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daughter with aspergers, ADHD, severe depression and anxiety
I am the sole carer for my daughter who has aspergers, ADHD, severe depression and anxiety
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CMT
Hi my name is Helen my 15 year old daughter has CMT or also known as HMSN Hereditary Motor Sensory Neuropathy it is a rare muscle wasting disease which affects the hands & feet mainly but there are many other symptoms.
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People Passing Opinions!!
My little girl is off nursery today so we nipped into town. In the space of two hours we encountered pretty much every attitude to disability possible!! The lift into ASDA has been broken for 3 months, so we had to walk right round and drag our shopping up and down a huge ramp again. The staff in Next pretty much fell over…
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Im a new carer - any advice?
Hello :-) I'm 35 and have just left 20+ years working in catering to train as a carer. I've found a lovely small family-run home who have offered to train me, they are primarily elderly dementia care but also support a younger client with cerebral palsy who lives independently. My first shift, 8-8, is tomorrow and i'm keen…
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stopping my nephew picking any bits off the floor
Hi I found the behaviour topic really interesting I was wondering if anyone had any advice for me I would love to try stopping my nephew picking any bits off the floor and eating them, he has a chew buddy and when I see him getting bits I will wipe him and try giving him a toy or something else, any advise would be great…
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sewing and adapting garments
My little girl is getting a bit bigger, and things like the standard popper vests don't fit any more. I know you can buy them in larger sizes from M&S and specialist places - but I would love to learn to make some things myself. I am doing a sewing course when she starts school in September and got a beautiful sewing…
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Self harm
Hi I'm looking for techniques to reduce my harming please x
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When should my child get an EHC she's still on a statement
Hi my daughter has been on a statement since she was 8years old she is now 12 and still on a statement. When should this change over ? Thank you
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What happens next?
My son has been seen by the OT, who's report stated he met all the criteria for dyspraxia and Sensory processing Disorder. We met with the Paediatrician today who said that he is not Autistic and there are no other apparent causes for his symptoms. We have been referred back to the OT with the Paediatrician saying that the…
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Family support
Hi I'm new here :)
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Carers Week
This week is Carers Week, There are around seven million carers in the UK – that is one in ten people and three in five people will be carers at some point in their lives in the UK. Carers Week is a campaign to raise awareness
of caring and to recognise the contribution carers make to families and to society. Are you a…
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5 Year Old Daughter Not Walking Without Support
I have a daughter 5 years of age but she does not walk or stands with out support. She crawls, stands and walk by suppport. Can she walk in future. What should i do like exercise or medicines please give me advices.
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Hi, my 6 year old has autism.
Hi iv only recently had my eyes open to scope by a lovely man that knocked my door, my son is 6 and has recently been diagnosed with autism and I think this site is absolutely brilliant it's hard to find a site that people understand what you go through on a daily basis and it's very helpful x
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Hi, I'm jani36! I'm seeking support/guidance from other parents.
Hello. Am a mum of two boys my son has adhd,autism and anxiety. I have joined the group for support for me and for info/guidance from other parents
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Transport to school
My 4 year got EHCP recently on 25th January. And he joined school form 20 February 2017 after being at home for 6 months. Does he entitled for transport to school. Both of us me and my husband not working at the moment due to chemotherapy for Leukemia for my other son. My husband is on Income support. Thanks Usha
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Fighting for an EHCP
I am a parent of a now 16 year old son with Chronic Migraines, PoTS and CFS. I blog a couple of times a week about life as a parent https://thesecretlifeofapotsparent.wordpress.com I am fighting for an EHCP as there is no provision for post 16 year old`s who want to remain in education and are no able to access mainstream…
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Education, Health and Care Plan (EHCP) overdue?
HI, I am trying to compile a national picture of how many EHCPs are outside the timelines. My daughters stands at 56 weeks outside,which has consequently put her at high risk and I have realised I am not alone. This is clearly a national issue. Also there is appearing to be a pattern of not making them specific and not…
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Support needed - brother with special needs
Hi I new to this my bro got special needs and I am finding it hard to cope with as my dad pass in Jan this year and now mum got cancer just don't know where to go
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Want to talk with other Parents
Hi, I'm Catherine. I have seen scope around since I was younger but never knew what it was all about until I saw it advertised on Facebook. I have a 5 year old son (Well in a few weeks he will be 5) who was diagnosed with autism spectrum disorder about a year and half ago, even though like others we knew he was different…
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Help with Daughter's Emotions (and Housing)
My 8 year old daughter was paralysed whilst on family holiday 0ct 2015.. Diagnosed with Surfers Myelopathy 1/64 cases worldwide.. As time has passed behaviour has became much more challenging.. Being a single working mum, who fortunately has all school holidays and hours 9-3pm so im always there for her.. I have little…
