-
Hi, my name is lallal!
I have 2 sons aged 15 and 11 and my youngest is autistic. He’s just started high school in September and I am looking for friends and friendly advice to help us on this part of our journey.
-
8 year cutting his clothes at school.
Hello, My 8 year old is in the process of having a sensory profile done due to suspected sensory processing issues. Overall, he's a lovely boy with great communication skills so ASD is not suspected. He is such a friendly boy, but does struggle with expressing his own emotions and this comes out as frustration. He is in…
-
Help
I am 65 and have a 32 year old son who is disabled he has brain damage from birth epilepsy. When looking at my son he looks normal people speak to him as is age but he has an academic age of 5 cannot read or write so why when the people at pips and dss ask him questions they don't read his medical history sorry for…
-
Availability/provision of dosage syringes for baclofen
Hi all, my daughter has recently started Baclofen. The starting dose was 1ml, to increase to 2ml then 3ml over a period of time. My question is, has any one struggled to get dosage syringes with the baclofen? For the last two prescriptions I have not been given any syringes to enable me to measure out the correct dose! I…
-
My daughter is 19 and I have found the Transition process very tough
My daughter is 19 and I have found the Transition process very tough to ensure I can continue caring and working. Holiday support in particular, is only possible with a personal budget big enough to pay someone else as other day care settings are few and far away from where we live. Do others find similar problems?
-
Dribbling and bad breath
Hi to you all My son is 34 years old with Cerebral Palsy and Seizure Disorder Spastic Diplegia Nic is on lots of medications and it would be great to talk with others that have issues with..... Drooling and Bad Breath I wish there was a cure its consent and I have tried all the mouthwashes and toothpastes nothing works I…
-
Discussion about Special needs
My 8year old has a sensory processing disorder and he has started asking me questions e.g. Have I a special mind? Do I have Special needs? So I think he must be noticing some difference. I don't know how to have this talk with him without him getting upset. Just wondered if anyone has any ideas please.
-
Upset and stressed
my son has dysphraxia and developmental delay. I’ve always had to manage his affairs as he gets into difficulty. He is 28 years old and sick to death of having to speak about all the things he cannot do to benefits and council officials. I feel so guilty having to point out things oliver struggles with. I suppose this…
-
Need breaks to recharge
Hi there i have bipolar disorder and my 7 year old son has adhd, im on my own trying to cope but i cant i need just a little break to recharge now and then, we need some family help
-
help issues relating to sisters care and social services
Could do with help issues relating to sisters care and social services and wcbc need advice no support and causing severe issues
-
Advice on dla tribunal
Pls has anyone got any advice on a dla tribunal? It's for my 12 year old son who's autistic well in the process of having tests. Some doc say adhd some don't under useless Chams and and going in circles
-
Need advice - My family needs more help than ever
My little boy was stuck down in February with Meningoencephalitis, he is brain damaged now, he can't walk, talk, eat or see and we need more help then ever, we go home this Nov, can anyone give me any advice that could be of great help to us as a family to help my son life be as fulfilling as possible and so my son and 8…
-
Help Please. What changes when you have a young adult who is 18 ??
I am helping support my brothers and son with significant special needs who is 18 years old in May. He will then change from going to school to college. I just wondered when young adults turn 18 are there any differences in any aspects of their daily life for instance in terms of support, respite, financial etc or any…
-
Advice please
I'm single parent to a 12 yr old been diagnosed with Tourette's and anxiety . Tried to apply for dla but told can't get it . What help can I get please ???
-
DLA to pip transfer
Hi all. My son turned 16 recently so had to transfer from DLA to pip. He has cerebral palsy gmfcs level 2 motor skills difficulties and some learning disabilities. It's been refused, I'm gobsmacked how they think he's not entitled to it. I sent 6 years worth of paperwork from doctors, physio ot his ehcp....I'm going to…
-
Caring
This discussion was created from comments split from: Hi, my name is amanda1!.
-
Passport Photos
My little one needs a passport photo for her first bus pass. The Blue Badge people accepted one emailed from my phone, but this time we need a proper photo. She uses a wheelchair and is incredibly wriggly - so I really can't imagine one of the booths working :D Has anyone got any ideas please? x
-
vaccine injury at birth
Hello, I just found this community online and hope to connect with people in a similar situation and see what how others are handling things.. I am a single parent and have a 27 year old daughter who sustained a vaccine injury at birth .. vaccinated for Rubella on the first day of her life...today she is high functioning…
-
Help
My daughter is 16 in January in year 11 so from nursery I had to sigh a form so she could have extra help an the same in infant an juniors an when she was ready for year 7 should we put here in a school that could help here as she had learning difficult or main stream school an the juniors said she will be fine if she gets…
-
Mum to 18 year old son with Epilepsy, Severe LD and Autism. Lost in the system.
Mum to 18 year old son with Epilepsy, Severe LD and Autism. Lost in the system. Very limited help getting to feel like we will need some help in the future. Married and a nurse working in the community. Advice is always appreciated and happy to offer any assistance. Xxx
