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Does anyone else suffer with complex regional pain syndrome?
Hi my name is Dee I have complex regional pain syndrome I’ve had this condition for nearly 2 years does anyone else suffer from this condition
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I have still not had my Cardiac assesment
Hi to all, I have still not had my Cadiac assesment since been reffered still getting chest pain and pain in my left collarbone breathlessness still and lightheadedness I have a doctors appointment for 20th of July. I am pouring with sweat now. I cannot belive how lackadaisical the nhs are.they R so slow. I am now doing…
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Anyone else?
Hi everyone. First of all sorry if my English isn’t perfect! Im writhing here from Sweden praying and hoping that maybe someone out there recognize my symptoms. I’m a 60 year old woman and I’m been having this “sickness “ for over 20 years , no doctor finds anything wrong whit me . I will try to describe my symptoms for…
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Left leg paralysis, no pain, nerve damage, has anyone had similar?
Hi I'm new here. I am reaching out in the hope someone has had a similar experience. 18 months ago my toes felt numb on my left foot. Then the top of my foot and I couldn't curl my toes. My foot then dropped. I was referred to a neuro who said it was most likely a lumbar issue. During the past 9 months I have had a lumbar…
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Hi, my name is Ron24!
Hello, I’ve been looking for a forum to see if anyone has heard of or has had any of the following symptoms i have. Drs do not know what is wrong. Every 12 hours like clock work i have severe shaking and chills, that last for about 2 hours. Following that i get severe sweating last for about an hour. The remaining time of…
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body pain, joint pain, neck pain, fatigue and rosacea but negative for lupus and arthritis
hi, im a new member looking for someone with similar symptoms two years ago i suffered an intense hedache and neck pain, days after i developed joint pain. It lasted 6 months, then dissapeared then it appeared again. For the last 8 months i was okay, with no pain or fatigue, but the pain is here again. i have a stiff neck,…
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Epilepsy
EPILEPSY I would appreciate if you could highlight EPILEPSY. It feels like that no one understands epilepsy,
and that epilepsy has been forgotten. I would like you to allow people to voice their
true opinions in regards to epilepsy, how people truly cope with epilepsy, and
the different types of seizures that people can…
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Genetic counselling
My consultant has recommended genetic counselling and I don't really know what this involves and my head is a mess and I wondered if anyone has been through it? My daughter was born 6 days ago and we've been told she has albinism although it's pretty obvious. I'm a complete mess with it and extremely hormonal and I just…
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B12 deficiency
I have fibromyalgia. I have been in terrible pain since march, tired and just feel not right. I have really painful feet, hands, neck, hips. Bloating, needing to wee loads, headaches. Just strange things all at once. My doctor did blood tests for RA but they appear normal. But I have raised white blood cells and b12…
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Invisible conditions, finally seeing myself 🫥
I have finally properly sat and read my Ed psych report on my disability. For too long I wanted to ignore it (easily done when you give it to universities or jobs and they just stick it in a filing cabinet) and I see that I cannot think in a crowded noisy environment. Part of me knew this already, but when people say…
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I need to have a stoma bag
Hi to all, I am going next week for an assesment to have a stoma fitted for bowel problems and also need to go back to urology suspected urological cancer need to have a cytoscope. These will be hard to deal with will take me a long time to get used 2. Sparklebright63.
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strange tic
Hi, Im 48yrs and have had tics ever since I was a teenager, it was manageable most of the time except when I got really nervous. Now years have gone by and It doesn't affect me that much. one thing that has always baffled me was when I was around one of my friends who didn't have tic disorder. whenever we were in close…
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Middle left back pain for years please help!
Im 30 years of age. For the past 4 or 5 i have had a back pain about a inch or two below my left scapula and roughly an inch away from my spine. It hurts when i push on the front ribs. Hurts also when i sit down and and stretch/ reach forward. Feels like my my whole left ribcage is out whack. It also hurts when i breathe…
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Possible inflammatory Spondyloarthropathy
hi hi everyone my story is quite long but I have posted in the chronic health issues discussion. i have fibromyalgia/ME and osteoporosis of my spine and shoulder arthroscopy I think it’s called one shoulder lower then the other,the Spondyloarthropathy If it is started 13 months ago severe back pain and spasms I have…
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Mark Allan ADHD - My story
On 7th August 2021 I was diagnosed with Attention Deficit Hyperactivity Disorder (ADHD). To be honest, I cannot really describe how I feel, what I do now have is an explanation for many of the paths my life has taken. It is a life full of piles of unpaid parking tickets, reminder emails from companies, promises made to…
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Dangers Of Omeprazole (PPI's / Proton Pump Inibitors)
From January to July 2019 I became very ill, [removed by moderator] Doctors at several hospitals in Leicester did not know what was wrong, they assumed it was gall stones and kept sending me home time after time, eventually one clever lady Doctor figured out that the problem was Omeprazole. Because I had been taking…
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KLEINE LEVIN SYNDROME ( KLS )
Hi all at scope. I see I missed the discussion on rare diseases :-( but would like to say that I have been diagnosed with KLEINE LEVIN SYNDROME ( KLS ) . It s a neurological sleep disorder, which has been referred to previously in the media as 'sleeping beauty syndrome' but believe me....that is a far cry from the reality…
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FND
Does any body know about Functional Neurological Disorder?
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Hi, my name is Ash1972! New here. I have Parsonage Turner Syndrome
I recently read a post by a member re Parsonage Turner Syndrome, a condition which I have had since August 2019. Im lucky to be free from the acute pain when the symptoms was at it high. Extremely crippling. The effects targeted my upper right chest and tricep, with 40 percent loss. Though im working on getting bk in shape…
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Undiagnosed ataxia-like condition
Hi there everyone. I'm posting on behalf of my sister who three years ago suddenly developed a severe loss of balance (she is unable to walk or stand upright unaided) and slight impairment to her speech. She had a similar, less severe instance of the same thing a few years before that from which she recovered. All…
