Parents and carers
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

Losing parental responsibility

mumofjademumofjade Member Posts: 1 Listener
edited November 2018 in Parents and carers
Hi,  my daughter had cerebral palsy and epilepsy as well as learning difficulties.   She turns 18 next month and I've been made aware that I'll loose parental responsibility for her! I feel confused, concerned and heartbroken! I have no idea what this means and I'm the only person who knows my daughter and I don't want outsiders making decisions for her.  Can someone please explain  what happens,  or point me In the right direction for advice?  Many thanks michelle x 


  • Ami2301Ami2301 Community champion Posts: 7,164 Disability Gamechanger
    Hi @mumofjade welcome to the community! Sorry to hear this, was this decision made by a court?
    Community Champion
    Disability Gamechanger - 2019
  • JennysDadJennysDad Member Posts: 2,308 Pioneering
    Hello Michelle @mumofjade and a warm welcome to you. Good to have you with us.
    I'm very sorry that you are struggling and we'll try to get you relevant advice. I'm going to tag our CP specialist @Richard_Scope and I am sure he will get back to you as soon as possible.
    Don't hesitate to keep in touch and to tell us anything more that you think we might be able to help with, or just to chat.
    To make sure of contacting the person you want it is useful to tag them as I have tagged Richard above. My tag is @JennysDad
    I will look forward to getting to know you better.
    Warmest best wishes to you and to Jade,
  • Richard_ScopeRichard_Scope Community Team Posts: 2,623 Scope community team
    Good to meet you. I can see that this is a very worrying time for you. Could I ask who told you that you will lose parental responsibility for Jade? I will research this and get back to you as soon as possible.

    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • Richard_ScopeRichard_Scope Community Team Posts: 2,623 Scope community team
    Hi again @mumofjade
    I have found this information through Contact for Families with Disabled Children
    I will of course keep looking for relevant information.

    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger

    This is because when your daughter reaches the age of 18 in the eyes of the law she becomes an adult in her own right and the legal position on making decisions changes. The parent loses automatic rights to make decisions about their "child".

    To change this and take over responsibility for her and to continue to make decisions then you'll have to show that she doesn't have the mental capacity to make decisions for herself. You'll need a solicitor to act on your behalf. A very complicated procedure and not really something a forum could advise you further about.

    If she claims benefits then you can of course become her appointee for this purpose. This will mean that you will manage her benefits and claims for her. Be responsible for reporting changes, filling out forms etc.

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
  • NataszaNatasza Member Posts: 2 Listener
    When your child turns 18 they become an adult and you will no longer have the right to make decisions on their behalf. This refers to health or financial decisions. Including accomodation. When that person does not have capacity to make their own decisions, these will be made "in their best interest" by either health or social care professionals. It would be unusual for them not to seek  your input in making these decisions but ultimately they would be made by the professionals.
    However,  you can apply to the court of protection and ask to be appointed a legal guardian by the court for that individual. This way you will retain the right to make important decisions rather than them being made by professionals. I'm not sure that you need a solicitor for that, but you can research this online.
    Best wishes 

  • SteveESteveE Member Posts: 52 Courageous
    Good luck. Do try to ensure you have the final say. Most professionals will be sensible but one or two will put their views first and try to force their way. You are likely to always know best and you are by far the best qualified and the most professional (even if you have no "diploma"). Be strong.
Sign in or join us to comment.