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Terrified Parent... My three year old daughter just diagnosed with Muscular Dystrophy
My three year old daughter Nora was diagnosed with Muscular Dystrophy on Friday, having lost much of the function in her legs over the past three weeks. I am devastated, and don’t think I can cope with being the parent of a child with a disability. I love Nora more than anything but right now I am struggling to see any of…
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Does your child have PVL and Spastic Quadriplegic? Would like some support please
Hello, I'm new in this site. I have a child 6 weeks earlier delivered and he will be 1 year old this 29th of December. The MRI showed that he has bilateral extensive white matter loss damage PVL Preventricular leukomalacia. And he was just diagnosed Spastic quadriplegic 3 weeks ago. I'm very worried for the future of my…
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Additional support needed for my son
Hello I have a son Michael who is 34 yrs old, I just would like some backup with him. I have no one to really to help me with him.
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Mum of two adult disabled children
I am new to this community. I am mum to two adult children who have disabilities. Just wanted to say Hello!
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I would really appreciate some advice
Hello. My 16 year old Son was hit by a car 6 weeks ago and has sustained a massive brain injury. He is still in intensive care, minimally responsive and on a ventilator, but he continues to make small improvements. I just don’t know where to begin to get support if we are fortunate enough for him to be able to come…
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Hi I am Kate
Hi everyone, I wanted to introduce myself. My name is Kate and I am an advisor on the new navigate service, here is the link for you all to have a quick look www.scope.org.uk/navigate . We are a new service for parents of children who have a disability or impairment- we offer support for those early months of diagnosis.…
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New diagnosis for baby boy
My little boy has just been formally diagnosed with mild CP to the left hand side of his body. I only know children with server CP so unsure of what to expect. Henry is 13mths (10mths corrected) so still very young. Henry was born prematurely at 27w3d. 3 days after he was born he had a brain bleed leaving him with a grade…
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Symptoms at diagnosis of CP
hi Guys, hoping you you can share your experiences. My 22 month old niece recently had X-rays on hips, knees & ankles. Hips were not good & radiographer had suggested referral for both hip dysplasia & CP consultants, as she wasn’t sure which it is from X-rays. A little bit of back-ground-she had normal birth at full term,…
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Husband and Mum with disabilities
Hi all, I am a betweenie! I have husband and mum with disabilities, hoping to find support here, and give as much support back as I can
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Mindful Monsters - Mindfulness for all the family
The Mindful Monsters are here to
help teach your little ones how to handle the trickier things in life. Mindful Monsters is a monthly subscription
service, with 7 fun activity cards delivered straight to your door every month.
The activities are inspired by mindfulness and aim to help improve focus,
positive thinking and…
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Care company notice to quit
Well here we go again ...care company cannot provide adequate suitable care for my son .again ..this happens every so many years ..he has been so let down I am exhausted with caring covering and m.e depression and grieving right now over loss of my mum ....he has 24 hours a week supported living care but only received a…
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Disabled siblings
Hi, I am new here. I have 2 younger siblings with Special needs. My mum is their primary carer & she is 65 now & they are late 20’s & 30. They are both wheelchair bound and need help for everything. When I was 18 I moved out and started a life about 40 miles away. We were never really a close family. I am 37 now. I am now…
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Neighbour using my disabled son to harass us as a family
Hello, we have a neighbour who has been harassing us for over two years. I have a disabled son who this neighbour is targeting with constant complaints. Having spoken to our housing officer, PCSO and trying to get an appt with our local MP I really do not know where else to go. Basically told to ‘rise above’ the constant…
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Carer
Can enyone tell what bandits my carer can get wen u get carer benfit
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Gathering information for my son in a special needs school
My son is on the Autistic Spectrum in a special needs secondary school. Our main issues have been the gathering of information.
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I'm a full time carer and mum to my adult autistic daughter.
I'm a full time carer and mum to my adult autistic daughter.
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Online anonymous research project involving parents of children with Cerebral Palsy.
Hello everyone, My
name is Megan Taylor and I am a third-year undergraduate physiotherapy student
at York St John University. My research project is being supervised by Dr.
Charikleia Sinani, a senior physiotherapy lecturer at the university. I
am interested in investigating parental experiences of physiotherapy services…
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Hello Im Kelly, ask me questions about parenting
I'm Kelly - blogger, Virtual Assistant and home educating
mother of two. I live in the West Midlands with my husband, kids and various
rodent pets. My six-year old daughter is autistic and goes to a special school,
my 11-year old son is home educated. We have plenty of experience of autism,
sensory processing issues,…
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My son is model for down syndrome
Hi I am a mum of a 4 year old down syndrome son, he is the most perfect & precious thing in my life. He is at the moment a model for the down syndrome awareness day #downrightamazing
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I am a carer for my partner
I'm a carer for my partner who has ABI due to cardiac arrest 10 months ago, I also have fibromyalgia and some days I really struggle. Feel so alone with him 24/7 do get the occasional break.
