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How do you explain chronic illness to friends?
Hi, my names Alice I'm 21, I was diagnosed with fibromialgia last year and under investigation for other syndromes. I was wondering if anyone had any good experiences of explaining their invisible illness when they first meet someone. I have been trying to not bring it up unless it's relevant to what we're talking about or…
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ADHD and Anxiety advice needed
Hello! I'm new and looking for some advice. I have ADHD and severe anxiety and I've always struggled going out and about, shopping, being in public spaces and day to day tasks, my anxiety makes it difficult being around people. I never go out and about on my own as it fills me with too much stress and worry alongside my…
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Severe chronic eye pain and visual problems worsening no one can diagnose
I have been dealing with an undiagnosed illness for three years now that has became so severe I am beyond desperate for help and my life back. I have wrote before on other sites but it was nothing in comparison I thought it was bad then I would love to instantly be that well. I have been to the university of Kentucky and…
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What's the recovery time after a lesion removal?
I am on a waiting list for surgery to correct Left C5/6 and C6/7 foraminal Stenosis requiring facetectomy for root decompression. I have also got a C6 Introdural Lesion/Schwannoma which requires a micrsurgical Excision. I know this will be a tricky operation to perform, i was wondering whether anyone has had a similar…
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Anyone else suffer with complex PTSD, depression and anxiety and have non epileptic attack disorder
Hey, just thought i'd ask, i know there are people who go through the mill with various mental illnesses i got my diagnosis around five years ago after a lifetime of feeling ropey, i was abused as a young child and sold for sex for groups of men, the horrors of which still live with me, as a young man growing up i always…
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Cervical decompression surgery
I have had num hands, arms and lower legs for 2y last October I had C3-C5 decompression - removal of ostephytes. has any one else had this. I have no improvement and getting frustrated! No pain but no feeling or fine control of my hands so can’t work! Help!!!
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Looking for some advice on ME/Chronic fatigue. Do I have it?
Hi, I am a little apprehensive to talk about something like this, as I am not really someone who "talks" but I am really struggling at the moment and I was wondering if anyone could advise if my symptoms are in line with ME and if so how I can get a diagnosis? I have always been a very driven person and at times in the…
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Shortness of breath and ribcage pain
I’ve been experiencing some difficult symptoms, and doctors haven’t been able to diagnose me with a condition yet. I was hoping to reach out to see if anyone has the same issues. I get shortness of breath and pain in my ribs. It gets worse with cold weather or when I get angry. Breathing in general is laboured- every 5…
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Hi, my name is Rhiannon I'm 23 and Have a condition called Functional neurological disorder
Anyone else struggle with FND?
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New here - at the end of my rope
I’m a 50 yo female that has suffered from chronic exhaustion for years and despite discussing it with my physicians, no one will diagnose anything or give me help. It’s worsened over the years and I am now having memory and concentration issues. I am asthmatic and COPD stage 2 but it’s controlled. I’ve had depression and…
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Anybody with MS and Type one diabetes?
Anybody with MS and Type one diabetes? If so how do you cope?
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Anyone else out there with spinal stenosis, or have to deal with similar problems?
Hi. I have just signed up, so this is my first time on here. Hello everyone, I hope you are all well. I suffer from spinal stenosis and wondered if anyone else out there have the same, or have to deal with similar problems? I would like to hear from you if you do. Regards to all out there.
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Undiagnosed and frustrated
I’m a 29 year old woman, and I’m a marathon runner/triathlete (when I feel up to it, lately...) My symptoms started about 8 or so years ago. It began with severe fatigue, unexplained fevers, an aching pain in some of my joints (especially my low back, hips, and hands) and a recurring rash that mostly centered around my…
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What to expect next ?
Hi , i have been diagnosed with diabetic neuropathy sensory ,motor ,axonal peripheral neuropathy im in extreme pain with burning prickling and stinging im on a fair amount of meds but dont know what to expect next or any way of making life a bit more bearable due to pain and lack of sleep .jack
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Devic`s disease
Anyone been diagnosed with this? It is also called NMO........demylination on spine and optic nerves are usual It is rare.
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Extreme constant fatigue, body pain but no cause found?
Hello, new member here. I’m a male in my twenties. I’ve been experiencing extreme fatigue and tiredness for about 8 years now. I also yawn all the time and have the desire to just close my eyes and sleep all the time but yet it doesn’t feel like I’m sleep deprived. I do have to take naps throughout the day though. The…
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Arrogant doctors. Impossible to correct misunderstandings and blunders.
I feel so defeated. I had written an email yesterday to a clinic where a GP that I've seen a few times work. I explained that there were some misunderstandings in the referral he had written for an imaging scan and that I would appreciate if it got corrected. I wrote further that I would pay for the time spent on it and…
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I have no idea XD
Been ill for a long time. Pain, mostly. Spinal, chest, joints, all difficult to deal with. It has been blamed on a lot of things, drinking (I don't drink...at all, never have), bad posture, Psychosomatic pain... Today, my blood test came back showing elevated CRP. Not high high, but borderline high. I'm not sure what this…
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Corticosteriods /'Synacthen'
Hi there, im hoping i can find others who i can relate to. Im a 37 year old male. When i was very young i suffered from acute asthma. From the ages of 4 - 6 i was medicated with weekly injections of 'Synacthen' and then inhaled steriods there after. This would cause a state of too much cortisol. I believe ive suffered all…
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Just diagnosed with FND
Hi, my name's Jason, I've just gone through a year of testing, MRI's showing some white matter brain damage, and a shed load of tests including lumbar puncture. Prior to the results of the lumbar puncture, because I've been off work on long term sick, I was diagnosed with MS by an occupational health doctor, just by…
