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New to this comn7nity
Hello every one I'm Catherine i am new to the community and wanted to say hello.
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Access to social worker and additional support
Hi all, I'm looking for more information on how to get access to a social worker and mental health carer to help me a few days a week with basic day to day tasks. I'm 29 yo with hemiplegia, a type of cerebral palsy and feel the need for more support in my life. Thanks
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Peterborough Cerebral Palsy
Need help to admit my 3 years 2 months son [removed by moderator] diagnosed with Cerebral Palsy in special school in Peterborough . I stay in [removed by moderator]. My Number : [removed by moderator]
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Tramadol
Hey i am a mum of 3 and work with special needs early years children. The last 6 month my health has gone down hill and i am feeling very low and tried all the time. When i am not working i just want to sleep which not fair on my family. Could tramadol be a reason to make my health worst or could it be the way my cp could…
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I get so irritated!
So, I'm currently lay in bed thinking about my daughter. She has CP and I've come to terms with it and I'm dealing with it all as best I can. But... Her dad is irritating me. He won't accept she has CP. Says she's fine, there's nothing wrong and that I'm just being stupid. Clearly there is something wrong because she's…
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Can you have CP and not know and can it be diagnosed in your 30s?
Hi I'm new here and looking for some advice after reading a lot about Hypertonia and Rigid muscles. Ever since I was a teenager I have struggled with tight muscles and short muscles the physio at the time said it was like my muscles had stopped growing at about the age of 13/14. I had lots of Physio, stretching and got…
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National Neurology Patient Survey 2018/19 Results
I am pleased to share the report of the 2018/19 National Neurology Patient Experience Survey, which The Neurological Alliance has launched today. The report is called Neuro Patience; a title chosen with intended irony given the results show that the experience of people with neurological conditions remains poor. The main…
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Cerebral Palsy and Premature ageing
I'm 43 and started with pains in my legs around three years ago. My left leg became painful and has kept giving way and the first time I actually fell down, the second I broke my fall so didn't actually fell. The cerebral palsy affected my right side, so my GP said my left side was wearing out due to overcompensating for…
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Interventions in Childhood May Improve Adult Bone Health
Adolescents with cerebral palsy have low bone mass, which significantly improves and is maintained during early adulthood, Australian researchers have found. This suggests that cerebral palsy patients may benefit from early interventions to prevent bone mass loss, or improve bone metabolism, to optimize bone health from…
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When I get a virus I seemed to take a long time to recover is this common with people with CP
For the past three week I had headaches and feeling sick. I now getting lots of aches and tightness in the throat. GP said virus take time to leave us. Has anyone with CP have problems.
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Travel
Hi everyone, I am a new member of the group and I think I originally posted this in the wrong place. At present I am living in Grand Cayman with my husband. I am originally from the UK and all my family are back home. Recently My brother, who has Cerebral Palsy, visited us, and what a time we had. It was fantastic!! Off…
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Osteoarthritis, suggestions on pain relief
Just had diagnosis of osteoarthritis can anybody suggest the best ways of managing the pain very limited on what pain relief I can use due other health conditions. Any suggestions would be great.
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Crps
hi I’ve been diagnosed with crps after breaking my wrist last January the doc said most people only have it for a year but occasionally it lasts longer but my pain seems to be getting worse month by month , how will I no if this is going to be forever or if it will disappear ? Do I just wait and see how I go or ?
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Cerebral palsy and not gaining weight
Hi All, I have cerebral palsy, and I have never being able to gain much weight ever since I was a child although I eat healthy and try to exercise. I'm wondering, is there is a link between cerebral palsy and not being able to gain weight? Could it be that I have a very high metabolism which means I burn whatever I eat…
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Help Scope with Cerebral Palsy Research
Scope is putting together some research on cerebral palsy, and we would love to hear from you. We’re setting up phone interviews with members of our Scope Research Panel as part of a wider project to improve Scope’s offering for people with cerebral palsy, with £30 for everyone who takes part as thank you for your time and…
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“Have Your Say: Physiotherapy Services for Adults with Cerebral Palsy
Little is currently known about how physiotherapy services are received by adults with CP, therefore a collaboration of researchers from Brunel University London and The Royal College of Surgeons in Ireland have launched this survey. Any adult with Cerebral Palsy from the UK and Ireland is eligible to take part. The main…
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Need help figuring out if I have mild cerebral palsey
Hello,I am 27 years old. I am a twin who was born a little early and weighed 3 pounds. When I was born they kept me in the hospital for a few weeks and my mom told me they were worried that I might have had cerebral palsey. That's all I know about that. My whole life I've had a learning disability. Growing up I was known…
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We are looking to talk to parents about medical negligence
Are you the parent of a disabled child and currently going through the medical negligence process? Are you able to help? We are looking for parents to test Scope's medical negligence advice. Please contact me on richard.luke@scope.org.uk
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Car seat for more than 18Kg
Hello everyone, my son (CP since birth) has 3 years old. We have currently a 360° car seat Maxi Cosy, which is super helpful. You just need to turn the seat, facing you and put your child in. Convenient especially when your child is enable to sit/crawl/stand/walk. But this car seat is for less than 18kg. Do you have any…
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Maxitram withdrawal
Hey all. I have been taking maxitram 400mg daily for past 4 years with relation to chronic pain. I am in the process of tapering off them and have had a lot of progress. Currently at 50mg daily at night. I am in a lot of pain and i am having terrible troubke sleeping. Max 0-3 hours per night. Past two nights i have had…
