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Hi I'm karenP2021! I'm a full time carer to a 6 yr old, and am struggling with her violent behaviour
Hi I’m Karen full time Carer to a Beautiful little 6yr old girl with ADHD,SPD, attachment disorder,GDD, and possible autism. I’m starting to really struggle with her violent & aggressive behaviour .
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Hi, my name is Loren! My son Daniel has CP, and I'm looking for advice on choosing a nursery
Hello, I've known about Scope and used their online advice for a while, but am just joining the forum now. Daniel is 2 and a half, and we're moving house so looking for a new nursery. Last time we didn't have a diagnosis and his needs weren't all that different to other children his age. It would be great to hear any…
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8 month old with no diagnosis yet.
Hello my name is Louise. I had twin boys in June last year and one of them suffered from lack of oxygen during birth causing brain damage. We were told the most likely out come would be spastic CP but to what level we don’t know. His brain damage was severe but so far he is doing well. At the moment we can see he has a…
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teenager with anxiety
hi there I am new to the site and have a 14 year old daughter with cp. She is experiencing a lot of anxiety around school work as she struggles to keep up with what the school are setting for her. She was like this before lockdown as well. She struggles with friendships and is feeling very down. Does anyone have any…
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Hi, I'm RachelBee! I'm struggling to cope with my son whilst dealing with my own mental health
I have a lovely son called Robin who is 5 and who has autism and intellectual disability and goes to a special school. I've also got a 9 year old daughter who is undergoing an assessment for ADHD and autism. I've been struggling a lot since, well, before the lockdown if I'm honest. Looking after Robin has been incredibly…
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Reaching out to parents of Teenagers transitioning
Hi There I am just about to start the process of preparing my son for post 16. Its a minefield and I don't know where to start. He has CP, quadriplegia, epilepsy and severe learning difficulties and he doesn't cope well with change. I am just wanting to hear some of your experience with this process, good or bad and what…
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Is there a way of contacting NHS England about the vaccination list?
We've asked our GP surgery if our son is included in the latest vaccination list (ie adults under 65 who have underlying health conditions) and they've said this List is compiled by NHS England (using data from the surgery). The surgery would not discuss further. So, does anyone know of a way of contacting NHS England…
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Friend for my 6yo with CD
Hi, my 6 year old daughter has cortical dysplasia with a monoplasia of her right leg. She is desperate to make a friend who wears a splint like she does. I know it's difficult in the current climate but does anyone know of any resources for disabled kids to meet people like them? We live in Yorkshire. Thanks in advance.
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Advice on how carers are paid
Hi, I am trying to find advise for a client who is living with am acquired brain injury and paralysis. He has live in care and additional domiciliary support visiting. Currently the carers are provided weekly petty cash to support daily needs. However, we would like to change over to a contactless payment system to protect…
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Can't send my child back to school until had covid vaccine
I'm in a difficult situation and wondered if anyone has any advice? Son has complex additional needs and has EHCP so entitled to school place at mo. Can't send him to school though as i have underlying health issues and also unpaid carer for elderly parents in clinically vulnerable group, so worried son could bring it home…
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Toys for 2 years old that not talk or able to do simple task
Can someone suggest which toys to use in the Golden our with children 2 years old that still not read, talk, not able to do simple task, any idea? Thank you
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Hi, I'm a mother of 4 High Functioning Autistic adult children plus I have MS, anxiety, arthritis
I'm a mother of 4 High Functioning Autistic adult children plus I have MS, anxiety, arthritis and other ailments? But, I remain somewhat positive about life in general...well trying to?
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Advice for parent re Universal Credit application for Aspergers son
Hi - my son has Aspergers, Klinefelters Syndrome and other conditions all of which result in him not leaving the house ( for around 3 years ) . He receives PIP which has just been increased after re-assessment, and is seen (virtually at the moment ) by a worker from the local authority adult social care team. We have been…
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Autism parents in Swansea Area
Hi, I live in Swansea, and I’m divorced. I’m not from here and don’t know any people or parents of children who have autism. My son is 6 and has autism. He was non verbal but because he’s been in a special school they where able to teach him to pecs. I’m just wondering if there are any other parents in Swansea in the same…
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Help with my 15 year old son
Hi, I am a father of 6, one of my boys who's a teen (15), has ASD + ADHD. He has social interaction and emotional difficulties and currently attends a special school. He has never had a good relationship with his siblings, he is very jealous if I show them attention or care. ( doing normal dad things ). He has a volatile…
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Marfan Syndrome
Hello, I need some advice please, my 16 year old grandson has been diagnosed with Marfan, he has a video consultation with a heart specialist in early February, he has curvature of the spine and an indentation in his rib cage, letter received today from this specialist says he may have to wear a brace for six months or…
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Information Sharing
I wonder if anyone else gets totally frustrated with almost every organisation or company, refusing to allow me to speak to them on my husband's behalf, because they don't have a power of attorney on file? The health services in England are so fragmented now... I have sent the power of attorney to a number of "NHS"…
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Carers Wellbeing COVID Fund
Has anyone got any information re the Carers Wellbeing COVID Fund? Thanks
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Hi, my name is Dreambig82! I'm a single mum to a child with autism and ADHD. I want to chat
I'm a single mum to a 9 year old child with autism and adhd just trying to find information and chat
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Are you disabled and pregnant?
We have an opportunity for any disabled mums-to-be who'd like to share their pregnancy story with a disability magazine. If this sounds like you, and you'd be happy to talk more about your experience, the support you've received and any wisdom you can share with others, let us know :) Leave your comment below and one of…
