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No respect
They have no respect for this. They have no idea how it affects you. They could have treated me years and years ago. Still no acknowledgement, nothing.
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I'm having trouble managing pain caused by crushed spinal cord
Hi, I'm new on here. I have a crushed spinal cord and like you I've had some strong pain meds stopped. The first to go was nerve block injections and like you I cried when they told me over the phone, then I asked for a repeat of morphine and was told no you're not allowed it anymore. It'm having a lot of trouble coping,…
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Pelvic pain
These doctors really let me down. There must be some connection between gingivitis and pain here. I don't really understand. Anyone study this? There is literally no other reason I should have pain here. I mean, do I pass this information onto the WHO? I have told the doctors about this connection. I ruled out everything…
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CBD oil?
Has anyone tried this for severe back and leg pain caused by a trapped nerve? My GP has tried all the pain medication he has available but non seem to work, therefore desperate to get some relief!.
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Furious
Discussed with psychologist and she put old **** on my report. All this made up ****: schizoid personality disorder, Asperger's, and now somataform disorder. I was very angry. They undermine everything. Everything.
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Really tough
I feel this 'pelvic pain' is related to gingivitis. The pain is distinct and came on after a few years of it. There is a study linking this with rats. I know what I'm feeling and there is no way it's stress related. :( They have no respect for the impact this has on someone. There is no excuse. The health service has…
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Depressing
I find all of this incredibly depressing. A horrid way to live. I just find the response from medicine currently not good enough.
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Diverticulitis
hi to the admins sorry I didn't know which category to put this in. Please do move to correct one for me Does anyone suffer from diverticulitis? In February my wife was rushed into hospital after doubling over in pain at home. Ambulance arrived and worked with her for an hour as her body temp reduced a great deal amd…
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Appalling care from A&E
Hi All I’ve been trying to cope with chronic pain for years now but last few months have been the worst. Back, shoulders, both knees and now a tooth extraction that refuses to heal. On Saturday just gone my wife in desperation called 111 and they dispatched an ambulance. After about an hour they managed to convince me to…
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Pain Management with Pharmacologic & Complementary Modalities
With acknowledgement to the American Syringomelia & Chiari Alliance Project, & their recent virtual conference July 2020 Video on pain & its management. https://www.youtube.com/watch?v=KpM48G-p9mI
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Chronic pain
Hi I’ve had pain ever since I can remember and have been officially diagnosed with hypermobility syndrome and fibromyalgia. However after researching in community I feel like my fibro symptoms are so much more intense, longer lasting and worse than a lot of people. Having researched I feel like I may have Hyper mobile EDS…
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Spinal fusion
Hi, I’ve not been on here for a bit but prior to lockdown I had an MRI which showed significant degenerative disc disease at l5-s1. I had a disectomy in 2017 but the back/hip pain is that bad now I can hardly turn over in bed at night. I take pain meds but the only option now open to me is a spinal fusion. I don’t know…
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Stenosis
I've been very I'll had very poor treatment from the NHS. Its been a fight from the start to get treated my hospital failed several guidelines. However, l opted to go to other hospitals but feel total exhausted with it all. 18 mths ago l could stand up. They had reported on my MRI scans there was degeneration of the spine.…
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Strange question floating joints
Hi everyone hope your pain is playing nice today. Strange question I feel as though my bones are not attached to my body, its like the muscles that hurt so much dont attach to anything. It's hard to explain lol. I think it's because there is no strength in my muscles to work them correctly. I feel almost detached.. does…
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Does anyone have any insight into coping methods for muscle cramping and nerve compression?
My condition has not yet been diagnosed. I have a rare issue with my muscles which has lead to cramping, muscle knots, muscle weakness, tension, and compression of my nerves mainly on my left side. In my latest referral I was told it could be one of thousands and as there is no cure for any, they wouldn't know where to…
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Any tips for managing pain?
New member,Fibromyalgia and OA.Drugs not helping pain,more joints worse this year especially my right hand.Every joint hurts,cramps,spasms and swelling.Any tips to help.Im thinking of compression gloves.Already had one knee and hip replacement done and waiting for a wrist op.Cortisone only lasted two months each time.
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Food/sleep/tiered
Hi every one. As I'm new to all this, I'm finding some little things strange.. not every thing is fybro. Cfs or ME...?? Or is it. I've started to see a pattern in so much as when I eat I get really tiered.? Is this normal. Now I do have type two diabetes so always keep an eye on it. My levels are fine so it's not that. I…
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Angina hospital addmission
Hi to all, On Thursday I was on my treadmill for about 10 mins when I started getting chest pain in the middle of my chest and brethlessness and sweating and palpitations So i got off and when the asthma nurse phoned I told her and the doctor phoned me up and asked how I was as my pain was a 7 they said if it gets any…
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So tired..
Laying here after 3 nights with minimal sleep.. all my symptoms flaring and can’t stop crying.. cant even get close to being comfortable so can’t even doze. Yoga breathing isn’t working as I can’t concentrate. My wife is at work and I don’t want to start crying down the phone at her again.. don’t know what to do
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Dizzy/spaced out or meds
Hi I'm back again, hope I'm not posting to much. I've had a meds change from gabapentin to Pregablin. I was on gabapentin and other stuff before diagnosed with fybro.( to help with pain) When I was diagnosed I was put on pregablin and my other stuff. Now I know meds can mess around and cause issues while you get use to…
