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Important News about Universal Credit
Hi I've just been checking the government website, which shows you how much you get now, and how much you will get when universal credit starts. The difference for me will be £410.66 per month. I will get a transitional payment each month for this. When the universal credit goes up the following year say for example it…
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Duplicate Chromosome 15 Syndrome
Hi my names is Conor, My son has a rare chromosome disorder called, Duplicate Chromosome 15 Syndrome. He got diagnosed with this when he was 2 years old, he has now been diagnosed with ADHD and Dyspraxia. He is currently still undergoing tests for Autism also. Has anyone else or their children got this duplicate…
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In need of advice - dysphasia/CP
I really hope no one minds me asking! I have 18 month old twins but am wondering about my girls twin. She has had no developmental delays and has reached all mile stones, she has however been diagnosed with dysphasia which is a bit of a mystery as to why. She walked quite quickly at 13 months but has always struggled with…
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Check out our top sleep tips for parents and carers of disabled children
Our latest tips post is now online, and features eleven 'Top sleep tips for parents and carers of disabled children.' Thanks to Scope sleep practitioners Maxine and Angie, and our community members for contributing their tips.
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Mmm a moment ..
Over past few weeks of belive if been pushed to moments never before experienced not sure if this was anxiety or. Boarding on a bee worried hearts not doing as it should had many emotions in one day alone today from stress to disbelieve to rage uncontrollably angery .. may be all to much sitting in job centre heart began…
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My sons school
I just read that the Headteacher ofomy sons school wants him out, it reads as follows terms of H’s progress, the Head Teacher advised that H does not recall things even after doing them. The Headteacher advised that we need to discuss whether present school is the best provision for H at his EHC Review with the SEND…
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Verbal abuse from my son
I have a 37 year old son ,who has learning disabilities I'm not well myself and I keep getting verbal abuse from my son should I ignore him
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Caring for my family
Hi all
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Multiple illnesses in multiple family members
I was wondering for those of us with chronic invisible diseases/illnesses and also have disabled children or children with chronic/lifelong conditions how do you manage with daily living, finances and all that comes under that umbrella? I have been ill since age 13, I'm almost 43 and have lost every job I've had due to my…
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10 Year Old in difficult situation
Hey there, Im hoping someone may have some advice. Were currently looking after my 10 year old Step-Daughter due to a difficult situation at her Mum's home. She is almost 11 and they are not sure of her diagnosis but have labelled it from birth as a form of Cerebal Palsy. We usually have her to stay every other weekend and…
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School dismissing concerns and not making reasonable adjustments
My son's school have failed to make the reasonable adjustments I asked for at the start of secondary school- due to my own diagnosis of aspergers and his autism prognosis, I specifically requested that the school contact me directly by phone or email to say that there was a note coming home or to notify me of…
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Sleep
My son has adhd/add he has trouble sleeping normally wakes up through night has night terrors but now he has not been asleep at all since Tuesday and i don't no what to do
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Destructive behaviour
Just looking for advice regarding my non verbal son who has a severe learning difficulty. We are finding his behaviour at home quite challenging as when he's tired or bored he slams doors opens and closes drawers, knocking things of table and counter tops. Also mashing his body off different pieces of furniture. He laughs…
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Any support groups near Barnet?
hi. Does anyone know of any parent support groups in or around BARNET. many thanks
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Feeling bullied by professionals
5years ago i became a single mom of 2 after 6years of DV I moved with my children and asked for social assessment as my daughter 3years old had server autism the workers gave my address to their dad who moved him self in after a year of abuse he had me arrested for DV lol i had to leave my house 2months then he beat me…
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Trying my best for my son
Hi .my son has bipolar but won't take his meds. The Pip process has heightened his condition. He's kept sedated with Valium. I have written posts on this before but in the wrong section. I am four hours away from him and can not go near him whilst he's like this. Doesn't sound very supportive but believe me when I say I…
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after weeks of waiting decision after esa reassessment
after several weeks of waiting for the decision for my esa reassessment the brown envelope dropped on my door mat i started panicking its took me over hr to open it but they have kept me in a support group which now i am very pleased just thought i would share this with everybody today xx
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Newish diagnosis - son not coping too well.
Hi, I am a mum of 3 teenage boys. My middle son had a birth injury has a diagnoses of dyspraxia, dyslexia, hyper mobile joints, mild ASD, sensory processing disorder, visual perception problems, mild congenital cardiac disease and resolved orthopaedic issues. He has always had these problems, is upbeat, positive, hard…
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Hi, my name is Bluebell2015!
Hi! I'm a Mum to a lovely little girl who had HIE2 at birth. We are currently on the road to a cerebal palsy diagnosis as she has low trunk tone and high in her ankles. All in all, she's amazing and lights up my life!
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Hi, I am a concerned gran
I have full time care of my gran daughter age 18 and has cognitive disabilities, global delay, autism, epilepsy etc. She attends an sen school in post 16. I have concerns for my granddaughters right to be treated the same respect as any other mainstream 18 year old as far as it is possible. Just this week her communication…
