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10 minutes with the doctor after a year wait
Good morning everyone I just want to share some information with you lovely people regarding my son my son Alex is 5 in September after waiting such a long time for an appointment at gosh we finally had an appointment yesterday which we was very excited we just thought we going to get some answers back regarding my son's…
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Carers Week photo gallery!
This week (10th-17th June) is Carers Week. Here on the community we try our best to support carers as we know the importance of them and the unique challenges they may face. There are approximately 6.5 million carers in the UK who care for a loved one who's disabled, older or chronically ill. You can show your support for…
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My newborn has Spina bifida
My nuborn with spina bifida
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Blogging my experience
Hiya everyone, I have started blogging my experience of being a mother to a beautiful girl with special needs to help other young mums or first time mums who are struggling to find anyone going through similar experiences, but also as a coping mechanism for myself. I’ve made a new post today. Please check it out and feel…
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Do I stand anywhere legally?
Can anyone give me some advice on this. I have Aspergers Syndrome and this was exploited through the court system by my ex regarding contact with my children in 2009. I know the law has changed now and disabled people have rights these days but I strongly feel I have had my parental rights taken off me. I have a letter…
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Young adult work
hi I am just wondering what our young adults do when they are unable to work and don’t want to socialise ? Do any of you have young adults that just want to be alone and at home ?
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help and advice for children with epilepsy
Hi all my little man as just been diagnosis with epilepsy but also as learning difficulties and concerns with ADHD and autistic features so just wanted some help and advice and to make new friends
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Feeling Low
Hi, My my eldest son has just turned 7 & has a diagnosis of Aspergers & PDA. Half term has been really challenging, I really noticed his anxiety levels increase & his OCD type behaviours become more apparent. We went camping for a few days & he had several meltdowns. As we were a bit out of routine & in an unfamiliar…
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Swimming lessons
My son and daughter had their first ever proper swimming lesson yesterday at a local community pool. They had a great time mucking around in the water under my supervision for almost two hours. But I’m not sure if I can afford to pay for swimming lessons. Yet another expensive activity for us but it is such a important…
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Im going through a bit of a rough time at the moment, although im trying to stay positive
Hi, thanks for accepting me. Im going through a bit of a rough time at the moment, although im trying to stay positive. i look forward to getting to know you all and having some good banter
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I struggle with sleep massively
I'm a mum of 4 boys, 3 of which with additional needs. 15yr old with Attachment disorder and poss ADHD, 12yr old with Autism, ADHD and Epilepsy and 8yr old with ADHD and Pathological demand avoidance PDA.. times are hard, as you can tell at this time, I struggle with sleep massively.. I also struggle with depression and…
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Coping Mechanism?
My daughter has cerebral palsy and she’s had the diagnosis since about 6 months. I’ve read a lot of conversations and threads on here from parents and from people diagnosed with it but everyone has such different stories. I’m a young mum and just found it hard to cope, so I’ve started a blog to document our story. You…
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Greenwich council
Since march this year I'm been reporting about my fence and gate very unsteady and the wood it actually rotten I have reportedmany of times and are they giving me excuses excuses excuses I have a disability myself which is cerebral palsy and as I'm getting older im getting worse I live in the black of 4 and lady above me…
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Tips on finding an accessible activity this half term
My name is Sam Bowen and I’m mum to Lucy who is 9. Lucy is
a very sociable little girl who loves shopping, music (especially drumming) and
any water-based activity. She is funny, wilful and free spirited just like most
9 year old girls are, she also happens to be severely disabled due to her
unique genes. A Dr recently…
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Disabled parent with children
Hi I'm a 64 year old man with 4 children I'm there only carer as my partner left us 3 year ago i can't drive and because of my illness we feel let down by everyone and even though I remain smiling it is just a mask for my kids sake
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Carers need care themselves
I'm responding to the article in your newsletter about carers, how they are treated and their mental health. The stresses of caring for a teenager with undiagnosed brain damage, sight problems and PTSD drove me to become a self-injurer. Neither of us had much support from our GPs. I was unable to admit to any problems as…
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Experiences of AFO splints for my son?
Help!!! I have been given these and I feel they are far to big for my son, what do you guys have? Xxx
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Wanting the age to adopt a child to be 18 or 19
Hello I am 20 nearly 21 and I have been thinking in my mind about wanting to adopt a child or wanting the age to adopt a child and other things that have a minimum age requirement of 21 or 25 to be lowered to age 18 as 18 is the adult age in this country and most other countries. I don't know why not many countries have a…
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how to access a driver for our vehicle so we can get out as a family
I am a full time carer for my disabled 36 year old daughter and also my husband who had a sever stroke almost 2 years ago both are wheelchair bound and rely for m me totally I am just about at the end of my tether and feel so isolated in this situation and would really appreciate if someone could possibly be of help in…
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Holiday with disabled child
My partner and I have decided to go away for a fun weekend with the kids in tow. We are planning on driving to Bath this summer. We are planning on booking a room at a hotel or BnB. How do I politely find out about disability friendly activities and accommodation? If you can recommend anything I will definitely be…
