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am wondering whether anyone else has had this happen to them
Hi I am a mum to a 35 year old son who has quadriplegic spastic cerebral palsy due to medical negligence at his birth which cause a brain acquired injury. I am wondering whether anyone else has had this happen. In 2009 the NHS took away his access to continuing health care and his complex care package and we have been left…
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Looking after a friend's child with Cerebral Palsy
Hello all I recently quit my teaching job of 15 years. I now am watching a 15 month old little girl who has CP. I am a long time family friend of the mother and grandmother. It's been one week Im learning about her and suggestions mom has given me. Child cries througout the 5 hours I watch her 3 times a week. She will calm…
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Pain
I suffer with constant pain and no matter that i take my meds each day they dont seem to be doing anything
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Support groups in Bromsgrove
Hi I'm living in Bromsgrove and wondering if there is any support groups or that type of thing? I'm 30 and beginning to struggle with constant falls.
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Face to face for PIP
Hi we have been following the process of my son’s disability benefits turning to PIP post his 16th birthday. I sent in loads of evidence and contacts for health professionals and received a letter advising me that they would be contacting the professionals involved in my son’s care and I know his OT was phoned as she…
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Knee Replacement
Hello. I'm 58 and have cerebral palsy affecting the right side of my body. Thanks to this I need to have a left knee replacement. The hospital where I'm due to have the op know about the cp but I'm just nervous about whether i'll be able to use crutches because of the cp and how this will affect my mobilty. Anyone else gad…
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Wish Fest Cornwall
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Advice about my care situation
I have just joined. I am seeking advice on what to do about my care situation. I am an independent 29 year old woman with CP who reeds 24 hour live in support.. I have an active lifestyle, I am in the process of setting up my own business and I am getting married in July. I basically like to live like any other young woman…
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Just saying hello
I was searching the internet to understand who else is out there with similar circumstances to mine and trying to learn more... and found threads here that relate! So just saying hello. I'm Larissa, I'm 46, I live in the US (California) and I was just dx with CP and autism at age 46... and I've got several other medical…
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What should I do?
Am a single mum and my daughter has cp. Am employed but I find myself struggling raise my daughter since the salary I get i feel isn't enough, i dont even get time to take her for therapy. Am so confused
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Fibromyalga
Please help me if you can. I have fibromyalgia. I was diognised with it nearly 20yrs ago I am in so much pain every single day pain all over my body I have pain in my ankles they swell up and I get stabbing pains in my heels, and shooting pains through the top of my feet from my ankle Doctor just says it's fibro. But it's…
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Newly diagnosed with mild cerebral palsy
Hi, I'm just wondering if anyone could give me some information and advice really. I was diagnosed with mild CP about 3 weeks ago, bit surprising as I am 42! I went to see the neurologist because I have had a problem with headaches/migraines and have had for the last 7 years. I have a permanent headache, it never goes…
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Using Exercise to Overcome Anxiety and Bullies
When Mariana Sfakianakis uploads a 'transformation' photo of herself to social media it has nothing to do with gaining or losing weight. Instead, the 25-year-old from Sydney is showing a little girl who grew up in and out of hospitals, holding crutches and relying on wheelchairs who has blossomed into a strong and fiercely…
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Scoliosis
Son (21, athetoid) just been referred to spinal unit due to fairly rapidly developing scoliosis (and apparent "misalignment" of 2 vertebrae). Probably been gradually worsening over last few years but very noticeable on Xray ...which was actually first spinal one, though hips been done for years. Anyone got any experience…
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Blocking footpaths
I have just been out with my dog along a footpath which was blocked at the far end by a Dark Blue Ford. I have Cerebral Palsy and find it hard to get around cars without assistance. I wish people would think!
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Estimating care needs
Hi all . I am trying to put together a very ball park figure of how much my sons care needs will be for the rest of his life . He has quad dystonia of CP and will need care with eating , dressing , toileting etc , most things in every waking hour . I assume he’ll need a live-in PA when he is older. He is able to talk and…
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Cronic pain
Im new to your forum, never asked for help on line before... but im in so much pain its brought me to tears....crying like a baby... Ive just turned 49 ((Monday infact)) been suffering with severe pain all my adult life....tried to hold down a job but couldn't stand or sit for very long or id be in agony and often feeling…
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Are there any support groups /forums out there for teens with cp?
Hi I am a mum of a 13 year old girl with mild cp diplegia and scoliosis . She is currently spending lots of time off school due to pain in her back. Her friends at school have shunned her and it’s killing me to watch her be so lonely . Is there any support groups /forums out there for teens with cp? She is spending more…
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CP: Im interested in how things have changed for others and would like to share experiences & ideas
Hello. Thought Id join this group because my CP has become a problem with age. Im interested in how things have changed for others and would like to share experiences and ideas
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Baclofen can be Better than Deep Brain Stimulation (DBS) for Adults with CP Study Suggests
Treatment with baclofen administered directly into the spinal fluid is less invasive and more effective than deep brain stimulation to improve the quality of life of adults with cerebral palsy (CP), a retrospective and comparative study shows. These findings were reported by Korean researchers in a study titled…
