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My little sister
Hi guys/girls, I am new to this forum so welcome to you all :) . My first topic is about my little sister who is 7 and suffers from pda. One of the issues we have with her is that she will not zip her jacket up when it's unpleasant weather outside. We don't want her to get ill from being out in the cold rain so we always…
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Adult daughter has JME epilepsy which has seriously deteriorated, finding it hard
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more…
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Hi, my name is Tigermoth42!
Hi everyone, looking forward to chatting soon
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sex as release of day to day pressures
Hi I am new here and do not know if this is ok to post here as i am a carer as well. i hope it is. I have been my wife's carer for a long time now and we have always had an active and good sexual relationship. She now has been in remission of cancer now for 12 month and also suffers from mental health problems, but still…
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Bereavement and Parish Nursing.
I joined here after reading the article on bereavement , my colleague Jackie Lincoln and myself are Parish Nurses working from North Shields Methodist Church and support our 7 Methodist Churches in the North Shields & Whitley Bay circuit, as well as supporting the Churches, members and attenders we do outreach work for…
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I am a parent of a disabled adult - the next phase of her life by trying to get her a job
Hi I am a parent of a disabled adult. She is 22yrs old, diagnosed with learning difficulties. Wecare just about to start the next phase of her life by trying to get her a job.
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Searching for a diagnosis for my son
Hi I’m new to this and on a lengthy road to a diagnosis for my son. It’s hard to find answers and get the right support so thought I would try here. Jayden has severe developmental delay,sensory problems,low muscle tone,problems feeding, involuntary movements and it goes on and on were waiting to see a group of…
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Help with my son
Hi, I’m not sure where to start, but we have 13yr son with moderate learning difficulties, high anxieties, self harms, very angry and swears. We took him to A&E last night as threats to harm us. Is in mainstream school on a very reduced timetable. Im finding this so draining any advice, support encouragement would be very…
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Struggling with possible cp diagnosis for my 19mth old
Hi all, I don’t know if this is right place to write this. I oringally went to my doctors as my little boy couldn’t seem to straighten his legs, always stood bent knees, sat bent kneaded and slept with bent knees. He was sent for X-rays an referred to physio. Xrays were clear but it was when we had our first appointment…
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Sleep struggles
Hi. My son is about to turn 3, has GDD, possible ASD, SPD and rarely sleep through the night. I have no problems getting him to sleep, though he won't fall asleep until around 8.30-9pm then will wake up at any time between 11pm & 5am - usually just once, but he will be awake for about 2 hours. Then he's up & ready for the…
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Looking to chat with other parents of disabled kids
Hi im Hayley I have 5 kids 2 of which have disabilities one has juvenile idiopathic arthritis and the other has attention defeceit hyperactivity disorder and Tourettes syndrome would appreciate some advice and just to talk to other parents going through similar problems with hospitals etc.
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Overwhelmed after a stroke
Hi all I'm new
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What would you find helpful? Hospital visits...
Hi guys, A quick introduction... I am a support worker on a general paediatric ward. I work closely with children, with and without learning disabilities, and am looking for ideas to improve our service for the Children AND parents!! My 14yr old daughter is doing a sponsered bungee jump in a couple of weeks to raise money…
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I feel guilty
I have lots of ailments and the pain is horrendous.i live alone but my 2 children and grandchildren work but they really aren't rock. I always feels burden to them and think it's so unfair they have to do so much for me.they have never had a problem with me . But I feel so guilty that they have to do so much for me . I am…
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Patient and public involvement in research study
Dear community, I am a postgraduate student at Imperial College London. I am conducting my MSc dissertation at the Royal Brompton Hospital with children and young people with Cerebral palsy. I need to apply a questionnaire on how they perceive their treatment, but I would like your opinion on whether this questionnaire is…
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Help me please
Dear god I am losing the will to live, my eleven year old daughter has just had her hundredth tantrum this week. Kicking, lashing out, spitting. She is very tall and very strong. My husband is still up there as I’m sobbing down stairs. We have four hours respite a week from this and have a two year old son. Help us please!…
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How to raise awareness?
Hi, I'm Isabelle. I'm 16 and I want to raise awareness for my disabled brother dan who i look after. Hes 24. He has several disabilites such as cerebal paulsy, epilepsy, a shunt due to meningitis which altered his CSF as a baby and he broke his neck at 6 years old. I've started him an instagram page in hopes to make…
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Support for my sister - what can I do?
Omg, where do I start.....? My sister has haemeploega (Not sure about the spelling) after a hit and run accident nearly 50 years ago My parents have kept her Molly coddled and won't hear about any help for her in terms of physio or any kind of walking aid, they've basically kept her more disabled cos it's easier for them…
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Early years SEN
I have a boy who is nearly 3 who has a speech and language delay. I am also looking at schools at the moment for next year and am wondering if he is likely to get a statement of SEN and if so how? Thank you
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Hints or tips to increase calorie intake?
This query is from a community member who wishes to remain anonymous: When caring for an elderly person who has little appetite and is losing weight, does anyone have any hints or tips to increase calorie intake and help them gain some weight? I care for someone in their 90s and they are eating so little despite offering…
