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Hi, my name is LoraKae! I've just been diagnosed with Myelomalacia. Anyone else?
Hello, I’ve just been diagnosed with Myelomalacia. I’ve had two ACDF surgeries. The most recent Dec 9, 2021. This started Aug 24,2020 with my legs giving out, my whole body going totally numb. I could hardly walk. I couldn’t control my limbs. Electric shock feeling from the base of my skull to my toes. The Dec 9th surgery helped with some of that, but now they say I have Myelomalacia, but has not really went into details about what it is exactly. My hands and arms are still totally numb and legs are extremely weak. I’m having extreme tingling in my neck shoulders and throat, when it occurs it feels like it’s seizing up or paralyzing me for a few seconds. I’m also having shortness of breath. The Neurologist doesn’t think it has anything to do with the Myelomalacia. I’m afraid it does. Does anyone else have any of this. Is this a serious problem? I go back to my neurologist tomor and am going to demand more information.