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Support with the diagnosis pathway

Hi. My name is Sherrie. I'm here for advice and a sense of comeradery. I have had lots of training and experience with children with ASD, EBD and sensory processing disorders. Ever since my little girl was 1 I have been able to see certain traits that aren't Neuro typical. Due to my training and ability to accommodate her needs she has gone undiagnosed. She is now nearly 7 and has become very adept at masking her difficulties. She is home educated due to finding school so overwhelming, the school used to send her home on days when senior staff weren't in so I took her education into my own hands which isn't a problem as I work in primary education. I'm now finding it hard to navigate the pathway to a diagnosis as there aren't any professionals that know her well enough to support or give evidence of the struggles she has. I know it's going to be a long road so any advice or just conversation with parents in similar circumstances would be lovely. Thanks for reading.
Replies
Good Afternoon & Welcome to our online community.
I am one of the CommunityChampion’s here at Scope. Please please let me
We have got some good info for you below.
https://www.scope.org.uk/services/
https://www.scope.org.uk/family-look services/family-activities-leeds/parents-carers/
https
Ihttps://www.scope.org.uk/family-services/family-activities-leeds/parents-carers/
I do hope that is okay for you???!
If you require any further help please let me know.
@steve51
I suggest you take a look at our parents and carers section or the parents of disabled children to see if there is any suitable advice on there
I look forward to seeing you around and good luck getting a diagoisis or your daughter
Scope
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For a child or young person over 5 years I would make an appointment with your GP, especially as your daughter is home-educated and she will not have been seen by any other professionals. When you raise your concerns with the GP, it will be helpful to give examples and any observations you have made. The GP will then be able to refer you on to CAMHS - Child and Adolescent Mental Health Services, and they generally assess and diagnose children over 5 years old. In some areas waiting lists for CAMHS can be long, in Leeds they now also use an electronic system called Mindmate, where families can access support and information.
It may be useful to look on your local authority website under Local Offer for information about services for disabled children or look on your local NHS community healthcare web pages for direct information about CAMHS referrals in your local authority. Hopefully though your GP will have all the information you need about pathways and support.
I hope you find the information you need and access some support for your daughter.
Thank you all again for your kind comments
Good Morning I do hope that you have had a good start with the day????
Please please don’t worry about the long post as that is what we are all here for.
Here is some info below for you.
https://www.healthline.com/health/kernicterus
Please let me know if you have any further questions??
Thank you all for taking the time to post xx