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FND
Hey just looking for a penpal with FND, i have been recently diagnosed with FND and would just like to know someone who understands it, we can help each other out with tips on how to deal with the symptoms. I am always here for a chat.
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My son has Guillain-Barre syndrome. Has anyone ever been through this?
Hi I’m new on here my son 19th years old has been struck with GBS was wondering anyone on here been through this.
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Hi, my name is TobyandDexter! Is this a normal symptom of diverticulosis?
Hi there! I have had mild diverticulosis for 9 years. However it is now classed as acute chronic diverticulosis. I started to struggle with it yesterday, having been ok for a few months. Last night I woke up in a sweat, ran to the bathroom and felt as if I would faint. So I lay on the floor till it had passed. It was very…
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Hi, my name is Woody1950! I experienced side effects after my jab
My AstraZeneca booster l received on Sunday November 7th 2022,l experienced headaches,feeling sick,gastro,dizziness,and had the shivers,found it hard to get warm. couldn’t sleep.This all came about one and half days after my jab.
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Hey :) I'm visually impaired, and also use a wheelchair
I'm Julie, currently living in South west Wales. I have multiple long term physical health issues from my neck down to my toes, and I'm also visually impaired. I do use a wheelchair when my spine and/or joints force me too, but I don't find it an easy task using a manual wheelchair with a white symbol cane.
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Obstructive Hydrocephalus
My neurosurgeon has diagnosed me with 'pre hydrocephalus'. It's on its way. Saw the annual MRI scan and the 1.9 cm pineal cyst from 2018 has grown beginning to block and ventricles have begun to swell bigger. Emotionally, it's a lot. Is it better to know this ahead of time? Knowing this is most likely my future, I feel…
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Stroke and memory difficulties
I had a stroke some four years ago which affected the right side of my body. I am still struggling with feelings of low self-worth, which has been heighted since I was forced out of my job on the grounds of medical capability in May 2022. Whether I am still in denial of my situation, or no, my sense of low self-worth is…
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Hi to all
Hi to all I have to go to see an orthopedic surgoen as I have a lump in my pelvis at the back and also go for more scans as my joint pain swelling ect is getting worse. I have still.Not had my Cardiology Appointment Yet its ridicules. I did go swimming today but I could tell my heart ❤️ rate went right up cus I could feel…
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Hi, my name is Clark0816!
Hi there, just trying to find my way around, I am employed but have been in sick leave for 4 months due to a Neurological disorder. Still waiting to see a neurologist, need to try and start planning for the future. Any advice much appreciated. My speech has been badly affected and my cognitive and coordination slightly…
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I've been told that my sister and children have 15q 11.2 microdeletion. Do I need to get a test?
Hello, I have just been told that my sister and children have 15q 11.2 microdeletion. Do I need to get a test ?
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Hi, my name is GillianSally! Does anyone have any experience of flying with a spinal injury?
Hello - I've signed up here to try to help my sister who is in Australia. I live in UK with our 93 year old mother. My sister Sally has NMO and is paralyzed waist down after spinal injury. Mum and Sally so want to see each other again and I wondered if anyone had experience of flying with a spinal injury. They so want to…
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Please tell me there’s someone else here with Fowlers Syndrome
I just feel alone with it and really am hoping there’s someone else with it on here
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Hi to all
I have been to collect my new hearing aids today the ones I had to pay £85.00 pounds for as my other ones kept falling off its not right I had to pay for them in the first place. Can I claim this money back at all as I am not working. Not very happy at all. Sparklebright63.
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ME/CFS
Any advise, I have just been diagnosed with ME/CFS
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Hi, my name is lainey23! I'm about to have a total hip replacement. Any tips for recovery?
Hi everyone. I’m about to have a total hip replacement. Any tips for recovery and while in hospital? I’ve already had my knees done a few years ago. How does this compare.thanks
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Bowel Incontinence
Bowel Incontinence"Not the Most Pleasantest of Questions" After four months of virtually constant bloody diarrhoea I managed to get an emergency G.P., appointment. I'll give the NHS their due they were brilliant. I was put on the Seven Day Suspected Cancer Pathway. Ten minutes later I had three tubes of blood taken out my…
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Hi everyone. My friend's partner's mum is trying to stop him from taking his epilepsy medication
I'm not sure if I'm in the right place here, but I'm looking for some help for a friend as she'd worried that her partner's mum is trying to stop him from taking his epilepsy medication. They've been told by both a doctor and a paramedic that her (my friend's) partner has got epilepsy. She has epilepsy herself as she's had…
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Is there any help other than PALS when doctors make mistakes?
My doctor prescribed tablets they shouldn't have for my tremors because I also have kidney disease. My GP has explained my kidneys could not process them so they went back into my system and have damaged my nerve endings. I now have severe peripheral neuropathy. I phoned PALS who would not help unless I was prepared to…
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Hi, my name is annk! Is anyone else living with acalasia?
I am in the middle of tests for acalasia, I'm suffering a year and a half now and I have lost over 34lbs, I am waiting on a manometry test that seems to be taking forever, my symptoms aren't always the same , I've had botox in my esophagus which was great, but now after 10 weeks it seems to have worn off , and I'm drained…
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Who else has Drop foot
How many people on the forum have this condition, how do you cope with it any hints or tips would be much appreciated . THANKS
