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What can I expect at my neuro rehabilitation phone appointment
Hi guys me again, I’ve just booked myself in For my first neuro rehabilitation appointment. It’s got to be over the phone due to Covid apparently. Never been to rehab before so just wondering what to expect.. thanks in advance.
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New website and new look for CP Sport
National disability sport organisation CP Sport launch its new website and branding today as part of its digital strategy. It is CP Sport's vision that everyone with cerebral palsy is able to access and enjoy being physically active throughout their lives. Approximately 160,000 people have CP in the UK and despite the…
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Hi, I am DepperDip. My 17 month old fosterling is probably going to be diagnosed with CP
I have joined the site as I have recently been told my 17 month old fosterling is most likely to be given a diagnosis of cerebral palsy, it hasn't come as a great surprise to be honest but I am hoping for some guidance and support from others who have more experience than me.
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Hi my name is Hope. I’m struggling with my cerebral palsy
Hey my name is Hope I’m 24 and I have cerebral palsy. Arthritis and epilepsy. I’m struggling with my cerebral palsy at the moment and I seem to be getting no where with the doctors, I’ve spoken to my GP and he has prescribed me diazepam to help with my muscle spasms in the short term however neither my GP or rheumatologist…
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Helping a sibling who's dealing with anger, regret, and frustration
Hello. i hope this finds everyone well at this challenging time. I am new to this forum & asking if any good resources for people with CP dealing with anger, regret and frustration in their mid life (40s). My sibling is really struggling and, living with our parents, directing anger at people closest to them. They have…
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Hi, my name is Lemony! My son has CP and I'm looking for advice
My son has CP and I want to know everything I can about it and about what I can do to be a good mum to him.
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Ear plugs and the startle reflex
I was just wondering if anyone has found ear plugs useful for reducing the startle reflex? I tried some cheap ones from Poundland but found that they made my ears sore wearing them every day & I couldn't get used to speaking at a normal volume with them in. I've been looking at the Calmer ear plugs & the Vibes ear plugs.…
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An Open Letter to My Body with Cerebral Palsy
Content and Trigger Warning// Body Image Rebecca R writes an open letter to her body. Dear Body, Where do I even start with you? Everything in me wants to curse you out right now, but I know that isn’t going to do any good. I hate you most times, but yelling at you won’t change a thing because the things I hate the most…
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Hi, my name is cloe! My daughter has been diagnosed with Cerebral Palsy
Hello, my daughter has been diagnosed with cerebral palsy today and just wanted to reach out to anyone with knowledge on what we can do to help her?
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Bobath surveys on the effect of Covid-19 on adults and children with cerebral palsy
We are a charity for babies, children and adults with Cerebral Palsy and we have recently created 2 surveys to find the impact of the pandemic on people with Cerebral Palsy and other neurological conditions as we believe this was a particularly challenging time for the disabled. First survey investigating the impact on…
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Have a newly qualified SW trying to change a long-standing care package. She has no knowledge of CP
Hello lovely people. I m not sure if this the right forum but I m desperate and don t know where to turn for support/advice. Basically on behalf of my brother (it’s just me next of kin). Suddenly we have a newly qualified SW trying to change a care package that’s been in place for no less than 17 yrs !!!! She clearly has…
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Campaign Promoting Children Disabled Social Services and Reducing Stigma
My name is Joanna, I am a registered adult nurse and I am a mother to 4 children, my oldest and will be 11 this August, has Cerebral Palsy and is severely disabled with complex health needs. Over the years we have had to fight, pretty much for everything to get what she needs. One of these fights was to get a social worker…
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Self abuse in my 22yo with CP
I have a 22 yo son with CP from newborn grade iv IVH in NICU. He has cortical blindness, g-tube fed, seizures and is nonverbal and cannot sit/crawl/walk. Starting around 5 yo he started hitting/punching himself in the face. This has gone on forever, and he is now 22. Over the past year, it has gotten way worse and very…
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Survey of Parents' Experience of Services Accessed for their Children
Action Cerebral Palsy is a charity that works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsy. To support this, we would like to get new feedback from parents about their experiences of the services (both statutory and…
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Housing enquiry
I am looking for some advice in regards to housing. Im 23 year old with cerebral palsy and I use a wheelchair and Kaye walker to get around. Due to my parents moving out I have decided to move out for my independence and further support. I am currently going through the council to find somewhere that is suitable however…
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Disability Discrimination and Your Rights
[Wheelchair user in the library with white headphones around neck] Join us for a special edition of our monthly adult meet up this July as we discuss your legal rights with disability and discrimination. Register for Free by clicking HereAbout this event Join us on Zoom with a supportive group of peers, where we discuss…
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Son has CP 16 months. He has a splint, but it's making his falling worse. Can this improve?
Hi my son was diagnosed with CP at 10 months and is now 16 months. He can walk now but falls all the time. He has a splint now but i feel its making bis falling worse anyone can this and it improve?
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Need some advice.
Hello again school community, you were so helpful last time when I came to you all needing advice. So I thought I’d come to you all again and see if you could help me. As you might remember I am suffering with cerebral palsy which I’ve had since birth. For the past 10 years I’ve been going to the doctors about various…
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Hi, I'm syeda123! My 2 yr old daughter was diagnosed with CP. Can I get a 2nd opinion? What to do?
My 2 year old daughter has been diagnosed with CP. Everything else is fine with regards to speech etc. she had delayed gross motor development and is unable to walk or stand. They say she has muscle stiffness in her legs and low tone and scissor steps when holding my hands and trying to take steps. After and MRI they say…
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Moved: Anat Baniel Method for Children- Neuroplasticity
This discussion has been moved.
