Dealing with chronic pain
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Need some answers

squippersquipper Member Posts: 4 Listener
edited August 2020 in Dealing with chronic pain
Hi, I am not sure if I am in the right place here as i have never spoken about my issues. I have been diagnosed with spinal stenosis around L5 and L4 region of my back. This was after suffering from 3 bouts of a herniated discs and then the following MRI scan showed up some arthritis and this was causing stenosis in the lumber region. I have had 2 pain relief injections which were great for about 3 weeks and I was told surgery was an option at first but I have since been told in my case it might not be enough or worth the risks. 
I am still working and trying to lead as fuller life as possible but need some answers. I cannot judge how bad I am or getting. In summary when I get up in the morning I am in pain straight away, I cannot walk downstairs properly (I have to take them 1 at a time until I am "warmed up"). Distance walking varies from day to day, sometimes it's 20 metres and other days it's 200 metres. My legs go numb, I start sweating and my back is really tight and stiff. I have issues with my bodies nether regions (to be aroused is a miracle) but I can still carry out other bodily functions.
I have to squat down to stretch out my back before I can commence walking and even then it is only for a short distance. If I want to go to a supermarket (like a Morrisons) I am lucky if I get half way round before I start holding on to shelves for support. I have had to use a walking stick before, but that doesn't help that much.
I have been to my Doctor and all they did was increase my dosage of Gabepantin to 400mg and give me Codeine to ease the pain. Someone said depression was an issue for them and I agree. Along with the frustration of not being able to stand and cook a fried egg without being in pain. Or even being able to walk in the garden without a stick. It would not be the first time i have been looking at the medication when the pain has been bad, and thought, well you might know the rest. 
I feel like I a disabled but I won't admit defeat until a professional says enough is enough. 
Oh and I have forgot to say when this first happened, well this has been going on for 4 1/2 years now and it is worse now then it was then. 
Thank you for your time in reading this and sorry my tale was so long.

Replies

  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @squipper

    Good Mourning & Welcome.

    I am one of the Community Champion’s here at Scope.

    Unfortunately we are unable to offer “Medical Advice” or “Sexual Advice”

    We can offer you “Help/Support/Advice” 

    Can you ask your “GP” to “Refer” you to a  local “Pain Clinic”

    They will be to offer you some help with your “Pain”

    Please please don’t worry about the long post as that is what we are all here for.

    @steve51



  • janer1967janer1967 Member Posts: 9,210 Disability Gamechanger
    Hi @squipper Welcome to the community great to have you on board and thank you for sharing your store with us.

    Is there anything particular you need answers for it wasn't clear from your post exactly what you are asking apologise if I missed it

    Have a good look round and feel free to join in any discussions, if there is anything we can help with just let us know
  • LouiseHLouiseH Member Posts: 96 Courageous
    Morning @squipper how are you doing today? I'm just wondering if you have any support on a day to day basis?
    Louise :smile:
    Louise Hesketh
    Community Champion
  • squippersquipper Member Posts: 4 Listener
    Hi Louise
    sorry it's a late reply. I have no support on a day to day basis. I am not sure if I even qualify as I still go to work although I do struggle to walk in sometimes. It is about a 200m walk. 
    I do not even know if stenosis or arthritis in the back is a disability as no one will tell straight.
    Regards Kevin
  • squippersquipper Member Posts: 4 Listener
    Hi all,
    Please can I say I am not looking for sympathy I just need to know if anyone has suffered or suffers like I do. On a good day I can walk for 15 minutes before my legs and back tie up in a spasm type ache. On bad days 2-3 minutes walking and I need to rest myself.

    Regards, Kevin
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @squipper

    Yes my “Chronic Pain” is 24/7 - 7 days a week - 365 days a year. 

    We we are all here to “help/support” any new members.

    Please please let me know if you need any help/advice.

    @steve51
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Hi @squipper, how are you getting on today? 
    Community Partner
    Scope

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