9 months undiagnosed and feel so lost
Hi all, decided to start joining some forums for support as i feel so lost. It's been a long nine months with no end in sight.
I am an otherwise healthy 28 year old, used to be very active and for the past nine months I have been suffering with a myriad of "non specific" symptoms. Prior to this I had never been to a hospital before or having needed to see a medial practitioner as i was always the picture of health. Before i became ill I was heavy lifting helping build a kitchen and had also suffered from severe emotional trauma a couple of weeks before.
It began while i was out and was kneeling to look at something and upon rising back up i had a sudden onset of dizziness. Assuming this was because i stood up too quickly i dismissed it. Time went on and the dizziness became worse and produced new symptoms:
-strange sensations on my skin such as pins and needles
-shortness of breath
-pressure in my head
-neck stiffness where my neck slouched forward and found it hard to keep it upright.
-mild pain that travelled to my upper back and down my arms
- felt like i was going to faint.
I was taken to hospital where they took an ecg, chest X-Ray and blood tests and was then given the all clear.
My symptoms did not subside so i began visiting my general practitioner who took bloods (calcium, ESR, CRP, Vitamin D, cholesterol, B12, Folate, Thyroid, Lymes serology, Celiacs), an ECG, 24 hour ECG, Heart stress test, Urine samples, took my blood pressure sitting and standing, listened to my heart and lungs, balance test, reflexes, touching my nose to their finger and following their finger, looking in my ears. All of which came back normal with the exception of Vitamin D where i was put on a course of 50,000 units a week for six weeks and 1,000 units daily thereafter.
A few months on these symptoms got worse and i was experiencing further new symptoms:
- palpitations where it felt like a pause and then a sudden thump (lasting a couple of seconds), this could also be felt in my throat.
- Digestive problems. Heart burn, sometimes find i have a lot of air and stool is majority of the time softer than normal.
- Facial pain that would come and go.
-Sheer exhaustion mentally and physically.
-Brain fog where i feel like i cant concentrate, remember things or think clearly.
-Vision problems, when i exert myself I can on describe it as if you were to look into a kaleidoscope, minus the colours. It feels like things are moving when they are not.
-My body cannot regulate temperature all the time, sometimes i am sweating when it is not warm and at other times im shaking as i feel cold when it isnt that cold.
-Mild headaches that can be felt sometimes frontal and sometimes on the top, changing sides.
-I have become very dissociated with myself and have become quite anxious as no one can tell me what is wrong.
- tinnitus/pulsatile tinnitus and ear fullness.
- shaking/tremors in my right leg.
With the general practitioner unable to pin point the cause i was then referred to a neurologist who carried out an MRI of my brain and full spine. He stated that everything was normal except a slightly enlarged pituitary gland in which i was told this could be down to at which stage of the menstrual cycle i was on and a small area of non specific white matter where i was told it was within normal parameters and that he was not concerned. He prescribed me duloxitine which i ultimately had to stop taking as the side effects were too much for me. He offered no further assistance and told me to follow up with my general practitioner.
I attended an eye exam and the hearing clinic where i was told my eyes are good. I decided to then go to an osteopath who explained she could feel evidence of a whiplash injury in my neck. I stopped going as i wasn't getting any better. I then tried an acupuncturist who had the same findings as the osteopath. I discontinued my visits here as there was no improvement. I have been visiting a chiropractor who has the same findings as above with no improvement thus far.
Found a lot of my symptoms are very similar to upper cervical instability but have no idea how to get that diagnosed. All the doctors at my surgery are pretty much under the impression this is all in my head and im just stressed.
i just want my oId self and life back. Every day is just a struggle now. If anyone has experienced anything similar or can guide me somewhere for help it would be extremely appreciated. x