B12 deficiency

sunshine1981
sunshine1981 Online Community Member Posts: 234 Empowering
in Rare, invisible, and undiagnosed conditions
I have fibromyalgia. I have been in terrible pain since march, tired and just feel not right. I have really painful feet, hands, neck, hips. Bloating, needing to wee loads, headaches. Just strange things all at once. 
My doctor did blood tests for RA but they appear normal. But I have raised white blood cells and b12 deficiency. I went on Tuesday for a follow up blood test after taking tablets for a month and it appears they haven't worked because I got a phone call last night asking me to come today for another blood test. Could this be pernicious anemia. Do you have inflammation with this condition

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 62,943 Championing
    Hi @Broreb1981 sorry to read that you have been in so much pain. Your dr is doing the right thing trying to get on top of what's going on.  I know it's easy to say that's its best to wait for the blood test results and try not to worry untill then. Your gp will have the answers to your questions, when you next see them with the results. I wish you well with your results. 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    Hi @Broreb1981 :) I'm sorry to hear that you haven't been well recently, and that the tablets you were given might not be working. 

    We're not able to give medical advice here on the community, but I do understand that you're just looking to hear from others who may have been in a similar position. 

    You can read a little bit of information about pernicious anaemia on the NHS website, though I imagine your doctor would be able to provide some additional information on this if it's relevant to you. 

    How did your blood test go on Friday? 
  • sunshine1981
    sunshine1981 Online Community Member Posts: 234 Empowering
    Thank you I understand. They are checking my b12, leukocytes and something else and now they have mentioned ceolic. I'm so confused and no one is telling me what they are actually doing. I think I should call them tomorrow. I'm scared it's cancer 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    It can be really worrying when medical professionals don't communicate with you too clearly @Broreb1981. If you're concerned, it could be worth ringing them tomorrow to see if they can give you any more updates. Did they say when they'd talk through the blood test results with you? 
  • sunshine1981
    sunshine1981 Online Community Member Posts: 234 Empowering
    No they didn't. I'm going to ring them tomorrow it might put my mind at rest 
  • Tori_Scope
    Tori_Scope Scope Posts: 12,464 Championing
    That sounds like a good plan @Broreb1981 :) 
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    edited June 2022
    I have vitamin B12 deficiency and was diagnosed with it probably about 7 years ago, maybe longer. If it's caused from poor diet you'll be given a short treatment of tablets.
    If it's not caused by diet then you'll need treatment through B12 injections, this is how i'm treated for mine. When first diagnosed i had the injections a few times a week for the first couple of weeks. After this it was every 3 months, my treatment is ongoing and will be for the rest of my life.
    In my personal experience with this condition is it's never caused inflamation but i certainly know when i'm due to have the injection because i start to feel quite poorly. Thankfully within a couple of hours of having the B12 injection i do start to feel better.
    Please note that this is by no means medical advice because we're not allowed to give that. This is just my personal experience.

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