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Research investigation on the relationship between cerebral palsy, anxiety and participation
We're doing a joint study project with the University of Bristol and Recolo Ltd. Please join in and complete the survey as we investigate the relationship between cerebral palsy, anxiety and participation in everyday activity. Please click this link access the survey: https://lnkd.in/dJ_4tgi
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Help
hi my name is Aimee I suffer from hypermobility dissorder I’m in constant pain to which I’m now on oramorph for I don’t like it as im scared I’m going to get. Addicted to it please can u help I’m currently under Stanmore orthopedic taken the usual paracetamol coding neproxen and ibruprofen to which none work anymore I just…
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Fibromyalgia , EDS and Pain
HI, I need some help I have recently been diagnosed with Fibro and my Hypermobility has been reclassified as EDS. I am in so much pain. I have been sent to a pain clinic but the clinic is a group therapy session. I am not interested in that I want to know what pain relief i can have. I am currently taking Amitriptaline but…
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Does a person with cerebral palsy burn more calories than a person who doesn’t have the condition?
Hope you’re all well, does a person with cerebral palsy burn more calories than a person who doesn’t have the condition?
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University of Limerick Research in Adults Living with CP
Opportunity for adults with Cerebral Palsy to participate in an online research study conducted by the University of Limerick Department of Psychology investigating how adults cope with Cerebral Palsy More details at https://unioflimerick.eu.qualtrics.com/…/SV_6RshZlioTUq4KEZ… If you would like to follow the research via…
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My 92-year-old aunt and CP
My aunt turned 92 in March of this year and she has cerebral palsy.
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Sensation in hemiplegic hand
Hi Richard.My daughter has hemiplegia and more recently developed epilepsy.At the same time as the epilpesy started she began rubbing and shaking her hand as if she was experiencing uncomfortable sensations.Unfortunately she also has severe communication difficulties, so is unable to tell us what the problem is, so l'm…
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9 Year Old living with CP walks 10K for the NHS
Inspired by captain Tom Moore’s achievement, a nine-year-old girl from Kingsbury, North West London has walked 10k to raise money for her NHS heroes. Ava Brosnan was born with spastic diplegia cerebral palsy and had a life-changing SDR operation three years ago to help her walk unaided. Ava’s mother Mary Brosnan said, “I…
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re: confinement during covid-19 outbreak
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CP and COVID-19
Hi Everyone, I am new here but not new to CP as I am living with it and have done so since birth. I am really looking forward to meeting you all and also trying to get information with regards to this awful virus COVID-19. I do hope that you are all keeping well and safe.
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Hi, my name is Pye I have have mild cerebral pasly
I have mild cerebral pasly, dyslexia, double vision, slight swallowing issue. I work as a key worker role in a professional capacity. With covid 19 I am working from home. And as far as I know healthy, I haven't received a NHS letter should I assume that while at risk this should not prevent me from essential shopping?…
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Coronavirus and cerebral palsy
I have symptoms of painful ribs and chest with sometime a cough for 4 weeks. GP examine last week after taken antibiotics for 7 days. He prescribed codeine for the pain. GP unable to confirm if I have Coronavirus or another virus. I live on my own Have anyone had painful ribs and chest?
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Looking for advice!
Hi, can someone advise me if I'm at serious risk or not of the coronavirus. I'm currently off work, due to cerebral palsy being listed on the vulnerable list. I am semi hemiplegic down my right hand side. It doesn't stop me doing much really, just weaker and have sniffness on that side and I don't tend to suffer with chest…
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Cerebral Palsy and Coronavirus (COVID-19)
Cerebral Palsy affects every individual differently that is why it is difficult to create a one size fits all guidance about the impairment and coronavirus. If you have respiratory issues, like getting chest infections quite a lot. Or are invited to have the yearly flu jab, you have swallowing difficulties normally, as…
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Hi guys Tommy here from Northern Ireland
Hello guys I have just joined. I am looking for some advice on CP, I suffer from spastic dieplegia CP and walk with a scissor gait. I am now 38 and have been in excellent health, very recently I have had minor problems with slurred speech and the over production of saliva, I have never had this before. Is this age related…
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muscle fatigue
hey my name is jo have you noticed as you get older its gets easier to suffer from muscle fatigue it seems recently i cant do as much as i used to. Usually my cerebral palsy affects my legs and arms its mild my legs get a little stiff and my arms occasionally lose grip not a big deal really.But the other day when i spent…
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Covid 19
If you suffer with Asthma epilepsy cerebal palsy do you come under risk category of covid 19
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Am I being lazy by asking for more help?
I have cerebral palsy and recently I have been asking for more help with ADL's because I get tired easier, especially since I have a full day of work (8hrs) almost everyday. I feel lazy because I know how to get dressed and brush my teeth but I get tired easier and I would rather focus my energy on college/homework/my…
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Hi, my name is jimza!
Hi everyone, I am 29y/o F, joined this forum as a sibling of a sister (19F) with special needs. She has mild cerebal palsy, so suffers from mobility issues and learning difficulties. She goes to uni, studies hard but occasionally has to use a motorised wheelchair, is not able to cope with any stress emotionally. She is…
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cerebral palsy and the corona virus
Hi, With the recent report classing those with cerebral palsy as vulnerable in relation to the Covid- 19. I’m 22, student nurse with mild cerebral palsy that affects the right side of my body. I just want to confirm that I’m not classed as vulnerable as I am mobile and healthy. What’s your opinion as I’m on placement at…