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Neuropathy in the feet
I am hoping I can get some advice, thoughts or recommendations. My husband had a near fatal motorbike accident last May . He survived the inevitable and throughout his ongoing road to recovery, his GP told him he had diabetic neuropathy as he is a type one diabetic and his blood sugars were not easy to control whilst he…
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CPAP machine
Hello all, I was diagnosed with obstructive sleep apnoea in October last year and my appointment has come through to be fitted with a CPAP machine in a few weeks. I've been warned it could take as much as 6-8 weeks to get used to it. I just wondered what other peoples experiences using the machine was like. Also, if you…
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Hi, my name is bella57! I’m brand new here but after some advice from others going through the same.
Hello, I’m brand new here but after some advice from others going through the same if possible? I have Spina Bifida, kyphosiscoliosis, a badly tethered spinal cord and issues with my bladder and bowel which all cause chronic pain daily and I was given a hospital bed at home and have been bedridden for the last 6yrs for…
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Flexible Cystoscopy
I had a flexible cystoscopy - in 2023 - without any form of pain relief - no "gel" and definitely no Entenox - I was in so much pain during the procedure that I almost blacked out !! The results were clear - but the consultant at the post procedure meeting told me that he would contact me in 3 months to update me - he…
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Exciting research project. Ulster University. We want to hear from you. Your Voice on Pain.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Care Support Plan. Do I sent this information back to the Ombudsman or challenge the social again?
Hi, My son has a Care Support Plan. The council decided to take funding away before the annual assessment was completed. I took the case to the Ombudsman and won, The council had failed. Now, the support plan is back and running, but the council/social will not support the Physiotherapy my disabled son desperately requires…
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Hi, my name is tonykaren64! Hi I am due to have this implant very soon I have undergone 16 spinal...
Hi I am due to have this implant very soon I have undergone 16 spinal operations now have spinal surgery failure this is my last option I have been told it can cause very back electric shocks is this going to make my sciatica worse as I suffer with bad spasms I have copd and arthritis any feed back would be brilliant thanks
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Hi to all
I would like to say Thankyou for my Silent night throw i am going to use it later on. I went back to hosp yesterday I couldn't take my urine input sheet and output urine sheet back as I didn't find it till after I came home. I have another appointment in 2 weeks time. Still in servre pain *& more bleeding they R saying…
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Radiofrequency ablation
I have been offered Radiofrequency ablation on my lower back I wondered if anyone had had experience of this and was it worth it?
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CIDP AND KNEE REPLACEMENT. Did you have any problems? Suggestions welcome.
Hi. I have CIDP & am getting IVIG monthly. I need a knee replacement & am wondering if anyone on here with CIDP has had a knee replacement. Did you have any problems? Any suggestions? Thanks
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Hi, my name is Traceyyyy! I’m new here and had emergency CES last August...
Good morning everyone, I’m new here and had emergency CES last August. I have a claim in and a chiropractor did a manipulation on my neck and hips on 24 July op was August 12 next morning after manipulation my legs were in severe pain lower back pain hip pain I to groin , heavy legs, worsened bilateral sciatica . Can it…
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Any tips on coming to terms with new acquired disability?
Hey Just wondering if anyone can offer me advice on how they have come to terms with an acquired physical disability? (I need a tilt and recline wheelchair out of the house now, can't walk far or sit upright). I think to myself "what is, is what is, so don't add to your suffering by comparing it to what you had before or…
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Disabled due to Cauda Equina
I am disabled due to Cauda Equina im now classed as partially paralysed with all the pain and other problems that go wit severe nerve damage now classed as cauda equina syndrome. Tbis came on suddenly its hard to come to terms with the change from being in a good job that i loved to living in constant pain and relaying on…
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Scoliosis!?
hello, Sorry, I am new here and I don’t know if I’m even posting in the right place 🙈 About 10 years ago I had an unrelated xray that picked up a “slight scoliosis” nothing more said, I only noticed reviewing notes on X-ray and I forgot about it. Fast forward a few years, my natural stand is very apparent, I have uneven…
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Medicine - Medical Neglect
This is precisely the **** I had to go through, being bounced around, left to fend for myself, until someone from the hospital stepped in and went down hard on them coming at them with medical neglect both against GPs as well as pharmacies, but not until I was sweating tears and blood trying sort this **** out for months,…
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Hello 👋 I’m Paul. I’m 48 and have been struggling with my health after I had COVID
Hello, I’m Paul. I’m 48 and have been struggling with my health after I had COVID in July 2020. I was diagnosed as having Long COVID a few months after I contracted it. Then more and more problems came. Since 2020 I’ve had persistent abdominal pain on the left side, persistent nausea, chronic fatigue and brain fog. After a…
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Orthopedic or Neurologist DDD
Just a question to anyone with degenerative disc disease. Are you being seen by an orthopedic specialist or neurologist? I've several issues going on with my lumbar spine that has included trap nerves, bulging discs and radiculopathy affecting my limb. I've been under the care of a neurologist who has performed several…
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Hi, my name is lynneb69! hello all, I have recently been diagnosed with fibromyalgia ...
hello all, I have recently been diagnosed with fibromyalgia and was looking for support
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Hi, my name is Ache! Hi, I have L5S1 and have been in chronic pain since last September...
Hi Everybody
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Hi, my name is BusyBeeBakes! I have recently been diagnosed with Graves Disease
Hello, I have recently been diagnosed with Graves Disease, and whilst coming to terms with this, I now realised why I have struggled with work so much in the years it has taken to get to the bottom of my problems. I don't know where to go for advice or help with the struggles I'm having in coping day to day with the…
