My son has Spina Bifida

darren89
darren89 Community member Posts: 1 Listener
edited December 2018 in Families and carers
Hi I’ve just found out my son as sb my missis is 5 month pregnant and it is a servey case I would like to get sum info and hear from ppl who has or dealing with this plz cos I just dnt want the doctors to influence me thanks 

Comments

  • Oscarej11
    Oscarej11 Community member Posts: 4 Listener
    Hello, I don’t have sb but I have fnd which has a lot of similar symptoms.. what is your son struggling with in particular, I’d like to reassure you if I can. Sounds like life’s very complicated for you at the moment but please be assured that we, as human beings, can get through way more than we realise.
  • Richard_Scope
    Richard_Scope Posts: 3,638 Cerebral Palsy Network
    Welcome to our community and good to meet you. Am I correct in thinking your son lives with Spina Bifida? We have lots of members of the community who will be keen to help. Also here is the link to the Spina Bifida charity. I hope that helps?

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,765 Championing
    Hi @darren89, and welcome! 

    It's great that you're searching for information and making sure you're as well prepared as possible. Do check out the Spinal Bifida charity linked above by Richard, and if we can be of any further assistance, do let us know.
  • April2018mom
    April2018mom Posts: 2,865 Championing
    Welcome to the community!!
    My son has Spina Bifida as well. His particular type was spotted during a routine scan. This group can answer questions and give good advice as well- https://community.babycenter.com/groups/a3825/spina_bifida_kids