Parents, carers and disabled parents
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Caring for daughter

megglesmeggles Member Posts: 1 Listener
hi I'm meggles, my daughter is living with 3 inter related health conditions which means her activity is very limited. i love her so much -im devastated when shes having a pain spike and i can't help her

Replies

  • JennysDadJennysDad Member Posts: 2,308 Pioneering
    Hello @meggies and welcome to the community. It is very good to have you with us.
    Al;though it is 25 years or so since my daughter passed away - her disabilities were extensive and complex - I will never ever forget the pain and frustration of not being able to comfort her. It feels like a failure, it feels unjust, it feels just indescribably bad.
    You love your daughter, and that makes your pain worse, but it also means you are giving here everything you can (even though at times you may doubt yourself) and doing your very best. None of us can ask for more.
    You're safe here, and among friends. Don't feel shy of telling us more or of asking any questions which may occur to you. The more we get to know each other, the easier it will be to find ways to help and support you.
    I look forward very much to hearing more about you and about your daughter, and look forward to getting to know you.
    Warmest best wishes,
    Richard
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @meggles, and welcome to the community! I've moved your post into our parents and carers category- you may like to take a look at the existing discussions in there to find others in similar circumstances. If we can be of any assistance, just let us know!
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