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Exhausted
Just tired and needed to let off steam. Adult son (19) has epilepsy. It's getting worse - he's had to leave university as can't live away and wasn't in local one. Is back home but seizures getting worse - now 2am and I've just dealt with another one as he's usually has then when sleeping. he wears a wrist alert but must…
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Hi, my name is TJH_Fields69! Daughter transitioning to adult services
Hello there. I'm not sure how much I will use this resource but thought I should sign up, I am naturally quite private but there comes a time when everyone needs to vent. My daughter, currently transitioning to adult services, has been under S-CAMHS for a number of years. She was prescribed fluoxetine aged 14 and that…
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Son with autism, adhd, pediatric anxiety, pica, sensory processing disorders
Single mom age 43, son with autism level 2, non verbal, adhd non attentive, pediatric anxiety, pica, sensory processing disorders very large in size age 9. Main concern for me is he never leaves the house, We need to live not just exist. In our area of Northern Nevada we have limited community resources, no friends and…
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Need some advice
My partners daughter who is 7 has cerebral palsy and recently has had a growth spurt making her leg muscles very stiff and painful. We are waiting for physiotherapy but is there anything else we can do to help her.
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NHS in 2023
My Dad - aged 91 has spent the last 5 days in hospital after a major bowel operationHe was moved to a normal ward, yesterday after spending the first 4 days in High dependancyHere is the ward that he was in last night - a corridor - along with another 4 beds A total lack of privacy and decency..as well as lack of toilet…
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Looking into applying to be a Deputy for my son under Court of Protection. Are there disadvantages?
I'm looking into applying to be a Deputy for my son, under the Court of Protection process. My son is 50. And I'd be pleased to hear about the experience of other parents who have gone down this route. I can see the advantage of being legally seen as a decision maker but (along with the rather hefty fees, upfront and…
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Parents Connect autumn workshops
Our workshops are now ready to book. To refer in, please go to: www.scope.org.uk/family-services/parents-connect and fill in the form.
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My son has autism and I can't get him to leave t he house anymore. It's affecting all of us
Hi looking for some advice please have a 7 year boy with high functioning autism i cant get him to leave the house anymore its the school holidays now so my other children are seriously missing out there all just trapped in the house all the time i have no help desperately needing advice im a single parent with no support…
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Hi, my name is DeafBlindMom! I was reading about the child who is ripping her clothes
Hey Everyone, I'm new here. I was reading about the child who is ripping her clothes. My child does a similar thing. She is 18, DeafBlind, and has CHARGE Syndrome. She is very autistic like in most of her behaviors and functions at about a kindergarten level. She is nonverbal. She communciates behaviorally and with basic…
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Discover the work of the National Bobath Cerebral Palsy Centre
Did you know Cerebral Palsy (CP) is the leading physical disability of childhood? Here at The National Bobath Cerebral Palsy Centre, we are proud to be at the forefront of CP treatment and training in the UK, with over 65 years of knowledge and experience. Learning more about the condition means you’ll be better able to…
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Are You A Carer?
Do you
care for someone with a disability they were born with or developed in their
childhood? Is the person you care for at least 40 years old
and of Black or Black Mixed Heritage? We
would love to interview you and hear about your experience of caring for a
Black person with a lifelong disability and ageing well.…
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Shoes that fit orthotics ? Help!!
My son got his Foot Orthotics today, I haven’t a clue how he will ever be able to wear shoes?! There so big and bulky? What do you buy for your children? He is only 2.5 years old so small feet x
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Conduct disorder/ oppositional defiant disorder
Hi all, does anyone has experience of children with conduct disorder/ oppositional defiant disorder?
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Summer holidays
I am so ready for my 6 year old going back to school next Tuesday he has adhd and asd I’ve had a ton of things planned for during the holidays but haven’t been able to do half of it due to his behaviour 😢 His latest trait has reached a whole new level he constantly follows me everywhere in the house can’t even go to the…
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Hi, my name is carlajo94! Sleep issues with my child
Hi my name is carla and I wanted to join scope to try and get some help with sleep issues with my child
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Struggling new mother, expected healthy baby, disabled baby
Hello, My daughter is 6.5 months old and its been torture since day 1. I was expecting a healthy baby, the birth was complicated, she had very bad jitters, wouldn't/couldn't feed, I struggled to breastfeed for 11 weeks, she lost weight, I was pumping after every feed so my freezer was full and reluctantly topping up with…
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Education
Do hope this is in the correct section I am a carer for my nephew who has severe adhd it began when he was 10 years old he was in foster for a year prior I asked to be special guardian shop and he came to me I had visited him all ok the fosters said he on meds and goes to school likes footy and sent updates of things they…
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Needing advice please how do I coax my 17 year old daughter outside
This discussion was created from comments split from: My son has autism and I can't get him to leave t he house anymore. It's affecting all of us.
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Amy advice on respite care for SEN child
Not sure if anyone will be able to help but I’ve already been awarded 26 nights of respite for my son, he’s 10 years old, attends school, he has diagnosis’s of Autism, Sensory Processing Disorder, ADHD, non verbal, absence seizures, he has quite complex behaviours. We’ve been trying to get him respite for 5 years now, I’ve…
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suffering from sensory processing disorder and been bullied
I am 20 years old, I am Jack I have sensory processing disorder and some special needs recently take us tennis as a hobby, been teased by some lads around my age about the underwear I wear pants/slips not boxers never worn boxers I need to be wearing very tight and stay up type underwear like slips/pants due to my…
