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Struggling
Hi, my name is Jo. I have a 12 yr old son with cerebral palsy, epilepsy, severe learning difficulties and pretty much paraplegic. But he is happy and generally healthy, for that I am grateful. It’s not him that’s struggling, it’s me. I have always been so strong and practical about life and being a parent/Carer but just…
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Being made homeless
Hi there, Me and my daughter are being made homeless on the 11th off March. My daughter is a Looked after child which means another local authority share parental rights. We left foster care on November 2017. We moved into a house when a Moving Out Off Care company took on the tenencey agreement and now there telling us to…
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Drowning
hi I am a single parent, with spine issues and have had many surgeries to find myself still in pain, I also have a boy with Spina Bifida, and hydrocephalus, and lots of issues due to these, plus others not due to these, and a daughter who struggles with us both. I recently totally lost it, the world just crashed in on me,…
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I would like to connect with other parents/grandparents who are raising a child with special needs.
Hello everyone I have a grandson Logan. He is 4yrs old. Logan has Cerebral palsy. He is wheelchair dependant. I would like to connect with other parents/grandparents who are raising a child with special needs. I could really do with some support if I'm honest. I love Logan very much but do feel very lost at times. Xx
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Family and financial issues
I’m a Mum/Carer to my 3 kids 16,22 and 24, they all have different Autisms as well as other disorders, syndromes and Mental Health issues. I myself also have Mental Health issues. CPTSD, severe Anxiety, moderate depression and Ocd. As well as Fibromyalgia, Arthritis, MES well as other Health issues. I divorced 7 years ago…
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Motor tics and vocal tics
Hi currently i am.fighting for my.own disability , i have recently been diagnosed with nuphrotic syndrome, i have fibromyalgia, type 2, hypothyroidism, depression,sleep apnea, and god knows what else , and my case is at apeal , but its my son im.asking for again recently diagnosed with motor tics and vocal tics can we get…
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Asperger 11 year old boy, no support and struggling to cope
My son is 11yrs and has been diagnosed with Mild Aspergers ADHD. Due to diagnosis being mild I get no support for my son from anyone. I also have another child of 9 yrs and am a single parent. I have given up my bedroom so my son can have his own space and now share a room with my daughter as we are not entitled to be…
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C-section vs natural birth when you have a disability?
i have CP and I don’t know which is best from a disability point of view- it would be useful if I could hear your experiences ?
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Carers allowence and universal credits
hi, I was working but I have to finish to care for my gran. I get £64 a week carers and I’ve recently found out about universal credits and I get £94 a month from that. For some reason this doesn’t seem accurate. My petrol to get to my grans every day takes up my weekly cost and the monthly uc is £94 so that doesn’t last…
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Power of attorney
Hi, my names michelle. My son Jordan has a severe learning disability... need some advice about how to go about power of attorney and also not sure what it’s called but it’s the other legal thing to do with the medical side of things... and also wills and how to protect there money
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My 12 year old daughter has anxiety
I'm new here, Our 12 year old beautiful daughter is not attending year 7 at school her anxeity is extreme, its heart breaking to see, she is pyhiscally sick and goes all faint, yet each morning I wake her up she gets dressed for school, but can not walk through the gates, I have gone through these feelings, frustration,…
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My son
Hello i got my son's pip paperwork today On the pionts system he got enhanced rete for mobility but got 6 for daily living needs Ive looked at the pionts he got and the things i have to do for him have not been taken in to consideration Over all he got 6 pionts The system is a joke
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Global Developmental Delay and violent behaviour
Does anyone out there have experience of a teenager with GDD? We are seriously struggling to cope with her aggression, violence and swearing. Any tips would be greatly appreciated
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Deescalating my son's violent behaviour
I am absolutely at my wits end with my son’s violent behaviour. CAMHS have said he doesn’t meet criteria for ADHD or Autismhowever they have considered a second opinion. It is mostly at bedtime he is just exceptionally violent throwing things punching, kicking biting head butting etc and he blames us for it. We are only…
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No respite
Our son is 47, cerebral palsy from birth, we are late 60s now. We have enjoyed respite care for many years but an episode at the only respite care home on offer two years ago led to a hospital stay, wrong diagnosis, and extreme trauma for the family. We were told he was likely to die. And we rushed back from our long…
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I feel so run down trying to keep others happy
I feel run down with iam trying to keep down a part time job make sure my son is ok and happy he's got ashburger syndrome he's is 32 years old he's a bit of a nightmare he brakes things he's swears me he has tantrums. . It's just hard work
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Fighting to get the right services for my son
Mother of 4, nan to 4. Been fighting to get the right services for my 13 yr old son but just keep hitting walls. Now hoping to pick up tips from others who have travelled the same road.
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Have you had children after you child with CP?
Hi all I'm the mother to an amazing 6 year old with right sided hemiplegia and still relies on me quite a lot. Have any of you had children after your CP angel and how did you make it work? Thank you! Rae
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My daughter isn't happy in the hospital
Hello, I am the Mother of an Adult Autistic learning disabled Girl who has been placed in the Priory hospital in Pontypridd miles from home, she has been there begging to come home for almost a year.
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Carers
Hi does anyone know how you go about getting money for someone looking after you .
