Physio

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Margare93222061
Margare93222061 Online Community Member Posts: 421 Empowering
in Cerebral Palsy Network
if if you have. Cerebral palsy in  the  uk and  need physio  you are very little lucky if you get any help especially when you come home from hospital. 

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Have you had trouble getting help with physio @Margare93222061? 

    I'm sure a lot of our members have some similar experiences themselves, so thanks for sharing your thoughts.
  • Richard_Scope
    Richard_Scope Posts: 3,788 Cerebral Palsy Network
    Regular, consistent physiotherapy is a huge issue for adults living with CP. Most NHS provision is in 6-week blocks this then requires re-referral from your G.P. It is not helpful for a life-long condition. 

    One of the key recommendations of the APPG report on adults living with CP is a review of physiotherapy and rehabilitation services for our community.
  • Maggiefv
    Maggiefv Online Community Member Posts: 2 Listener
    It really depends on where you live unfortunately. When I was living near Sidcup they had a really good Kings College physio unit. I had a bad back( still do), but they let me have a physio there that consistently saw me until I moved. She gave me exercises to try and when she thought I was well enough, popped me into a Pilates class, but the main thing was, she kept going with me - no 6 week block -  I just popped in every 3 to 4 weeks - and that belief in me and support helped. Sometimes it can help to push your gp for a more advanced physio as I’m sure for CP consistent regular physio is required and should be offered. 

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