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Advice for parents with a recent diagnosis of CP of a child

emsheppemshepp Member Posts: 3 Listener
in Cerebral Palsy
I’m just wanting some advice or just abit of a support with how to adapt to a diagnosis of cerebral palsy in a young child. Any advice from parents living with a child with CP would be greatly appreciated, 
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Replies

  • arichmondarichmond Member Posts: 14 Connected
    Hi @emshepp thank you for your post and welcome to the Scope Online Community!

    I have CP myself rather than being a parent of a child with CP, but I'm sure you will be able to get help and support from other parents in the Community. This page on Scope Family Support may be helpful to you too: https://www.scope.org.uk/family-services/
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  • Richard_ScopeRichard_Scope Posts: 2,721

    Scope community team
    Hi @emshepp
    Good to meet you and a very warm welcome to the community. When did you all receive the diagnosis of cerebral palsy (CP)?
    Scope
    Specialist Information Officer - Cerebral Palsy

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  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @emshepp! I too have CP. Do you have any specific questions? :)
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  • emsheppemshepp Member Posts: 3 Listener
    Thank you for your replies it’s greatly appreciated. My daughter is 3 and is registered as several sight impaired but is recently undergoing tests as her professionals feel she has cerebral palsy she has all the symptoms. I just want to know how to adapt to this diagnosis and what the future holds for my daughter. Thank you 
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  • Richard_ScopeRichard_Scope Posts: 2,721

    Scope community team
    Have professionals spoken to you about what type of CP they think it might be? I'm going to include some very general information about Cerebral Palsy
    Once you have the formal CP diagnosis it would be really helpful for you to contact my colleagues at Navigate. The navigate team are either parents or have lived experience of disability.  
    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
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  • emsheppemshepp Member Posts: 3 Listener
    No not yet we have an appt today at the hospital to get abit more information but then we are seeing genetics in 2 weeks to hopefully get a proper diagnosis. This has been ongoing now since my daughter was 5 months old so we are getting desperate to find out exactly what is wrong and how we can move forward and support her more. But I am right in thinking cerebral palsy is hard to diagnose before the age of 3 in certain circumstances? 
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  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    I hope the appointment today went well @emshepp, it is possible to diagnose at a younger age but this really does depend on the severity and the type of CP. 

    Please do let us know how you get on. :)
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