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Beneath the surface of ageing with cerebral palsy
By medical definition, cerebral palsy is a non-progressive condition. While CP might not present a progressive nature on the surface, the side effects can be painfully rampant throughout the body. Issues such as Post Impairment Syndrome and Fatigue can certainly make life more challenging. Many people with CP become…
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Hi, my name is lewisb22. I've only ever met one person with CP
hi im new here. and i've only ever met one person with c.p
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Hi, my name is JessieCP!
Hi there I'm an adult who only just found out about my childhood diagnosis of CP a lot of my life I wondered what was up with me now knowing this things are making a bit more sense but as my deceased mother took this all medical information to her grave & growing up in Africa not sure much of my childhood medical records…
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CP diagnosis for 18 month old
Coming to terms with CP diagnosis of my gorgeous ex prem 26 weeker who is now 18 months. The ‘wait and watch’ period seems to be over but there is still so much uncertainty. Anyone else been through/going through anything similar?
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We Need More Research Studies About Adults With Cerebral Palsy
When people think of cerebral palsy, they may think of it as a childhood condition. After all, about 8,000 babies are diagnosed with it annually, along with another 1,200 -1,500 toddlers. Across the USA, about 764,000 children and adults have some form of cerebral palsy, according to the organization Cerebral Palsy…
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Vaccination
Hi . I have been trying to find out if any of the covid vaccine trials have been done on people with cp . Anyone know this or any suggestions on how I can find out ? Thank you
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This weeks festive online activities with CP Midlands w.c 30.11.20
Monday 30th November 12pm CPM Catch Up on Zoom https://us02web.zoom.us/j/89920547167 2pm Music with Matt on a Monday – Live on the CPM Facebook Page Tuesday 1st December 11am Christmas Crafting with Darren/Wendy on Zoom https://us02web.zoom.us/j/82160675343 2pm – Join Sally this week on Zoom for Seated Tai Chi…
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A hidden condition
Hi, I’m in my mid-twenties and I live with Cerebral Palsy. For many years from around the age of 14 years old, I have
experienced increased levels of pain in my hips and back as well as other
symptoms. This seemed to become worst during my periods. The pain increased
very slowly over time and I just put it down to my…
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Online Events This Week!
Cerebral Palsy Midlands Up and coming online activity plans Monday 23rd November 12pm CPM IT Training and Catch Up on Zoom https://us02web.zoom.us/j/85103135003 2pm Music with Matt on a Monday – Live on the CPM Facebook Page Tuesday 24th November 11am Christmas Crafting with Darren/Wendy on Zoom…
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CP Midlands Online Events this week
Monday 16th November 10am Edited video shared on CPM Facebook page from art tutor Mark Jennings https://www.facebook.com/CerebralPalsyMidlands/ 12pm CPM Catch Up on Zoom https://us02web.zoom.us/j/84169926641 2pm Music with Matt on a Monday – Live on the CPM Facebook Page Tuesday 17th November 11am Christmas Crafting with…
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Finding suitable shoes for AFO splints
As part of World CP Day, I'm sharing how I find shoes that work with AFO splints. I know this can be really difficult and I have had many years of trying to figure out some kind of formula. What are AFO splints? An AFO is an ankle foot orthotic that is prescribed by a orthotist, it most commonly is worn by people who have…
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Possible Cerebral Palsy?
Hi everyone :) Sorry for the long winded-ness! I am a 27 year old with muscle issues since birth. Symptoms being stiffness of lower limps (particularly calves) this gets worse in the cold and when tired. I walk on my tippy toes on one side and use my toes for balance which has caused me to grow a bunion on one foot. These…
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Hi, my name is clarehb21!
I am 37 i have mild cp which I originally thought was just in both my legs and worse on my left side but after a recent appointment with my consultant I was told it was mild in my arms too I have also got mild osteoarthritis in my left hip ..as I've gotten older i have realised when I'm ill or on my period I get really bad…
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I'm a mum of twins with CP. One has terrible bowel issues, has anyone got a similar problem?
Mum of twins w cerebral palsy. One has terrible bowel issues. Anyone got similar probs. Spent last week washing sheets etc.
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Children with cerebral palsy can express their creativity too!
I am sharing with you this project because it can be helpful for therapists, educators, parents and children, of course. Its name is Glifo. The idea of Glifo was born to help children with a complex neurological disorder write and draw so that they could leave their marks. It was something TOG therapists witnessed while…
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CP Midlands events this week
Cerebral Palsy Midlands Up and coming online activity plans Monday 9th November – Gary and Janet Kirkham annual leave this week. 1pm Music and Waffle with Sarah on Zoom – come and tell us your favourite song and why? https://us02web.zoom.us/j/82866938563 Tuesday 10th November 11am Cooking with Wendy Smile Shortbread…
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GP requires permission for me to talk about son's medical needs
Firstly my son does not have CP but many doctors presumed he had, so I am posting here hoping you can help. He has Agenesis of the Corpus Callosum, ACC for short. He is 35 years old and now due to the data protection act we are having trouble with our GP and a rather unhelpful, rude practice manager. He has Epilepsy and…
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Advice for my granddaughter please
Hi I am so frustrated after a visit to Tesco today. Shopping for My 4 year old Twin granddaughters one of whom has quad CP gmfs level 5 visually impaired none verbal and is on a high fat diet as recommended by her dietician at alder hey. She can only eat the smoothest of puréed food and likes a good variety of different…
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Cerebral Palsy Midlands Up and coming online activity plans week beginning 2nd November
Hello everyone Cerebral Palsy Midlands Up and coming online activity plans Monday 2nd November 12pm Chit chat with Mark on Zoom https://us02web.zoom.us/j/89486011859 2pm Matt's Music Monday (LIVE on the CPM Facebook Page) Tuesday 3rd November 11am CPM are making Guy Fawkes – Help John name the Guy Fawkes. If you would like…
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Making dance with my 4 iPads I’m a contemporary with cerebral palsy
https://youtu.be/9XoXNxfFVWo
