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I worry about my adult son with ADHD
This discussion was created from comments split from: Support for my son after he turns 18.
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DLA/PIP
Hello I am getting ESA in the work focused group. I had an assessment for work capability. They have now put me in the support group. I get Low mobility DLA and low care DLA. As my illness has got worse and also my mobility.do I phone DLA and tell them I'm in support group and I'm getting worse. But don't know if there put…
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Disabled son and care legalities.
I need to arrange for care for my son. He has learning difficulties and aspergers. He is a good kid overall, good set of ethics and not violent so easy to handle, but the time has come now for him to be looked after by somebody else.What legal things do i need to sort out and should i consider residential care or another…
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young carers forums or groups
This discussion was created from comments split from: When your children are young carers.
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My son is 2 years 6 months and still cannot stand without support, advice?
My child is 2 years and 6 months old.He cannot stand up without support.but he can stand up and walk with support by holding to chairs and tables.Doc told he is hypotonia and physio would help.but no progress.His bloods are normal.please help
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Can anyone help me find my haelie
My childd went to live in a professional parent program with a polanesaen family emma and machine iive heard nothing from them i dont know if shes alive or dead plz if anyone can help me find my baby ill do anything to see her and know shes alive and ok
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Advice for finding good carers?
My nephew is 20 and has cerebral palsy. My sister is really struggling to find carers for when he is not at college. They live in Selsey, near Chichester in West Sussex. Unfortunately my nephew has been unwell with epilepsy and a lot of undiagnosed pain recently and so isn’t at college. I am doing all I can to try and help…
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Carers
My name is Dave I am a carer for my wife she has M/S for the last 20 years.we are waiting pip results.life is hard enough without this regime of persecution against disabled people.i lost my carers allowance at 65 It appears at 65 you are no longer a carer.but if you notice politicians seem invulnerable to getting any type…
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Only member of household not ASD
Hi All I’m new here but From reading the last few discussions I think I may have come to the right place! I am the step father to two boys; the eldest (14) was diagnosed with high functioning autism, adhd, Tourette’s and generalised anxiety disorder when very young and copes relatively well at school. My wife (37) has just…
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Postural tacicardio syndrome (POTS) and PIP
my 17yr old daughter has been diagnosed with this, and has her assessment for PIP NEXT WEEK. Have any members any experience of this
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change in childs health
we currently get middle rate PIP for our 7 year old adopted daughter. She has just been assessed by the musculoskeletal team, due to my suspicions there wasn't something quite right with her legs. She's constantly falling over and coming over on her ankle. Her knee is turned inwards. Anyway they have said that she has one…
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Support for my son after he turns 18
joined this group to try and support my son who is 18 in October , when he reaches 18 I’m realising that all his days out and activity days suddenly disappear, I’m not sure what is out there for him, He has severe learning difficulties. I’m trying to carve out a direction for him to help him. I’m stumbling in the dark at…
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Moved: Travelling by car
This discussion has been moved.
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Fatal valproate syndrome 31 learning disabilities Caring for my cousin please help
Hi guys long story short I’m caring for my cousin She 31 born with congenital heart disease she has long jaw spine problems deformed hands and feet .. Along with Learning difficulties and behaviour problems. Really been let down by social services.. Parents think she has valproate syndrome as both epileptic and took…
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Feel let down when trying to get support
Hi i have two children with severe physical disabilities who are 5 and 7 . i feel when asking for help and and support the amount of stress i go through is not worth it, whether its applying for a extension for adaptations ( finding this trumatic) trying to get support or a new wheelchair (getting bounced from one…
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Epilepsy help and advice
Please can you point me in the right direction to get some help for my friend/neighbor that lives in Epsom Surrey. Her 11 yr old daughter began having seizures 2 yrs ago which are uncontrollable with medication. She has them almost daily and is admitted to hospital at least once a month. Her brain is shrinking causing…
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Moved house, trying to find out who my son's EHCP care worker is
iv been trying to find out who the case worker for my son's EHCP is for weeks and nobody gets back to me since we moved house we're under a different bourogh and a different worker in being told I can change his school without talking to the case worker but I don't even know who that is I don't know what else i can do
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Kinship carer for 2 nieces
Hello. I am a kinship carer for my 2 nieces. (Age 6 and 7) youngest diagnosed autism, eldest diagnosed ADHD. 5 and half years of no support, help or assistance from anyone. They're beautiful children but hard work. And especially as a single person I find no time to enjoy the things I used to. I found out about this…
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Parent at lose for where to turn
My son is currently having a assessment for adaptions to our home through disability grant the plans are not taking his full potential into account at moment he is only 3 and we've been told he will walk with support the adapions do not take this into place I'm fighting against the plans is there any organisation for…
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Wish I could have some answers. Struggling
where to start... My gorgeous boy is 12 months old at the end of this month. Things have never been straight forward when he was born he was admitted to neonatal as wouldn’t feed and his blood sugars had dropped very low. I noticed his hands were doing a weird jerky shaky thing. Subsequently he was jaundice and had…
