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PMLD - what would you want from a church?
Hello, I am new here, just a little background info on myself. I am a 28 year old living with a life limiting neuromuscular disorder and complex medical needs. I live with my husband who also has severe physical disabilities (Duchenne Muscular Dystrophy) We are supported to live an independent life by a fantastic team of…
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3 year old daughter with suspected high functioning Autism (Asperger's)
We have a 3 year old daughter with suspected high functioning Autism (Asperger's) that we have been trying to get her assessed from when she was 2 and have been declined each time through NHS. We also suspect my husband is Asperger's too although remains undiagnosed and definitely shows 'typical' signs and characteristics…
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Aspergers and education
Hi everyone - I have a wonderful son aged 9 who has been diagnosed with aspergers. His symptoms are mild but as a parent I find myself losing a lot of sleep through worringing. I'm very concerned because my son will be starting secondary school in 18 months but his writing and spellings is poor and I'm worried it is going…
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Jumping
Hi, my son has autism and although it is very mild, he does do a lot of jumping and rather than walking,he prefers to skip. I have suggested that he saves his jumps for home but notice that he is jumping more and more. My son will be going to secondary school in 18 months. What should I do 're his jumping? Am I doing more…
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Setting up a non profit for mobile barbers and hairdressers, would this help anyone?
I have 2 boys 4,5 with ASD. When I want my boys to have a nice haircut (better what I give) I take them to the local barber and its always difficult. Do you think this is a good idea: I am a Web Developer and I'm currently building a website that allows Barbers and Hairdressers to come to your house. The website is…
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My daughter has autism and has difficulty communicating
Hello, I'm a mother of 3 beautiful girls, 21yr, 2yr an 9mth. My 2 yr old is autistic and finds things frustrating as she isn't talking an has difficulty communicating. She has a beautiful nature and is content in her own world. Looking forward to chatting with the community
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autistic grand daughter
Hi my name is allyk7x and i have a 3yr old autistic grand daughter. I am looking for advice on meltdowns, toilet training and if weight blankets are of any use. We sre a family in utter chaos at the moment as all traits are coming at once, my grand daughter has also started taking seizures. I would be so grateful for any…
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sunshine00 my sons just been diagnosed with autism
Hi I'm just wondering. if any one with new diagnosis.. could help me .. understand.. everything that happens .. he has a district nurse . He also has had a lady he goes to thur sure start . For sensory play .. he is verbal but limited .. I've had quite a few visits with a few other ladys .. an they say it's for plan in…
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Improving communication
hi my 4 year old grandson has cerebral palsy and severe learning disabilities. I am just wondering how we can improve our communication skills with him. I am not sure what he understands he points to things but we never know if he is in pain or if he is disturbed by something
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Recently diagnosed with Autism
I'm 38 years old and have recently diagnosed with autism, it explains why I've never fit in and like to hear from other people who have autism as I'm really lonely
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My 20 year old son has mild Autism - how can i help him build friendships?
Hi my my 20 year old has mild autism and finds it hard to socialise with people his own age , what can I do to encourage a friendships?
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son has ASD ADHD and learning difficulties
My son was dignoise with asd adhd and general leaning difficulties and delay memory feels even getting results still wait for ever for disability team to see us
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Hemiplegia and associated mild learning disabilities
Hi all. I have a 23 year old son with hemiplegia and associated mild learning disabilities. Hoping to join in with chats etc.
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Son diagnosed age 21
Hi, I am mum to a 25 year old daughter who has digeorge syndrome (heart defect, arthritis and thyroid problems etc) and a 21 year old son who has just been diagnosed with autism. My son has struggled with anxiety and depression since leaving school and had a very unhappy and lonely 3 years at university. He seems to have…
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My son has just been diagnosed with autism
Hi I am a mum of 3 beauties. My eldest son 8 is in the process of being diagnosed with autism. Any advice will be greatly appreciated. Some days i am at my witts end and would love to chat to other parents going through the same. xx
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Autism and behaviour help
Hi I'm a single parent of 2 teenage girls. 15 & 13 yrs. My eldest has learning difficulties as above also has dyscalculia, looking to get a diagnosal of aspbergers / autism. I'm looking for help with behaviour problems in the home with family members. I suffer myself with mental health problems so it's so difficult most of…
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I think I have experienced a textbook case of disability discrimination in the workplace
So I used to work for a charity locally. I was a paid employee I was open and honest with my employer. The IT manager at the time had worked with me on voluntary projects and so he knew I was very capable of the role of IT Assistant even though I had been unemployed for years. I settled into the role and we carshared as he…
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ASD Assessment - 3 year wait?!
Hello, I had been referred by my GP for a “ASD” assessment. I filled out a very long booklet and provided childhood evidence and supporting letters, I received a letter back saying that I have been put forward for an assessment to help with a diagnosis, however it’s a 3 year wait. after calling for more information on the…
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Daughter with severe learning disablities
I’m a full time carer for my almost 28 yr old daughter who has severe learning disabilities, epilepsy, autistic traits and challenging behaviour...aye life is good lol ? She does have a sweet side but can turn into a she devil at the flick of a switch. Just found the site and wanted to say hi ?- Shaz x
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NT? outside looking in
Hello everyone, I'm studying with the ACER at University of Birmingham and work with autistic adults at a residential home. I'm hyper aware that no matter how much I read about and work with autistics I'll always be a NT outside looking in. I am also extremely aware that NDs are often used as information sources for NTs…
