’m so confused to priorities their needs??i mean which I need to look after…
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SEN Child being bullied - Help
Hi, I’m really hoping you can help me. Our son started coming home in the Autumn term of 2019 saying he
was being hit and punched by another child. We spoke to the SENCO who is not
supportive of Dylan’s needs and he said Dylan was misinterpreting the
situation. The week lockdown started Dylan was in the bath and when I…
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Meltdowns
My son has a mild form of CP - left hemi. Typically with a hemi child he is borderline for an emotional disorder too. He has autistic traits which are, again, typical of a hemi child. I need to learn how to control his meltdowns better and would welcome any advise. He isn't a naughty boy he just has immature meltdowns. We…
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Bottle feeding tips
I am a new mum! With mild CP I am struggling to get my hands and arms in the right position to bottle feed my daughter. She does take it but it is a super long & uncomfortable process. has anyone got any cheeky hacks or work arounds Thanks Jen
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Struggling to get a diagnosis for my almost 5 year old
im struggling to get a diagnosis for my almost 5 year old and and my wits end. Was told id feel welcome here :) hi
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Disabled mum hoping to pick up some tips and make new friends
I'm a disabled mum of 4, 2 of which have additional needs. I'm not sure what else to say, sometimes I feel overwhelmed and alone, hoping I may pick up tips and if brave enough make some new friends who get my life without pitying or patronising glares
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Going back to day centre
We're just beginning to look at a possible return to the day centre for our son. There are lots of questions we have about whether or not it is actually safe. After all, we three have been at home since mid-March and not mixing with others. Is there a check list or similar that we could use to help our discussions with the…
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My child wears splints on both feet, and has flat feet. Where can I buy reasonably priced shoes?
hello i am a parent to a child that wears splints on both feet. i am finding it hard to find shoes that are deep enough but not to expensive. he has flat flat also, so its hard to get his feet to fit into any normal shoes. can you suggest anything or help
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A bit of advice needed
This is a strange one and your advice sought as to how to go about sorting it out. I am not sure if I am in the correct category even. My friend had a stroke in February and then Covid 19. He is not yet retirement age but is now severely restricted by his stroke and very vague either from his stroke or covid 19. He is in…
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Can they ? ? ?
Just booked my 2 kids on play scheme, had to pay £234 extra for the wheelchair user who has cp. she needs a 1:1 for personal care so I had to pay for that. What happened to Equality of Access !!
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Support with the diagnosis pathway
Hi. My name is Sherrie. I'm here for advice and a sense of comeradery. I have had lots of training and experience with children with ASD, EBD and sensory processing disorders. Ever since my little girl was 1 I have been able to see certain traits that aren't Neuro typical. Due to my training and ability to accommodate her…
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Completely ignored by social care
I have a 24 year old son who is non-verbal autistic with learning disabilities and wondered has anybody heard anything from social care during the lockdown period. It strikes me that we have been completely ignored, nobody has rung us to ask how we are and how he is coping with the situation. I realise that there is…
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Does anyone have a list of worldwide hospitals that have a paediatric neurology department?
My two year old daughter was born extremely prematurely at 24 weeks and suffered a bilateral Grade 3 brain haemorrhage, resulting in acquired Hydrocephalus and.Cerebral Palsy. She has had two neurosurgeries at the Bristol Children’s Hospital: to fit an ommaya reservoir (ventricular access device) and for an ETV (Endoscopic…
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Education
Hi I need someone to talk to me
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Has anyone experienced PAs or agencies in caring for a child with physical and mental disabilities?
Hi my name s Sally I recently started caring for my cousin as a relative passed away it seems alot to understand but it helps reading about your experiences with pa or agency thankyou
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High functioning autistic with traits of PDA, 7 year old daughter
Hi I'm new to here and have just had some help from a clinical psychologist who thinks my daughter is high functioning autistic with traits of PDA anyone else have a similar diagnosis my daughter is 7 years old and now I need to ask for a referal from my GP.
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Desperate to talk to some other mums
Hello everyone, I'm new here. I have a six year old beautiful boy recently diagnosed with Aspergers. I am desperate to talk to some other mums as most days I feel like I'm losing my mind and that I am the only one in the world doing this!
