Hi, my name is mariel59! Anyone had a similar experience with CIDP?

mariel59
mariel59 Online Community Member Posts: 1 Listener
edited July 2024 in Start here and say hello!

Hi firstly my heart goes out to everyone dealing with CIDP. I was diagnosed in March and have since been having IVMP once a month. I was lucky enough to be referred to uclh and they are amazin.

My symptoms started after I had covid . 6 weeks after covid I had double pneumonia and a clot in my lung. Then 2 months after the cidp started.

Anyone else had similar?

Comments

  • Rosie_Scope
    Rosie_Scope Posts: 8,211 Scope Online Community Coordinator

    Hello @mariel59, welcome to the community. Thanks for sharing your story, I'm glad UCLH are treating you well 😊

    I haven't got the same condition myself, but I just wanted to pop in to say hello and welcome you to the community. I hope you'll find some friendship and support here. If you have any questions about anything please don't be afraid to ask.

  • Magz123
    Magz123 Online Community Member Posts: 2 Listener

    Hi mariel59,

    I’ve also been diagnosed with CIDP, however I have had different symptoms. I’m currently receiving IVMP and wanted to ask if you had any side affects and whether this treatment has helped you at all. If so, how long did you have to wait for any improvement?


    I’ve been on it since July this year and haven’t noticed any improvement, I actually got worse.

Categories