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Trikes/Bikes/Getting Around
Hi, My daughter is five and has mild CP. She is a reluctant walker and can manage around 10 mins before getting tired - once tired, she struggles to walk and then trips up, scuffs her feet, becomes upset. We’ve been managing this by pushing her around on a toddler trike. She is now too big for this though and she’s still…
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Action CP If in Doubt Check it Out Campaign
@scope fully supports this #IfInDoubtCheckItOut public awareness campaign by@action_cp to improve the life chances for children with or at risk of cerebral palsy.
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Adult Cerebral Palsy Reviews. Bobath Monthly Zoom
Have you ever wanted to discuss your cerebral palsy with someone who understands? A clinical review between an adult with cerebral palsy and a healthcare professional is recommended by NICE guidelines on an annual basis. This review incorporates discussing common concerns, physical symptoms, mental health, pain, nutrition…
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Fatigue, Sleep and Napping
The more I read about CP and fatigue, the more I realize it's "normal" for us to need more than 8 hours of sleep. I'm less concerned about the amount of sleep I seem to need -- sometimes I can go for 10 hours. I would love to hear from other people. How many hours do you need to feel well-rested? How much do you need to…
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Young Adult Respite in or near LBRUT
Hi All I have a young disabled adult daughter(26) with quad CP, ASD, challenging behaviour, needs full time 1:1 care and sometimes 2, associated health issues and ModerateLD,self harms . I am a divorced ,single MUM of 5 and a busy household , full time carer and my daughter is on a CHC. We have 2 people who are long term…
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To Disclose or Not to Disclose Your Disability on Job Applications
SARAH KIM, MSFreelance journalist and writer If you have any disability, then you probably have pondered on this question once, or ten times, before: should I self-disclose my disability on the job application form? Unlike going into the job interview, where your visible disability cannot be concealed, the power lies…
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Thanks!
Good morning everyone, hope you have a great day. Thanks for welcoming me here and for your great advice x
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CP teens - how to access a booking for chit and chat
Hi everyone, I’ve just signed my son up for CP teens and booked for him to join the chit and chat sessions, but I’m not sure how to access them! Does anyone know how to join your session after booking please?
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Activities and outreach for CP Adults
Hello everyone, I'm new to this forum - looking to get some advice for my sister-in-law, who is a lovely, energetic, intelligent, 40 year-old woman with CP. She is confined to a wheelchair and lives in Caterham, Surrey in an assisted living block. I have seen various types of support and community engagements for children…
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Hi, my name is Uphar! - worried about son
Hi , My son is 4 years old and he is still not walking independently. he is though walking taking support. He is disgnosed with perinatal ventricular insult in MRI. Doctors says he has CP. besides walking he is also not talking. we are doing physio therapy from last one and half years but no solid improvement is seen so…
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Hi, my name is CarenMitch1! My teenage son has CP and he’s desperate to make friends
Hi everyone. My teenage son has CP and he’s desperate to make friends - does anyone have any advice? It’s so isolating
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New video by adults with cerebral palsy shows how physio barriers can be overcome
A new animated video – released today on World Cerebral Palsy Day – highlights how hard it is for adults with cerebral palsy to get the physiotherapy help they need and recommends ways in which future services could be shaped. The video was scripted and voiced by adults with cerebral palsy (CP) in partnership with…
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Counselling and AAC
When we think about conventional mental health counselling, it consists of the counsellor and person speaking together. Responses to questions are considered and then answered; this is how counselling works in most cases. But what about the cohort of people with CP who cannot communicate this way? How can they access…
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Hi, my name is Auchie07! Looking to hear about others' experiences as a parent of an infant with CP
Hello, My 11 month old Daughter has been diagnosed last month with Mild CP following a HIE incident at birth. We are based in Scotland so would be interested in hearing from other Scottish (location) people on tje forum who might be able to give me an insight on their experiences with / as an infant with CP in Scotland.
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Moved: Buckinghamshire Support Group
This discussion has been moved.
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Disability Plus Cerebral Palsy Counselling
In 2016 Deaf4Deaf Counselling & Psychotherapy started to provide culturally sensitive therapy for Deaf people throughout the UK. We obtained NHS funding, and many companies contacted us asking for our services. In 2020 we started bringing together a new team of counsellors that supported people from a wider demographic of…
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Help choose the winning idea this World Cerebral Palsy Day
Help us choose the most innovative ideas. Voting is now open! Go to the Gallery of Ideas, where you can see the hundreds of life-changing ideas submitted by the community and vote for the idea you think could have the most impact! Thanks to all who submitted an idea! All the ideas will help prove the global demand for…
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I'm 46 and just had my CP diagnosis
Hello everyone. I'm 46 and just had my CP diagnosis, mad as it sounds. I've always known something was different growing up, but as its only mild its its never been picked up or been an issue, until the last year I've been in constant back pain , due to the way I walk. I have an appointment with neurology next week to find…
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Hi, my name is Bobby_lawler1!
Hi everyone, My name is Bobby, I'm 27, I've had CP since birth on my right side known as hemiplegia. I just want to find people who have common interests with me 🙂. Thanks.
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As a woman with cerebral palsy, this is what I wish I knew before getting pregnant
“I should’ve accepted myself and been proud of my differences, but I felt that I couldn’t do that in the motherhood space.” BY Lucy Morgan at Glamour Magazine. Carly Tait is an ex-professional athlete who competed in the 2016 Paralympic Games in Rio de Janeiro and the World Para Athletics Championships London in 2017. She…
