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Cerebral palsy Conference October 7th 2021
Cerebral Palsy Scotland have a brilliant programme of speakers lined up for their online conference. Check out the programme here: https://bit.ly/3DJftwi Now in its eighth year, the event aims to be informative and inclusive for all those with experience of #cerebralpalsy – either directly, through family or…
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Dating with Cerebral palsy
Hi my name is Emily and I'm a suffer of cp. What I can't understand is this ... why can't we normally with cp people look at me and think I'm wierd because cp. They can't be bothered to come and talk to me about it then I feel lonely and helpless. Datings difficult for.oeopke with cp because of the age thing but really it…
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Poem Cerebral Palsy for Awareness
Poem Cerebral Palsy for Awareness A young man called Jay He hoped one day Jay and the other people with disabilities come together to fight for change As there is a range of people with hidden talents inside us all. As we call together to bring change as we celebrate Cerebral Palsy awareness. As we campaign in all weathers…
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Community campaigner with cerebral palsy subjected to vile abuse
A community campaigner and former borough councillor for Newbold and Brownsover has been left 'gutted' after he was subjected to vile abuse because of his disability in the town centre. [picture of the community campaigner] Read the complete report from the Rugby Advertiser
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Hi, my youngest son has CP and I need advice on being a better father and supporting him better
My son is 3 years old and as he's grown physically and mentally, I've struggled more and more with giving him the support he needs. He's very motivated to try to do stuff, but his body (mostly balance and coordination) doesn't let him and lots of frustration builds up. For example, he loves tidying things, carrying objects…
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How can I keep my energy levels up? Any recommendations for walking aids with a seat?
Me again, hey all. Loving using this forum now, so greatful for all your previous advice. As I’ve mentioned in previous posts- I suffer with cerebral palsy hemiplegia to be exact. My CP has recently relapsed after giving birth two years ago. I’ve been going to neuro physio but not seeing much improvement in my energy…
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Confused...yet again
Been diagnosed with FND now ontop of cerebral palsy does that mean i have a glimmer of being able to get better totally confused
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Athetoid Cerebral Palsy Shopping/College bag on wheels.
Hi everyone I’m looking for recommendations for easy to use fill and push bags on wheels for my 18 year old son to take to university to carry his laptop books etc. He has Athetoid CP grade 2 on the gross motor function classification guide and I’m thinking he’d find it better to push than to pull with an element of…
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Neuro Heroes CP Empower
Our next CP Empower education and exercise course starts at the end of September. Over the six weeks, there will be a chance to try different types of exercise and plenty of discussion about common difficult areas that exercise can impact on, such as fatigue, pain and falls prevention. The course is bookable here for £75,…
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Hi, my name is 1975! My daughter, 11, has CP and I want to find support for her
Hi , my name is Sadah . I am father of FARAH . She diagnosed CP since her 5th month . FARAH IS 11 Years now . Unfortunately, I am so far from UK or US or any country may help such cases to be at least with a reasonable care . I am from SUDAN ??. Working and living in Saudi Arabia for last 18 years. I am looking for any…
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Family impact of CP
CP can affect the lives of partners and family members, but this important
impact is often ignored. Researchers at Cardiff University have created a
simple questionnaire to measure this impact. They need your help to test this
questionnaire before it can be used routinely to better understand and care for
the health and…
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Try athletics at a CP Sport taster day this September!
CP Sport is hosting a ‘Have a Go Athletics Day’ on Sunday 19th September in Coventry. The event is for anyone with a physical disability of all ages and abilities and will be an opportunity to try out a variety of athletics disciplines in a fun and safe environment. Experienced coaches will guide participants through each…
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Hi, my name is Emilija! My daughter has CP and epilepsy. What type of analysis should we do?
Hi everyone,I'm new in this group.I have daughter 18 years old with cerebral palsy,epilepsy.My question is what tipe of analyzis (blood,urine,hair) should I do ,heavy metal analyzis.For all this yeast I haven't done any of these .Only basic blood analyz.Thank you for your answers.
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I’m fed up of fighting
Hi my name is cplife I’m fed up of fighting for everything I feel forgotten about more so since Covid i also suffer with health anxiety I’ve had since childhood I was born in the 70s hospital visits where horrible back then these visits took me up till I was sixteen and then all care stopped I’ve received a letter to ask…
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All Party Parliamentary Group on Cerebral Palsy First Session
Scope, in partnership with Adult CP Hub, is sponsoring the next two sessions of the All-Party Parliamentary Group on Cerebral Palsy* https://connectpa.co.uk/appg-cerebral-palsy/. There will be two sessions focused specifically on issues affecting adults with cerebral palsy followed by a written report which will make…
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New CP Football Season starts next month
The National CP football league is looking to start next month we would love to hear from any adults that are interested in playing or getting involved. For more information on the league and opportunities to play CP football please drop Rich Kerr an email Richard.kerr@cpsport.org
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I'm struggling with secondary ageing. Anyone know how to disguise your nappys when out in public?
Hi, my name is Ian. I have left side hemipligia from birth. Im 47 years old now. I am deperatly struggling with secondary ageing, sincw my late twenties. i do not work i just try to exist. pins needles numbness, enourmous pain just got to put up with it. severe fatigue as well so mant tablets i take,from baclofen…
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Soft Handel crutches
Does anyone know a company that does soft moulded handle crutches thank you
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Hi, my name is Bob_! I suspect the problems in my left leg could be undiagnosed CP
. I'm new here. At 58 y/o, I'm looking around, reading up on support: I suspect life-long problems I've had with my left leg could be undiagnosed CP. I'm willing to find out, having stumbled on or up pavements no less than five times yesterday :) . I suspect people think I'm drunk.
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Hi, I'm subg and my youngest son has cerebral palsy and am looking for friendly advice
:)
