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Cerebral palsy: The Movement Centre provides free care
Archie, from Market Drayton in Shropshire, has cerebral palsy and is now being treated at The Movement Centre in Oswestry. Where previously families would have had to pay £2,000, the charity is now in a position to provide free care. Cerebral palsy: The Movement Centre provides free care - BBC News
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“People need educating - my dream is to stop people with cerebral palsy being spoken down to."
“People need educating - my dream is to stop people with cerebral palsy being spoken down to."Beautiful drag queen and Drag Race UK contestant Elektra Fence was recently invited to speak to the All Party Parliamentary Group (APPG) on Cerebral Palsy. Elektra's parents, Ann and Ian Riley, both have Cerebral Palsy and…
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CP Network Meeting Thursday 17th November 2022 - 6pm-7pm
Hello All - I hope you are well. I just wanted to check in and see how you are all doing. Our next meeting is on: Thursday 17th November 6pm-7pm - if you have any topics you want to raise, please put them here and Richard and I will schedule time. Also just to remind you all the CP Survey will be closing on 1st November…
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Mild CP and Ageing
Hi Everyone, I am 44 and had my diagnosis of Hemiplegic CP at the age of 5. I had tendon lengthening op followed by at least 11 years of physio. Recently I have been experiencing increased pain / cramps / muscle spasms. Feeling of fatigue and overbalancing. Is this normal as I am struggling?
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Interviewees Needed for study into Ageing and CP
ALTHEA Study Living Healthy Lives: Exploring the effects of growing older with cerebral palsy and use of healthcare services across the life course Invitation We would like to invite you to take part in our research study. Please read the following information about the purpose of the research, how the findings will be…
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Botox injection for tight muscles
Does anyone know anyone who can do Botox injection for tight muscles?
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Hi, my name is JNawaz! CP and SDR Surgery?
Hi folks. I'm the parent of a 4 Yr old boy who has PVL grade 3 Cerebral Palsy. Lower legs effected so doesn't have flat feet and doesn't walk without aid of his kayewalker. We have had botox injections which helped very little. We have now been offered SDR surgery in Nottingham. Would be great to speak to people in similar…
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Cerebral Palsy more than a physical impairment
There is a large focus on the physical symptoms of cerebral palsy, and therefore mental health needs often get overlooked. Behaviours displayed may be attributed to your cerebral palsy rather than a mental health problem. Medical teams may be more concerned about improving mobility so that you become self-sufficient before…
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Physio
if if you have. Cerebral palsy in the uk and need physio you are very little lucky if you get any help especially when you come home from hospital.
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Parent experiences of wheelchair provision: Cerebral Palsy focused
You are invited to take part in our research study. Before you
decide, it is important to understand what involvement in the project will mean
for you and why the study is being done. If you wish, you may discuss the study
with others. Ask us if you need more information or if you are not clear about
anything and take time…
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Any groups that may be of support?
Hi all! I'm working with someone with Cerebral Palsy and was hoping to find any groups out there that may be of support.
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Trikes/Bikes/Getting Around
Hi, My daughter is five and has mild CP. She is a reluctant walker and can manage around 10 mins before getting tired - once tired, she struggles to walk and then trips up, scuffs her feet, becomes upset. We’ve been managing this by pushing her around on a toddler trike. She is now too big for this though and she’s still…
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Action CP If in Doubt Check it Out Campaign
@scope fully supports this #IfInDoubtCheckItOut public awareness campaign by@action_cp to improve the life chances for children with or at risk of cerebral palsy.
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Adult Cerebral Palsy Reviews. Bobath Monthly Zoom
Have you ever wanted to discuss your cerebral palsy with someone who understands? A clinical review between an adult with cerebral palsy and a healthcare professional is recommended by NICE guidelines on an annual basis. This review incorporates discussing common concerns, physical symptoms, mental health, pain, nutrition…
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Fatigue, Sleep and Napping
The more I read about CP and fatigue, the more I realize it's "normal" for us to need more than 8 hours of sleep. I'm less concerned about the amount of sleep I seem to need -- sometimes I can go for 10 hours. I would love to hear from other people. How many hours do you need to feel well-rested? How much do you need to…
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Young Adult Respite in or near LBRUT
Hi All I have a young disabled adult daughter(26) with quad CP, ASD, challenging behaviour, needs full time 1:1 care and sometimes 2, associated health issues and ModerateLD,self harms . I am a divorced ,single MUM of 5 and a busy household , full time carer and my daughter is on a CHC. We have 2 people who are long term…
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To Disclose or Not to Disclose Your Disability on Job Applications
SARAH KIM, MSFreelance journalist and writer If you have any disability, then you probably have pondered on this question once, or ten times, before: should I self-disclose my disability on the job application form? Unlike going into the job interview, where your visible disability cannot be concealed, the power lies…
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Thanks!
Good morning everyone, hope you have a great day. Thanks for welcoming me here and for your great advice x
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CP teens - how to access a booking for chit and chat
Hi everyone, I’ve just signed my son up for CP teens and booked for him to join the chit and chat sessions, but I’m not sure how to access them! Does anyone know how to join your session after booking please?
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Activities and outreach for CP Adults
Hello everyone, I'm new to this forum - looking to get some advice for my sister-in-law, who is a lovely, energetic, intelligent, 40 year-old woman with CP. She is confined to a wheelchair and lives in Caterham, Surrey in an assisted living block. I have seen various types of support and community engagements for children…
