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Hi, my name is jimza!
Hi everyone, I am 29y/o F, joined this forum as a sibling of a sister (19F) with special needs. She has mild cerebal palsy, so suffers from mobility issues and learning difficulties. She goes to uni, studies hard but occasionally has to use a motorised wheelchair, is not able to cope with any stress emotionally. She is…
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cerebral palsy and the corona virus
Hi, With the recent report classing those with cerebral palsy as vulnerable in relation to the Covid- 19. I’m 22, student nurse with mild cerebral palsy that affects the right side of my body. I just want to confirm that I’m not classed as vulnerable as I am mobile and healthy. What’s your opinion as I’m on placement at…
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Why are people with CP considered vulnerable?
Hi, I'm confused as to why people with CP are considered vulnerable in this Coronavirus outbreak. Any Ideas?
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Educating grandchild with CP at home
I have a nine year old grandchild with cp and she is nonverbal and wheelchair bound. Because of the Coronavirus in the USA, our schools have closed for the school year. I am going to be responsible for her education at home and am looking for ideas and suggestions. Thank you for letting me join this community.
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"It's been a weird week."
'It's been a weird week': Man with cerebral palsy on life in self-isolation A disability campaigner is keeping a video diary of his time in self-isolation during the coronavirus outbreak. Read the full story at ITV.com
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Hygiene for Hemiplegic Hand and Mobility Equipment
We all need to follow basic hygiene precautions, especially at this challenging time. We all know about not touching our faces, covering nose and mouth when coughing or sneezing with a tissue or into our elbow. However, we need to be thoughtful about not only hemiplegic hands but also equipment that we might use on a day…
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Coronavirus and my son with CP
Am worried about how Corona virus could affect my 13 year old boy who has Cerebral Palsy
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Hi I'm Caeden Thomson, I'm 6 with CP and I'm going to walk up BEN NEVIS!
Hi I am a 6 year old boy with Cerebral Palsy, My mum is typing, because she can type faster than me! :) lol! I was born 12 weeks premature and had a lot of problems. I was in and out of the hospital a lot. In my life, I have been really lucky to have had as much help and support I have had - that I now want to give back.…
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Why is CP in the list of higher vulnerability for Covid-19?
Hi, dad of girl with wobbly legs. Otherwise healthy. I'm trying to figure out why CP is in the high risk list from HMGov yesterday. Some people have suggested something to do with neuro damage or something. It doesn't immediately make sense to me. My understanding of CP is permanent brain damage from birth, a static…
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NICE Quality Standards for Adults with CP
Over the last 18 months, Scope has been working with the National Institute for Clinical Excellence (NICE) and other organisations with an interest in CP to agree on what good service should look like for Adults living with CP. Scope supports these newly agreed and published quality standards. The standards are: 1. To…
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Bulging Disc Nerve Pain
Hi Folks, Hope you doing okay. I have recently been diagnosed with a bulging disc that is impinging on my left nerve root, causing sciatica. I have been to loads of private physiotherapists as the NHS physiotherapist was very poor, i just wanted to get out of pain. All seem to give mixed advice, but i am awaiting a…
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March is Cerebral Palsy Awareness Month
March is an exciting month, spring is just around the corner with sunshine (hopefully) and BBQs, St. Patricks day and of course, it's Cerebral Palsy Awareness Month! To get us started I thought it would be a good idea to share some of the key facts about CP: Around 2-2.5 in every 1000 children in the UK are born with…
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Spastic diplegia CP and tiredness
Hello everyone, I am looking for some advice on diplegia CP and tiredness. My son has this form of CP and senco are saying that his form of CP is what causes tiredness. However he is always tired. Im guessing this is because of his cp and othet factors like his seating etc which is due to be assessed. Does anyone with…
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Suitable pushchair for granddaughter
Hi my granddaughter who is 4 months old has just been diagnosed with cerebral palsy and epilepsy, and have been told it's quite progressive, I'm wondering about the next stage of pushchair as she carnt sit up or hold her head up,she is currently in carry cot but us getting to long for it .health visitor said she will need…
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Recommendations for Orthopaedic Surgeons
My sister Tizzy has severe cp and learning difficulties. She is an adult and we live in the London Borough of Greenwich. I am looking for recommendations of an orthopaedic sergeon who specialises in cp or even just an adult cp consultant. I am really hoping someone can help. X
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Memory loss
Hi, I'm 36 and have very mild CP caused by a brain injury when I was born. I have always had a pretty poor memory but laughed it off and only recently wondered if it's linked It's really starting to bother me now as I'm not sure if it's getting worse. I don't recall most of my childhood and ask me what I did more than a…
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Looking for some help regarding a proper diagnosis.
I am a 44 year old female diagnosed with mild CP as a child in the 80’s. Oh the 80’s what a blessed time to be diagnosed... (note sarcasm). After initial diagnosis and tendon lengthening surgery, the consultant turned to my Mother and told her “ Take her home and forget about that she has CP, carry on as normal” Ahhh.…
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Meet ups
Hello my name is Ceri Davies I have Cerebal Pausy, tethered cord syndrompe and scoliosis. I was wondering whether you could help me to find some groups/organisations in Dudley or the wider West Midlands where adults with physical disabilities attend. I am 30 years of age. I would appreciate any assistance you can give me.…
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CP and an amputee
Hi my boyfriend lives in Guildford and has cerebral palsy he also has had a below knee amputation so getting around even more difficult ?? Any other people with CP and amputation as well. Regards
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Looking for services
My name is Anthony and I am 53 yrs old living with cerebral palsy and it is my passion to help others with disabilities in particular those who are non verbal so I can help them to live as independently and happy lives as possible so if you or anyone you know needs help or advice feel free to contact me anytime and if…
