-
Hi, my name is Phyll and I have become a carer
I am very new to being a carer as my hubby has only recently become quadriplegic and has not yet left hospital. It still all feels quite unreal and is happening to somebody else. Have tried to get support from SS, but they won't engage with us Sorry for rambling x
-
Hi, my name is Clare
Hi I'm new on here and relatively new to being disabled . I am a mum to 9 year old twin boys both have autism but are the sunshine in my life . I enjoys drawing and crafting when my hands allow. I also love being in the out doors and play gold from my wheelchair. I have a fantastic husband who just gets on with things no…
-
Daughter is about to start school - anxious she will be 'different'
My daughter Lucy is 5 and about to start school. She was 12 weeks early at birth and has cerebral palsy. I'm interested to hear how other parents feel when they're child has extra needs and your about to let them go. This is not my first baby, she has two big brothers, but I'm feeling anxious she will be 'differen' x
-
My 2 year old son's outbursts are becoming violent - any advice?
My doctor pointed me into your direction. I. Have 2 children 5 & 2. My son is 2 and he's got so many health problems. He's got syrinx syndrome. Hypotonia. Problems with his kidneys and undiagnosed muscle disease. He's none verbal and can't walk. He get extremely frustrated and angry as he can't tell you what he wants. His…
-
Hi, my name is DJOsMummy!
Hi all. I'm new to this :) I a beautiful 7 month old son who has just been clinically diagnosed with Cerabrel Palsy and I feel a bit lost if I'm honest.
-
My son's off to residential college in September - looking for information on how other parents cope
Hi joined this community as feeling the strain a little. I am Mum to 2 lovely boys and I work full time. Our eldest, 19, is off to Residential College in September after a long, fraught battle to get him there. He's going to be there 5 days a week with us picking up/dropping off every weekend. I'm ecstatic that he's going…
-
My son has quadriplegic dystonic cp
Hi my name is Laura, I'm a mum to 2 boys. Oliver is 12 and Alex is 8. Alex has quadriplegic dystonic cp. Advice and an understanding ear is always appreciated ! Im not ashamed to say it get hard sometimes, but the rewards are off the scale. It'll be lovely to hear from people in a similar situation to mine x
-
Residential schools
Hi, we are considering a Sen residential school placement for our 11 years old son. He is diagnosis with autism, Adhd and challenging behaviour. Along with severe learning difficulties. My son should be starting Sen secondary school in sept but has to go through assessments to see if if they can meet his needs. I think…
-
Hi, my name is triciasutton81!
Hi my name isTricia!! I have a beautiful 12 year old daughter called Teigan. Teigan has triplegic cerebral palsy,hydrocephalus, global developmental delay, complex partial epilepsy, premature puberty and ASD ( I know it's a mouthful ). I'm hoping to make some new friends and not to feel so lonely xx
-
NG and Peg feeding - HELP!
Hi I am new to this site. My daughter had a baby girl in july 2016. When she was born my daughter tried to breast feed but baby just wasn't happy. So she was bottle fed. She was taking bottles fine until she was about 3 months old and was really crying and distressed my daughter took her to A&E. Tests were done and they…
-
Grandparent and carer. Also disabled
I am a 50 year old carer for my 51 year old husband. I have fybramyalgia, spondylitis, osteo arthritus n couple more illnesses. I have my 4 grandsons over the weekend. My oldest is 8 and downs syndrome. He can talk be as wide as any teenager and has attude and a mind of his own.hastes school always will. He comez down at…
-
Helping our son get the best life he can
My son Harry is tall, handsome, funny and also happens to be afflicted by complex epilepsy and learning disabilities... he is 16 and we love him to pieces ❤️❤️ As as he enters transition we know we have to become more aware of how to help him get the best life he can and are hoping to meet like minded people here. thanks…
-
Overdose
My daughter who has aspergers, ADHD, anxiety and severe depression constantly tries to take her own life, it is heartbreaking to watch, no matter what we say she keeps doing it
-
I want to get my daughter assessed for local services - how do I go about this?
I have moved local authority's.i want to get my daughter assessed for services so that she can move .how do I go about this
-
Concerned about my 8 month old baby
Hello I have been in contact with my doctor because I have concerns about my little girl I do not feel as if they are listening to me, she is now nearly 9 months old she is unable to roll over or bear weight on her legs or for more than 5 seconds she is a chubby baby but my other children were chubby and did not have any…
-
Sign Up
how do I sign up to this Group please? xxx
-
Housing pip benefits
My son lost his dla and I lost all benefits and because I wasn't a carer I lost my hb council tax ect and put on uc now I've won my son's pip they didn't put me on income support and now have council on my back saying overpayment lha sending bailiffs I am all ready paying housing rent arrears over 1.000 and council billed…
-
Peto institute in hingary
wondered if anybody could tell me cost, length of time there and if u return
-
5 year old with sensory proccessing dissorder
Hiya my 5 year old as spd she as severe anxiety which makes it very difficult for him to sleep have known him to have an hr sleep he doesnt feel safe when hes asleep he also as speeech delay he as saw an occopational thearpy and adviced he needs a safe place we have tried a safety sleeper which is medical equipment can use…
-
Finding things for my daughter to do
Hello mums and dads. I'm finding as a separated dad of a 13 year old daughter with Cp. ...it's getting harder and harder to find things to do as she is a young lady now and don't really want her dad about but finding it harder to do things that our different than her sitting around on her ipad... My friends will never…
