-
Hi, my name is yaboiollie! Recently diagnosed with EDS, but it's getting worse.
I got diagnosed with EDS a couple months ago (but i’ve known for a couple of years), and recently it’s been getting worse, so i thought i’d come on here for support and to read others’ stories.
-
Hi, my name is Arthur243!
Was reading about how long it takes after assessment for pip, I had my telephone assessment last Wednesday so I know o have to play the waiting game I actually was never given an appointment my phone rang with a private number and the lady who I made add was lovely introduced herself she did say she could call the next day…
-
Hi my name is GorgieH
How is everyone
-
Hi, my name is judrop70!
Hi
-
Hi, my name is chase!
Just had my review of pip over the phone. 2hrs 30 minutes. It was intense asking how many steps I take and the minutes and seconds taken.im exhausted and very stressed. Along
-
Hi, my name is Ajay60!
hi , we recently got a diagnosis of a very very very rare disorder for my 16 month old grandson. Its very hard for us all to compute . I’m finding it all rather overwhelming. I have three other granddaughters , four step grandchildren and two great grandchildren also .
-
Hi, my name is mariel59! Anyone had a similar experience with CIDP?
Hi firstly my heart goes out to everyone dealing with CIDP. I was diagnosed in March and have since been having IVMP once a month. I was lucky enough to be referred to uclh and they are amazin. My symptoms started after I had covid . 6 weeks after covid I had double pneumonia and a clot in my lung. Then 2 months after the…
-
Hi, my name is Hope71!
-
Hi, my name is o0_MoonCat_0o!
Hello folks :) OK so I'm not blind. But I have a good friend who I talk to all the time in Australia who is, we try to play text games online together and well yeah. Anyway I really wanted to watch films with him at the same time so Audio described. I'm astonished at how little this is supported. In particular, I really,…
-
Hi, my name is TOsborne!
Hi Thanks for letting me join. I have a 13year old who is on pathway for diagnosis ADHD/ASD I look forward to hearing any comments on advice for what support measures are in place for some to make our journey a little easier
-
Hi, my name is happyme86!
Hi I applied for pip based on my health I suffer with PTSD , anxiety, and depression I work 10 hours a week and struggle and have days we're my daughter who is 17 helps me do daily chores and helps cook and with my younger child like dose the school run for me sometimes and the lady from capita doing the report has rang me…
-
Hi, my name is Dekm!
Can I get a car on enhanced pip
-
Hi, my name is TAFF123!
Hi my name is steve
-
Hi, my name is Daisydoo93!
hi everyone I’m new to all this and it’s my first time claiming pip I did my claim on the 3rd July 2024 Had my assment and I phoned today to see if a decision was made to be told I scored 0 points on everything. Really upset about this I’m awaiting my letter to do a MR I believe they haven’t listened to anything I have…
-
Hi, my name is annaloui!
hello, I contacted carers allowance to cancel as my expenses have dropped and I am now over the allowance for what I’m allowed to earn. I am in receipt of universal credit so didn’t benefit from it financially anyway. When I rang universal credit they said it’s still showing I’m in receipt of CA .. I rang carers allowance…
-
Hi, my name is samaiden!
i joined to ask a question in the accessible day out
-
Hi, my name is danielfaze!
Hey everyone, I'm Faze and I'm glad to be here! I'm a bit of a scatterbrain, but that's because I have ADHD! It can be tough to keep up with my thoughts sometimes, but I'm working on it. I'm here to connect with others who understand what it's like to have a brain that never stops racing. I'm looking forward to sharing my…
-
Hi, my name is N01Pickle!
I am a pensioner on pip. Full mobility. I live with my son, but my fiancé is moving in. Who do I tell. I currently pay a little of rent and council tax. But expect to pay all in full. He is a pensioner but still works . Thanks, I intend to advise housing association tomorrow, but had a letter from council to update my…
-
Hi, my name is mariama28!
Hello everybody hope you are good.i have recently made an application for a change of circumstances. I have arthritis in my hips and knee and back.i am in receipt of enhanced mobility. However I have just received a letter saying I have a telephone assessment on 30th July.i have been to 5 tribunals since 2012.i am very…
-
Hi, my name is lupuslady29!
Hi my name is jackie I have systemic lupus but also spondylosis in my neck thoracic region and lumber spine also osteoporosis looking for answers to a few questions i am having major sleep problems due to pain in most of my spine and hips at night while in bed not finding sitting too comfy either and can only manage short…
