Hi, I'm vickylbarnes! My 1yo has CP. Where can I access funding? — Scope | Disability forum
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Hi, I'm vickylbarnes! My 1yo has CP. Where can I access funding?

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vickylbarnes
vickylbarnes Community member Posts: 2 Listener
edited October 2022 in Cerebral palsy
Hi all. I am looking for some advice after recently moving back to the UK with my 1 year old son who hasCP and developmental delays. I am being knocked back by what feels like every service and told the waiting times for anything NHS is about 6 months. Is this really the case? Is there any way to get funding from anywhere else? I have applied for DLA but that is also going to take months. Any help or suggestions would be appreciated. Thank you
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  • poppy123456
    poppy123456 Community member Posts: 54,656 Disability Gamechanger
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    Yes unfortunately the waiting times for a lot of things are many many months. What funding are you actually looking for? 
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
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  • Richard_Scope
    Richard_Scope Posts: 3,659 Scope online community team
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    Hi @vickylbarnes
    Thanks for posting. Ordinarily, your GP would refer you to a paediatrician and or paediatric neurologist. There may well be a waiting time for these services. 
    There are organisations like Bobath, that you may be able to get NHS funding for. What services have you tried to access so far?
    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

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  • vickylbarnes
    vickylbarnes Community member Posts: 2 Listener
    edited November 2022
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    @Richard_Scope @poppy123456 I am trying to get Physio, OT and speech for him and currently having to pay for it all privately. I have spoken with my HV who has not been of any help and spoken with social services who directed me back to my HV. It feels like I am just going round in circles. I have spoken to a couple of families with children who have CP and they have said they fun therapy privately. Is this really the case? 
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  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    In all honesty @vickylbarnes I, unfortunately, do not have the answer to your question. However, I am hoping someone with more knowledge and experience in this area can respond to you soon.

    In the meantime, I wanted to respond to let you know we hear you and see you. It sounds really difficult that you have to pay for all these costs, particularly in a financial crisis.

    Some resources you might, hopefully, find helpful include:

    Please feel free to keep us in the loop with how things go and if you need any support in the meantime. We are all here for you and listening to you. You don't have to face this, or anything else, alone if you don't want to  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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