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Moved house, trying to find out who my son's EHCP care worker is
iv been trying to find out who the case worker for my son's EHCP is for weeks and nobody gets back to me since we moved house we're under a different bourogh and a different worker in being told I can change his school without talking to the case worker but I don't even know who that is I don't know what else i can do
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Kinship carer for 2 nieces
Hello. I am a kinship carer for my 2 nieces. (Age 6 and 7) youngest diagnosed autism, eldest diagnosed ADHD. 5 and half years of no support, help or assistance from anyone. They're beautiful children but hard work. And especially as a single person I find no time to enjoy the things I used to. I found out about this…
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Parent at lose for where to turn
My son is currently having a assessment for adaptions to our home through disability grant the plans are not taking his full potential into account at moment he is only 3 and we've been told he will walk with support the adapions do not take this into place I'm fighting against the plans is there any organisation for…
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Wish I could have some answers. Struggling
where to start... My gorgeous boy is 12 months old at the end of this month. Things have never been straight forward when he was born he was admitted to neonatal as wouldn’t feed and his blood sugars had dropped very low. I noticed his hands were doing a weird jerky shaky thing. Subsequently he was jaundice and had…
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Daughter hasn't been diagnosed, but I know something is amiss
i have signed up in the hope someone can relate to what im saying. my daughter (6) has not been diagnosed with anything but i know somethings a miss, she has major anxiety with everything and anything( food, people, places, school) she has coeliac symptoms yet blood tests come back negative, i mentioned ibs as she still…
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Tips and tricks on bringing up a baby whilst being disabled
I recently started a blog I would love to share with you. https://www.facebook.com/thewheelsonmum/ My aim is to make the content I wanted when I fell pregnant, tips and tricks on bringing up a baby whilst being disabled. If that's something you'd be interested in please do check it out. If not please don't worry! I also…
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Power of attorney
Hi, My daughter is about to turn 18 and it has been recommended that I be given power of attorney to manage her money/ benefits and affairs etc. I understand the concept, but don't have a clue about the details. Would anyone be able to give me some links to begin exploring please? Should I take legal advice? I'm completely…
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Should I give up work and become a full-time carer for my baby?
I am a wife and mother to a gorgeous 18 month old baby boy he recently had an assessment with the peadiatric specialist team as he can’t hold his head up yet, Crawl sit or stand he now has a list as long as well let’s say a piece of string of appointment with various specialists I’m finding it very difficult to cope with…
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Emotion support for carers
My son is now 7, he was born with multiple conditions and its been hard, but the good news is most of his conditions are managed and supported and school is collecting evidence for the ECHP so now i'm just looking for a little support in dealing with my side as a carer. It's difficult dealing with the behavioural bits and…
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Caring for my adult daughter is heartbreaking
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more…
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Three chest infections in three months
has anyone had three chest infection in three months . Have been told they will not resuscitate you if heart stops
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4month kids development
My 4 mont son is used to keep left hand fisted most of the time, otherwise ok. What may be the problem?
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My little sister
Hi guys/girls, I am new to this forum so welcome to you all :) . My first topic is about my little sister who is 7 and suffers from pda. One of the issues we have with her is that she will not zip her jacket up when it's unpleasant weather outside. We don't want her to get ill from being out in the cold rain so we always…
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Adult daughter has JME epilepsy which has seriously deteriorated, finding it hard
I am the sole parent of an adult daughter with JME elipepsy. It started when she was 16 ish but she managed to complete school and University and running a business. In the last 18 months or so she has seriously deteriorated and can no longer work. We have done the consultant thing and he is great but there is nothing more…
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Hi, my name is Tigermoth42!
Hi everyone, looking forward to chatting soon
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sex as release of day to day pressures
Hi I am new here and do not know if this is ok to post here as i am a carer as well. i hope it is. I have been my wife's carer for a long time now and we have always had an active and good sexual relationship. She now has been in remission of cancer now for 12 month and also suffers from mental health problems, but still…
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Bereavement and Parish Nursing.
I joined here after reading the article on bereavement , my colleague Jackie Lincoln and myself are Parish Nurses working from North Shields Methodist Church and support our 7 Methodist Churches in the North Shields & Whitley Bay circuit, as well as supporting the Churches, members and attenders we do outreach work for…
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I am a parent of a disabled adult - the next phase of her life by trying to get her a job
Hi I am a parent of a disabled adult. She is 22yrs old, diagnosed with learning difficulties. Wecare just about to start the next phase of her life by trying to get her a job.
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Searching for a diagnosis for my son
Hi I’m new to this and on a lengthy road to a diagnosis for my son. It’s hard to find answers and get the right support so thought I would try here. Jayden has severe developmental delay,sensory problems,low muscle tone,problems feeding, involuntary movements and it goes on and on were waiting to see a group of…
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Help with my son
Hi, I’m not sure where to start, but we have 13yr son with moderate learning difficulties, high anxieties, self harms, very angry and swears. We took him to A&E last night as threats to harm us. Is in mainstream school on a very reduced timetable. Im finding this so draining any advice, support encouragement would be very…
