Hi, my name is mariel59! Anyone had a similar experience with CIDP?

mariel59
mariel59 Online Community Member Posts: 1 Listener
edited July 2024 in Start here and say hello!

Hi firstly my heart goes out to everyone dealing with CIDP. I was diagnosed in March and have since been having IVMP once a month. I was lucky enough to be referred to uclh and they are amazin.

My symptoms started after I had covid . 6 weeks after covid I had double pneumonia and a clot in my lung. Then 2 months after the cidp started.

Anyone else had similar?

Comments

  • Rosie_Scope
    Rosie_Scope Posts: 5,822 Scope Online Community Coordinator

    Hello @mariel59, welcome to the community. Thanks for sharing your story, I'm glad UCLH are treating you well 😊

    I haven't got the same condition myself, but I just wanted to pop in to say hello and welcome you to the community. I hope you'll find some friendship and support here. If you have any questions about anything please don't be afraid to ask.