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no help from anybody
Hi, I have a 35 year old daugher with autism learning difficulties, anxiety and depression and get no help from anybody.
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who needs to sign the back of my son's max card?
Hi my max card for my son arrived today but I'm not sure who needs to sign the back of it is it me or my son?
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son is being treated abnormally
I am the mother of [edited by moderator] my 31 year old son who is being treated abnormally by the wheelchair service!
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Why isn’t there more help and support out there?
I am dyslexic, so is my husband and our Son has just been diagnosed at the age of 16 AFTER his GCSE’s. We had to pay £300 to get a diagnosis and after reading the lengthy report he should have had extra time in is GCSE’s and printed on purple paper. He is now training to be an Aviation engineer and in his exams he has been…
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how do other people cope?
Hi just joined my daughter is blind due to multiple sclerosis also has other health issues, just wondering how other people cope cos she’s struggling keeps saying she’s no good to anyone ?
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son is non verbal
Hi saw the article about being non-verbal. My son Sean is 20 and non-verbal, great difficulty using Eyegaze
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feeling lonely
Hi Everyone :-)
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Counselling: would you prefer someone with experience of being a parent/carer of a disabled child?
Have you tried counselling? Are you thinking about it? Hello - my name is Emma West, I am an experienced counsellor who is just launching myself as an Online Counsellor. I have a disability myself and my son has the same disability as me - what I'm interested to know is whether I should be marketing this aspect of myself?…
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Daughter's birth
My name is Hasina and in 2017 my daughter suffered a server brain injury at birth leaving her parshly blind and deaf I wanted to ask if any one else's child suffered in the hands of NHS please
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I care for my husband
I care for my husband who has had two strokes he now has vascular dementia
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My son has Polymicrogyria, and Duchennes Muscular Dystrophy
My son has Polymicrogyria, and Duchennes Muscular Dystrophy. My wife and I care for him with the help of our beautifull daughter who is 3. Harvey is just 13 months old and is suffering development delay. Luckily, there are very supportive people and organisations out there! We hope to make life as comfortable and fun as…
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Mum of 6
Just want to say a big hello to everyone, I’m a newbie and a mother of 6 amazing children, 2 of which are disabled. I hope that I can contribute well to this community and also receive support and advice. ?
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Parent Carer
I have Multiple Sclerosis, and I am ParentCarer for my 17 year old son who has SpinoCerebellar Ataxia Types 1516, 28, and 29. I also have a 14 year old daughter, who is able bodied. Oh - and I’m a lone parent!! ????????
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Son refused PIP with a diagnosis of aspergers from age 15
Hi. My son was refused a PIP after the initial assessment and we have not had any further support or anything at all. Just concerned that he is going to need extra support whilst at uni in Sept. What can I do as a parent he will soon be 19.
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I need some advice for daughter's flat feet
Hi ?, im joining your group as im looking for some answers/advice about my daughters flat feet. Long story, short At 2 years old podiatrist said come back at 7. At 7 took 2 years to get appointment. At 9 podiatrist gave insoles that get updated yearly. Feet are still flat as a pancake. Hips, knees ankles super flexible and…
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Use of term "severe mental impairment" by councils
Hello - I was shocked to receive a letter from my council which said to claim the 25% council tax discount my son, who has a learning disability, needs to provide evidence of his PIP award but also we would have to go to our GP to get him to sign a statement stating that my son has a "severe mental impairment". Does anyone…
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I hope to benefit from this community
My name is Eunice a single mun, I have a daughter who has cerebral palsy, though am not based in the UK i hope to benefit from this community. Thanks
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FREE Wills and Trusts Information Events in October
Hi everyone, I wanted to let you all know about the upcoming free wills and trusts events that Mencap are organising in October in the South West region. These seminars will take place at the following locations: Tuesday 6th October, 12.30pm - 2.30pm The Jury’s Inn Exeter, Western Way, Exeter, Devon, EX1 2DB Wednesday 7th…
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twin daughters with disabilities and special needs
Good afternoon to everyone, I have twin daughters with disabilities and special needs, will be good to talk to everyone
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Anyone live in Liverpool City Council region?
Hi there. We have a two year old daughter with complex needs, both learning and physical. We are currently under Sefon council but are considering a move to south Liverpool, where we’d fall under Liverpool City Council. We are quite happy with the support our daughter gets in Sefton (physio, speech, OT, portage who all…
