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Coping Mechanism?
My daughter has cerebral palsy and she’s had the diagnosis since about 6 months. I’ve read a lot of conversations and threads on here from parents and from people diagnosed with it but everyone has such different stories. I’m a young mum and just found it hard to cope, so I’ve started a blog to document our story. You…
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Greenwich council
Since march this year I'm been reporting about my fence and gate very unsteady and the wood it actually rotten I have reportedmany of times and are they giving me excuses excuses excuses I have a disability myself which is cerebral palsy and as I'm getting older im getting worse I live in the black of 4 and lady above me…
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Tips on finding an accessible activity this half term
My name is Sam Bowen and I’m mum to Lucy who is 9. Lucy is
a very sociable little girl who loves shopping, music (especially drumming) and
any water-based activity. She is funny, wilful and free spirited just like most
9 year old girls are, she also happens to be severely disabled due to her
unique genes. A Dr recently…
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Disabled parent with children
Hi I'm a 64 year old man with 4 children I'm there only carer as my partner left us 3 year ago i can't drive and because of my illness we feel let down by everyone and even though I remain smiling it is just a mask for my kids sake
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Carers need care themselves
I'm responding to the article in your newsletter about carers, how they are treated and their mental health. The stresses of caring for a teenager with undiagnosed brain damage, sight problems and PTSD drove me to become a self-injurer. Neither of us had much support from our GPs. I was unable to admit to any problems as…
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Experiences of AFO splints for my son?
Help!!! I have been given these and I feel they are far to big for my son, what do you guys have? Xxx
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Wanting the age to adopt a child to be 18 or 19
Hello I am 20 nearly 21 and I have been thinking in my mind about wanting to adopt a child or wanting the age to adopt a child and other things that have a minimum age requirement of 21 or 25 to be lowered to age 18 as 18 is the adult age in this country and most other countries. I don't know why not many countries have a…
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how to access a driver for our vehicle so we can get out as a family
I am a full time carer for my disabled 36 year old daughter and also my husband who had a sever stroke almost 2 years ago both are wheelchair bound and rely for m me totally I am just about at the end of my tether and feel so isolated in this situation and would really appreciate if someone could possibly be of help in…
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Holiday with disabled child
My partner and I have decided to go away for a fun weekend with the kids in tow. We are planning on driving to Bath this summer. We are planning on booking a room at a hotel or BnB. How do I politely find out about disability friendly activities and accommodation? If you can recommend anything I will definitely be…
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Im a mommy of an isolated aspie
I have a 17 almost 18 year old son, he is smart, funny, and kind. He also goes selectively mute when in public, and has 0 communication skills outside our home. I had to start home schooling him in 6th grade because of anxiety, and now he wants to work, but will not leave the house much, or talk to people, and I'm not sure…
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Son screaming....lots!
Hello So my son is 6years old and has severe learning difficulties and autism, he is mostly non verbal and also makes noises his very vocal in general. But for the last few weeks he has been screaming over and over in short high pitched bursts whatever he is doing he screams, sometimes he follows this by hitting his head…
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PIP form
Hi ppl I am a carer to my son who has austim. Also other son with adhd..I have arthritis...and work .. I'm struggling to cope and have asked for a pip form.... I dont really no if I am entitled to it but I can't see me staying in work much longer.. Any advice ? X
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activities for wife
My wife suffers fibromyalgia, rheumatoid arthritis, and FND, she is pretty much down in the dumps at the moment and she feels left out. We as a family look after of course but we all have other activities that we are involved with, my wife is happy with that because she doesn’t want to be a burden and stop us doing what we…
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Anyone with experience of amputation
When pregnant at 28 weeks we found out and amniotic band had prevent development of ours sons right foot and ankle. instead he was born with a large boneless mass (with one tiny boneless toe inside). It’s been struggle since then and even more so since he was born bit to cut a very (long) story short we have an amputation…
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I'm in need of support and ideas for myself and my children
I just signed up because I'm in need of support and ideas for myself and my children. I am a single mom of 3 teens, my first born having Asperger's, OCD, and Agoraphobia, it's been a lonely road for us all, and I'm here to change that! Nice to say hi to everyone, and I look forward to reading, learning, and chatting!
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How to help.
My husband has Dementia and it can be very difficult living with him . I have been told not to dissagree with him But some times that makes it even more difficult as he wants his own way all the time . So how would I need to deal with this ?Anyhelp would be appreciated. Thank you
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How do you feel motivated?
Hi, after ivf, I am now a mother to a severely disabled child, who is epileptic, registered severely visually impaired with global delays. She is nearly two, does not walk, talk, seat, scoot or crwal. I work full time. Some days are good and some days very bad. How do you feel motivated?
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Childcare provider issues
Yesterday afternoon a childcare provider bullied my son. I had to go to work so I hired someone else to provide temporary childcare each week for a set number of hours. The childcare provider basically didn’t help my son when he stumbled when they were in town at a shop waiting to pay. She said “Get back in line”. I’m so…
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Disability Related Expenditure
Hello, I am new and am looking for some help and Support. My daugher is 27 and is diagnosed with Impulsive EUPD and a learning disability. Social Services are billing me for her care because nobody has completed a disability related expenditure form. I have now been told that I have to complete this, I never have before…
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Is there anyone on this site who’s child has scoliosis ?
Hi I’m a mam to a little boy who’s got a few disabilities, is there anyone on this site who’s child has scoliosis
