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I want write blog
My name Jay, I have cerebral palsy, I want to write a blog about having cerebral palsy and talk about my experiences and how I have dealt with me. I would appreciate anyone advice on what think of my idea
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Any evidence to the benefits of Physiotherapy for children/babies with Cerebral Palsy?
Hi I was wondering if anyone knows of any research out there which provides some evidence to the benefits of Physiotherapy for children/babies with Cerebral Palsy? Thanks Rachel
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Can anyone give me advice?
Hi I’m new to this. I’m single mum to Alexandra (you will see her in my profile pic) who is 16 years old and has spastic diplegia cerebral palsy. She walks in a walker indoors and uses wheelchair outside. I wonder if anyone can give me some advice. She had an appointment with her neurologist a few weeks ago and she copied…
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Just found out my 11 months old son has Cerebral palsy
Hi I just found out tosay my 11 month old boy has cerebral pasly that effects both legs and left arm not sure what to expect
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Does CP get tougher as you get older?
Hello everyone. I'm a long time lurker but have finally decided to break my silence. I have a mild cp that mainly affects my right leg, however I also have problems with my hand-eye co-ordination and balance. Throughout my life my cp has mainly just felt like a very dull ache and I just got on with it, barely noticing it…
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Advice
I am thinking of writing a positive short story book about having cerebral palsy.I would appreciate what other people in community think about my idea?
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L4 & L5 disc bulges / pins&needles
Hi I began suffering with initial lower back pain in April 2018. This was not caused by anything such as fall, accident or lifting. I had no previous back pain (or any pain) issues & was in good health. It was a sharp pain as I sat down. This has now progressed to worsened lower back pain & pins & needles to my left hand…
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Future unknown
My little girl is 14 months old and we received a diagnosis of pending CP a few months ago. It has been described as mild and so far only seems to affect her gross motor skills. It appears to affect all four limbs but our consultant has not yet confirmed anything nor has he confirmed the type of CP she has. Her physical…
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Cerebral Palsy Register in Wales
A national register of people with cerebral palsy is being launched in a bid to help improve care for people with the condition in Wales. Experts say the register is urgently needed so people with the condition get the services they need. Campaigners say there is not enough information about the population of people with…
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Crohn's probiotics and cost!!!!
My consultant said to me that I needed to take probiotics to help with the crippling pain I'm in sometimes. He said they can't prescribe it and gave the name of the cheapest his patients have told him about. Its like £25 a month! I'm like what the f?!!! That's so expensive. I can't afford that. This is rubbish. Does anyone…
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Living with Cerebral Palsy? Could benefit from help trying to find a home to meet your requirements?
Hi everyone. I'm Eleanor and I work on the Channel 4 property programme Location, Location, Location. Thanks for letting me join the community. :) We are looking for people to apply for our new series. Need help finding your dream home? Kirstie and Phil are back for a new series! Buying a house can be tough at the best of…
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Carer for disabled Mum!
Hi Claire and everyone else :) I am a full time carer for my mum who is disabled , long story short she had a failed spinal fusion back in 1996, previously she was a nurse in a nursing home. She also has osteoarthritis, cervical spondylosis and a screw through a nerve in her leg from the spinal fusion. For the most part…
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I have cerebral palsy, looking forward to having chat
I have cerebral palsy and am mummy to a 12 year old. Looking forward to chatting to you all.
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My granddaughter's needs
My granddaughter is 3 (4 in June 2019) She has, what I would call a mild case of cerebral palsy. She walks and talks normally and her speech is normal. Her main disability is her right arm and hand. She can't use them properly and now I have noticed it is making her very frustrated as she can't use her right hand in play -…
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Food suggestions for child eating at a 7-month stage
I am the mother to a beautiful child named Rosie, who lives her life with Cerebral Palsy. She is 2 years and 3 months old and growing quickly! She struggles with chewing and swallowing foods but wants to eat anything and everything, I'm finding it hard to think of things for her to be able eat... i'm stuck in a rut! She…
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Excessive Sweating
My son, who is 27, has always had trouble maintaining body temperature, but now he is sweating so much that his clothes are getting drenched. Is this common in cerebral palsy? It generally happens when he is excited/nervous/or just using a lot of energy. Is there anything I can give him to help the situation. I am changing…
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Stress, chronic pain and shoulder surgery! (Ehlers Danlos Syndrome)
Hi all, I have had to take some down time from being a pain advisor recently due to mental health issues in a teen son at uni, stress causing an increase in my own symptoms from chronic pain and Ehlers Danlos syndrome, and me feeling unable to chat effectively with you all! Life is returning to a status quo - you all know…
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deluxotine (Cymbalta)
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Adult Cerebral Palsy Hub - Abandoned Adults with CP
Hi All, I have come across the Adult Cerebral Palsy Hub through my GP and thought I would share for many of us that are experiencing secondary issues as adults as a result of CP: Story behind setting up the Adult CP Hub can be found in these links…
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CRPS question pain management
Hello, my CRPS was a result of successful cancer treatment in 2014. I was finally diagnosed in 2016 having CRPS as the condition worsened. I'm very much on a spiral were I'm unable to do more and more without causing significant pain or causing a flare up. I was on 1,800mg of gabapentin a day but felt to have hit a plato,…
