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Narcolepsy and Cataplexy -
I have Narcolepsy and Cataplexy, and other conditions. Living in a small town in Worcestershire my Doc only knows me with the condition. I am lucky to be part of a fb group full of Narcoleptics.Anyone is Worcestershire?
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Neck and back pain
Hi my name is gina and was wondering if anyone had any input on my condition For as long as i can remember ive had what i think is a trapped nerve at top of spine and some lower back pain but gradually as the years have gone on ive been getting alot of other worring symptoms Pins and needles on my left side (face arm hand…
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Awaiting results
Well it's been two weeks since my lumbar puncture for possible MS after an MRI finding brain lesions in January. My SSEP tests came back normal but I have received a new neuro telephone appointment at the end of June, so not sure if I will be waiting until then to find out the results or if they might send out something…
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So much pain!!
Hi, I’ll start by saying I’ve been diagnosed with gallstones three weeks ago after being rushed to the ER thinking I was having a heart attack. Having my GB removed in two weeks. As of three days ago I’ve been suffering from a dull throb in the top middle of my stomach just under my breast bone. I feel full all the time.…
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continued skin infection
Unfortunately continued horrid experience with dermatologist. Was dismissed and told to leave. Complained and just incredibly shaken up by the experience. I have no idea what this thing is. What I do know is for some reason, depending on the batch it seems to partially respond to arnica cooling gel. It's always been my…
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No one has given me answers!
I have been dealing with this for about 3 years now and I can't take it anymore. SYMPTOMS: painful throat irritation, making it hard to swallow and talk, feels dry and very irritated. Made MUCH worse if I have even one cigarette or any tobacco product like chew. I also seem to have a white film on my tongue if I don't…
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Rare skin disorder - palmer erythma, and maybe scleroderma. Anyone else?
Hi I have recently been diagnosed with palmer erythema a rare skin disorder I am hoping that there is some one out there with the same rare skin disorder who I can chat with. Also most probably might have scleroderma given my all my other symptoms dry eyes and mouth have raynaud's phenomenon oesophageal dysmotility rashes…
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Cubital Tunnel Syndrome experienced advice needed!
Hello! I have done my own research, since I have waited for my Orthopedics / hand specialist appointment since September 2019, and well.. No idea how long it will still take before I get my letter and time. I found out that the symptoms I've had with my both hands fit the symptoms in Cubital tunnel syndrome 100%. I already…
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Arterio Venous Malformation and deafness
Hello I'm a very new member hoping this is where I should be. In the 1990s i was diagnosed with a congenital brain AVM, found when having a hearing test in the mid 1990s.. In 2013 I suffered the first of seizures which were diagnosed as secondary to the AVM. Any alteration in my meds changes my moods, causes panic attacks…
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Gastroparesis
I thought I had got IBS but it has been getting worse. I have just been diagnosed with gastroparesis and am getting used to a new life using catheters and an ems machine which I am wired to most of the day. Has anyone else got gastroparesis?
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How do I stop severe hunger caused by fibromyalgia
Hi. I was just wondering if anyone had any advice on how to stop feeling really hungry all the time if you have fibromyalgia. I am always hungry and often feel like I am going to be sick if I don't eat. I often feel like I haven't eaten for ages even if it is less than an hour since I did eat. It is driving me mad!
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My wife has been blacking out whilst fitting, causing bruising. Has this happened to anyone else?
Recently my wife has been blacking out whilst fitting. This is causing a lot of bruises, her meds have been increased, has this happened to anyone else.
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Still a medical mystery after being in chronic debilitating pain for 2 years
Hi, I'm Elena, I'm 21, a neuroscientist and I've been living with chronic pain for 2 years. Well technically I've had scoliosis for 10+ years but the pain has been severe and disabling for 2. When I was diagnosed with scoliosis at age 11, it was only 14 degrees, so only mild. I followed physiotherapy, did my exercises and…
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Targeted screening carotid duplex evaluation advised
Hiya everyone ? I was wondering if anyone has had this test done before if so what do they do any advice would be great thanks ?
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I am being reffred to a Neurological Consultant
Hi to all, I am being reffered to a neurological consultant as as I now have weakness in both hands no grip and feel very weak and also weakness in my leg too still and balance problems also and when I went to fill the hot water bottle for my back and joints I overfilled it which ended up with me having a scalded hand so I…
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GI Symptoms, B12 Deficiency, Muscle Spasms
Hi there, I think I'm here for some moral support and advice since I've been living with something undiagnosed for a year now and it has recently got worse. I am female and 23 years old. A year ago I suddenly got very bad diarrhoea and have had it every day since (although not as severe as when it started). The thing that…
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Hi, my name is charlietea. Undiagnosed 8.5 years
Hello, it has been 8.5 years of battling an undiagnosed neurological condition. What an eye opening, disappointing, life altering, absolutely fantastic time that I am sure many can relate to. My story all started in 2012 when I was 25, presenting as sudden onset lumber pain, quickly followed by leg pain and weakness, a…
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Look for help, can you suggest who I can turn too and help my case?
Firstly, my name is Chloe, I am a 22-year-old female. I have been left feeling extremely disappointed, frustrated and upset that I am currently in a situation where I have received numerous consultations over the past two years with various specialists, and I have been in excruciating pain throughout, and no one seems to…
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Could anyone shed some light on my initial MRI feedback?
I went for brain, and full spinal mris 3 weeks ago and received a letter yesterday with a brief overview of results to be gone through fully at my next neuro appointment in 4 weeks. I dont really understand the information and wondered if anyone could shed more light on it? The main section i dont fully understand is the…
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Hi, I'm 2LoobyLou and I have Cauda Equina Syndrome
Hello, I'm Jo 12 months ago I had emergency spinal surgery for decompression (I thought I had a bad back), I wasn't expecting surgery! I was then taken to theatre again the next morning as I had no feeling in my right foot. Long story short, I have Cauda Equina Syndrome and have no feeling below either knee, have lost…
