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A premature baby that’s NG fed
Hi, I’m desperately trying to find other parents of NG fed babies of premature babies and some stories of when the NG was removed. My son is 8 months young and I am feeling frustrated I really want to move forwards and I feel like we are not making any progress. Any advice would be appreciated.
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Helpful Materials for Carers
As I recently found my interest in joining communities like this, I also became interested with online content, podcasts and documentaries. I'm trying to find balance and support now as a carer and mother of a child with LD. Since people shared their pieces of advice to me as well as personal experience, I also want to…
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Government taken to court over SEND support
What's been your experience with getting SEND support for your child? I saw on the news this morning that families are taking the government to the High Court over funding for special education needs and disabilities. They argue that the enormous rise in demand for additional support has not been matched by government…
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How do you cope with stress?
I am a stay at home parent caring for my child with LD. It gets too stressful at times and I'm just curious how the other parents here cope with the situation. It's not like we love our child any less, but sometimes it can get overwhelming. Is it just me? Share me your methods of coping, please :)
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Searching For Special Schools
We’ve finally found a special school for my daughter, but she won’t be able to start until next year. I’ve blogged about our experience searching for one as it took a real long while! Read at: https://allforzariah.com/2019/06/24/special-school-success/
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Support for my son 24 years old has autism
Hello I am Raxa my is 24 years old has autism with learning difficulties, he doesn't have any interest in going out, he has carers who comes home end spend time with him, his not willing to do anything travel tranning, bit of house work, i am in the middle between them two, my son is saying that the support worker asking…
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Tips for carers, by carers
If you’ve just started caring
for a friend or loved one, it can be a sudden and dramatic change, or it can
happen very subtly and almost unnoticed. According to Carers UK, each day 6,000
people start caring and it can be a daunting prospect, but it can also become
overwhelming for those of us who have been doing it for…
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ADHD supoort
My daughter was diagnosed with ADHD in January of this year. When I was researching it I discovered loads of videos and info on the condition but nothing that shows you how it really is....how it feels to live with someone with ADHD or how to actually support them and help them. So I have set up a channel on you tube…
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Tips for Hiring a Personal Assistant
When the
times comes to hire a Personal Assistant (PA) it can seem like a very big task,
especially if this is something you have not done before. Essentially the role
of a PA in this instance is support a disabled person to live their life as
independently and fully as possible. What have
people said about having a PA?…
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New ideas for summer activities
I need new ideas for summer activities. So far my very limited list includes road trips and a family picnic. We also planned a couple of cycle rides and weekends exploring other parts of the country. Can anyone else suggest anything new? The only weatherproof idea I can think of is trips to the library. Even better if…
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Finding Special Schools
i have updated a new blog documenting our search for a special school since being told my daughter cannot stay at her current nursery. https://allforzariah.com/2019/06/13/special-schools/ Please check it out and feel free to give any advice if you can!
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Is she traumatised by the fall ?
Hi, My 2 year old fell of a bed while stopping at her aunties 4 weeks ago. Physical injuries where not substantial. after taking her to GP to be sure it was just superficial he verified it was. She was prior to the fall in a brilliant sleeping pattern she had always gone up I put her in bed kiss night and she would sleep…
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Discrimination in Childcare
Hi there, I am new here. My daughter is born blind and suffers from epilepsy. Among all the difficulties we have been through I find it the hardest to cope with the fact that because she needs one on one support, she cant access any private nurseries, childminders, or after school clubs. I believe this is illegal as…
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Tell us something positive about your carer!
Carers Week has started today and will run from Monday 10th June – Sunday 16th
June 2019. This year’s theme will be looking at connecting carers to their
communities, advice and information, support services, friends and family,
other carers and through technology. There are approximately 6.5 million carers in
the UK who…
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Road to Resilience - How to talk about your child’s impairment
We have a new series of films to share with you, from parents and carers for parents and carers called The Road to Resilience. This film is about how to talk about your child's impairment. https://www.youtube.com/watch?v=DXix-yi1uAU&feature=youtu.be Let us know what you think, share your experiences now.
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Reshare: Meet Adele-Caitlin
As part of Carers Week, we're re-sharing this blog from @AdeleTaylor who spoke
to us about her experiences as a young carer and what she is up to now. Hi
Adele, would you like to introduce yourself please? Hi, my name is Adele (Adele-Caitlin) and I’m an eighteen-year-old disabled
young carer as well as an aspiring writer.…
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10 minutes with the doctor after a year wait
Good morning everyone I just want to share some information with you lovely people regarding my son my son Alex is 5 in September after waiting such a long time for an appointment at gosh we finally had an appointment yesterday which we was very excited we just thought we going to get some answers back regarding my son's…
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Carers Week photo gallery!
This week (10th-17th June) is Carers Week. Here on the community we try our best to support carers as we know the importance of them and the unique challenges they may face. There are approximately 6.5 million carers in the UK who care for a loved one who's disabled, older or chronically ill. You can show your support for…
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My newborn has Spina bifida
My nuborn with spina bifida
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Blogging my experience
Hiya everyone, I have started blogging my experience of being a mother to a beautiful girl with special needs to help other young mums or first time mums who are struggling to find anyone going through similar experiences, but also as a coping mechanism for myself. I’ve made a new post today. Please check it out and feel…