Cerebral palsy

hey everyone! I’ve not posted in a long time. hope everyone is well. I can not complain about my life at all. My family and friends are so supportive and say I can achieve anything that I want… it’s a nice little support group in that we are all here for one another and I love that! Sometimes I find it difficult to…

@SaraC_Scope was on BBC Radio Wales Breakfast Show this morning, to talk about Disability Pride Month, what it means to her and her lived experiences. After you’ve had a listen, I think we can all clearly agree: she was absolutely fantastic and really did herself and Scope proud. You can tell the presenter, Dot Davies,…

The Cerebral Palsy Network was invited to a World Café event at the University of Sheffield. The project looked at how to improve access to cervical screening for disabled people. It focused on the barriers that disabled women and other disabled people face. I was proud to represent the Network. I listened to people with…

Hi everyone, I'm new here and based in London. I have [your disability if you want to share, e.g., cerebral palsy / mobility issues / etc.], and I've found it really hard to meet people for friendship or dating. Mainstream apps feel tricky because of judgments or accessibility stuff. Has anyone had success with online…

It is Disability Pride Month. Disability Pride Month is about recognising disabled people as a community with our own history, identity and rights. It is not about pretending disability is always easy or asking people to celebrate pain or exclusion. It is about rejecting shame, challenging ableism, and making sure disabled…

A man has run the width of England in one go, inspired by his close relationship with his younger brother who lives with cerebral palsy. Charlie Isaac, 32, who grew up near Stroud, Gloucestershire, completed the 70‑mile (115km) challenge along Hadrian's Wall from Carlisle to Newcastle, raising £5,900 for Wiltshire's…

We’ve been contacted by a postgraduate researcher seeking to hear from people with cerebral palsy who have studied at university. If this is you, or someone you know (in the UK or US), they would love to hear about your experiences. This will help shape their dissertation. Taking part is voluntary, and you can share as…

is there anyone else here who has cerebral palsy and suffers with dystonia I’ve been having bad flare ups where I’m locked in for days recently and it’s painful how do you deal with it?

"I didn't even have a drink or a urine bottle." In this powerful episode, Richard Luke, Cerebral Palsy and Membership Programme Lead at Scope, shares his experience of living with quadriplegic cerebral palsy after being diagnosed at the age of 3 following a negligent birth. It was the shocking reality of a hospital stay in…

Our next in-person social is the Summer Social in Sheffield on Saturday 4th July. Bowling followed by food. 3:30 pm start. Changing Places facility available. Contribution towards travel costs for anyone outside a 25-mile radius. Last chance to register! Full info/sign up:

As it is Pride Month, I wanted to highlight a trailblazer in the cerebral palsy community. I have known about Andrew Gurza since my second year of university. I was writing an essay about sexuality and disability. That is when I found #DisabledPeopleAreHot. Gurza created it. I have been a fan ever since. I have mentioned…

Got 10 minutes to help shape the future? We know completing surveys isn't at the top of your to-do list, but a few minutes of your time can make a real difference. Every response helps us understand what's working, what could be improved, and where we should focus our efforts next. The more people who take part, the…

Hi, my son (20)has a left sided hemiplegia since birth. he has his struggles like most people but he has a positive outlook on life . He has Pip currently daily living enhance rate and mobility standard rate . He used to have enhanced mobility but that has been taken away .I have been helping him to get back the enhanced…

Source from BBC News John Ayres A student with cerebral palsy who was told she would never walk or talk is about to graduate in criminology and has recently completed a half marathon. Issy Hart, 22, from Chipping Norton in Oxfordshire is studying at the University of Plymouth and recently completed the city's half…

I recently had the pleasure of speaking with Welsh comedian Rhys Thorne, whose fresh voice, quick wit and lived experience bring something truly special to the comedy scene. Our conversation explored the intersections of cerebral palsy, LGBTQ+ identity, creativity, and personal resilience. And how humour becomes a powerful…

From BBC News A teenager with cerebral palsy says she is "nervous and scared" but "excited" to be taking on a charity cycling challenge from Land's End to John O'Groats. Chloe Marriage, 17, from Newbury, sets off on her journey on 26 July and is expected to complete the 1,000-plus mile ride on 12 August. Her dad Tom said…

Hi everyone my name is Laura and I have cerebral palsy. I have a 2 year old son and am facing the daily challenges being a disabled parent brings. Wondering if anyone else is in the same boat? X

Visiting the Wellcome Collection in London on behalf of Scope was a real privilege. I was there to support Dr Vicky Long with the important task of categorising years’ worth of Scope documents for a potential exhibition called Rights of the Disabled Child. It was one of those moments where history, activism, disability…

It is Mental Health Awareness Week. So I wanted to talk about the emotional impact of living with cerebral palsy. Living with cerebral palsy can affect much more than movement. For some adults, it can also have an impact on emotional well-being, confidence, relationships, work, independence and social life. This does not…

We are inviting young people aged 12 to 21 years old with hemiplegic cerebral palsy to take part in a University of Leeds research project. This involves simple hand and arm activities in a friendly and supportive environment. The activities are designed to be comfortable, enjoyable, and easy to complete. We also offer an…

Exoskeletons for people with cerebral palsy are now a reality – but there’s still much to figure out Article by Stephen Khan, Editor-in-Chief of The Conversation UK Cerebral palsy is the most common disability that starts in childhood, affecting about 50 million people worldwide. Cerebral palsy can impact a person’s…

Where it began. In the summer of 2024 celebrated 25 years of pride in Wales. The first Cardiff Mardi Gras was held in 1999, after South Wales Police noted a surge in hate crimes towards the LGBTQ+ community. Working with Safer Cardiff, the first ever Cardiff Mardi Gras was held and attended by 5-6000 people. With the…

Dr Lucy Reynolds was born with cerebral palsy and says the biggest barriers she’s encountered are attitudinal. Writing for Business Cloud, she says while the key drivers of successful entrepreneurship are often cited as creativity, innovation, persistence and courage, lived experience is something that remains…

The closing date for this is 26th June 2026.

Hi, I would just like to post a discussion on here to address the issue that I have with one of the annoying TV morning shows on TV Jeremy Vine on channel 5. I was watching it yesterday on YouTube and they were talking about benefit cheats now I don't know about you but it really hacks me off when people like that panelist…

Hello, My Husband (38) with CP, has had a femoral/tibial derotation osteotomy. He was completely independent before (no walking aids). 6 months post surgery he is walking with elbow crutches & has reached a plateau in his rehab, and he's becoming frustrated with not being back to his baseline mobility yet (although we were…

Lily Blackburn was recognised on BBC’s The One Show after raising more than £75,000 for Haven House Children’s Hospice through a series of inspiring fundraising challenges. As part of the programme’s One Big Thank You series, the 13-year-old received a surprise appearance from former One Direction star Zayn Malik in…

A researcher from Cardiff University is looking for parents to share their experiences. The study is about Kinesio taping used on the upper limbs (arms/hands) of children with cerebral palsy. The researcher wants to understand how this treatment is used and how it may affect children’s daily activities and play. Who can…