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Any other disabled parents?
Hi, just wondering if anyone else has a disability and kids- mine are primary and secondary school ages. I'd love to connect with people who are in the same position as me. I'm feeling pretty lonely right now!
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Therapy grants and help
Hi everyone I've tried to search as much as possible before asking on here. I'm a carer for my children with ADHD and autism. I am autistic and also have ADHD. I have finally found a talking therapist I connect with and has really helped me after just one session! I want to continue seeing her but financially I'm not sure…
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Social Services Care
Hi, I have had a lot of problems with the Social Services Care Assessment Team, I have been waiting for an assessment to re-employ PAs for 3 years been using care agencies as my 2 PAs either left or had to leave through their health problems struggled to re-employ new PA's. I was told in December 2024 that if I want to…
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Daughter Likely To Be Diagnosed With POTS
My daughter has an appointment next month with a Cardiologist and is likely to be diagnosed with PoTS, according to her GP and the Dr in A&E. Has anyone got any advice as she is suffering with both pain in most of her body including chest and exhaustion and is having to take time off work. We are dreading the diagnosis.
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Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers
Part One - Disability Price Tag - DLA Information for Parents and Carers Part Two - Disability Price Tag - Tips and Guidance for Applying for DLA As we're focusing on the disability price tag of raising a disabled child this week, this post talks about the transition from Disability Living Allowance (DLA) to Personal…
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Carers allowance suspended
hi my daughter receives high care and low mobility and I work one day a week! I was advised to apply for carers she under 16 no esa or pip had letter to say I was entitled and was expecting first payment today! Nothing called them said claim suspended no notes so no idea why he’s filled report in :(
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Over payment after person I care for going on holiday.
Hi everyone. I was a carer for my elderly neighbour from June 2024-jan 2025.as you can see I was not a carer for long so I really Don't know about benefits and things because I have always worked. Thing is my neighbour went on holiday in Dec 2024.I said to the gentleman do we have to notify dwp about this. He said no its…
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Charity suggestion
Hi everyone. I'm looking for a charity that helps supply garden toys for children. I stumbled across one a while ago but can't seem to find it again now 🙄 Does anyone know of a Charity that can help? Looking to apply for a special needs swing. Thanks in advance 👍
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11 year old that has severe anxiety and is currently being assessed for ASD/ADHD
Hello everyone new to this group. I am a single parent to an 11 year old that has severe anxiety and is currently being assessed for ASD/ADHD. I'm struggling everyday especially with her school and getting her there. It's so hard especially when she has meltdowns, I feel hopeless and like a useless mum most of the time.…
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Social services assessments
Not sure if this is wrote place to put this but can anyone help I have a number of conditions that affect me includes severe mental health, fibromyalgia long covid and a dislocation shoulder injury, I have a ot assessment and a go letter stating that arm movement is restricted in right arm due to injury, many years ago and…
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Hello!
Good morning all!! I've just joined this group in hope to find information, support and a sense of community. I am a mother of the most happiest, cheeky, determined little boy who just so happens to have bilateral CP, bilateral PVL and global developmental delay. None of his diagnosis stops him or hinders him to be the…
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EHCP- I don’t know if daughter needs one!
hi everyone, A bit of background…my daughter is 7 years old. She was seen By a consultant who felt she had ADHD was going to await school questionnaire and then diagnose. He retired by the time it got sent back she was then passed onto an ADHD nurse, whilst the score scored high for inattentive adhd, she scored borderline…
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Divorce help/info
Hi, I was wondering if anybody had any advice for me. Please be gentle. I'm on PIP and have been for years, I've been married for 5 and live with my mum and my husband - both who work full time. My husband and I are looking at getting a divorce, uncontested. I cannot afford the pay for the full divorce and he's been…
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Care charge
hey there everyone I was wondering if you could help me out I have a question about carers my mom has carers that come in 4 times a day and she has to pay for the whole hour even though they stay for 20mins this has resulted in me taking a 3grand debt in my name for her and now she owes 6 grand obviously she can’t pay this…
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International Women's Day - Celebrating Disabled Mothers and Mothers of Disabled Children
Part 2 - Navigating Motherhood With A Disability with Sarah Part 3 - Challenging Attitudes Towards Mothers of Disabled Children with Jenna It is International Womens Day this Saturday and so in the leadup to that, this weeks focus is going to be on celebrating disabled mothers and mothers of disabled children. Motherhood…
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Parent Survey - Talking and Thinking About Disability in Education
This sounds like a great opportunity for parents and carers to get involved in😀
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International Womens Day - Navigating Motherhood With A Disability with Sarah
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Three - Challenging Attitudes Towards Mothers of Disabled Children with Jenna As part of celebrating International Womens Day on the community this week, this is an interview with Sarah who is a Child and Family Specialist on Scope Helpline This…
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International Womens Day - Challenging Attitudes Towards Mothers of Disabled Children with Jenna
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Two - Navigating Motherhood With A Disability with Sarah For our final part of our week long celebration of International Womens Day, this is an interview with Jenna who is a mother to 2 disabled children. We hope this will help shine light on…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Hi, my name is tired_mum! Hi, hope someone can give me some advice please. My 11 year old son...
Hi, hope someone can give me some advice please. My 11 year old son has been diagnosed with autism and has never really slept well. Over the last 4 months he has not slept much at all, we didn't sleep at all last night. He does not let me and my husband sleep as when he can not sleep he wants one of us with him. He gets…
