My occupational therapy story

Behi

Hi guys, first thanks for being here, I really appreciate it. I saw that I've been posting one issue of mine, every year. but believe me or not you are the only people I can talk to freely about my Hemiparesis problems.

Since 2 weeks ago, I've started my occupational therapy again (after 2years). But the problem is that whenever I start doing my exercise and focus on my hand, I become sad, depress and all bad emotions and sorrowful memories that you can imagine, come to my mind which I start crying or after resisting not to cry at clinic, I feel anger, hopelessness. I know it is all predictable and I'm dealing with it anyway, everyday. but I feel the urge to talk to someone about it and I have literally noone and feel damn alone to be honest.

Do you have any practical solution for me?

Thanks

Mary_Scope

Hi @Behi

It is good that you are reaching out to the community, you can always talk to somebody here, we are a friendly bunch understanding of disability and all the complex feelings that can alongside it!

Do you journal? Sometimes if I have a lot of things I need to say but I don't have anybody to talk to straight away I will write it all down, even if it doesn't make 100% sense in that moment in time but it makes me feel better.

There is a wonderful CP network on the community who may be able to offer more support @SaraC_Scope

SaraC_Scope

@Behi

Hi it's lovely to meet you. I completely understand those emotions you describe when putting your physio into practice. I also have hemiplegia and recently started physio, but for my other hand and leg.

It sounds as if, when you focus on the part of your body that has been a challenge, it highlights the limitations. This can bring about feelings of sadness but that's ok and releasing those feelings through tears is a healthy response. @Mary_Scope has mentioned a good way of processing your thoughts. I would also recommend a journal.

Scope runs the CP Network which you are welcome to join. We meet on the second Wednesday of each month and it's a safe space to meet with others who have lived experience of cerebral palsy.

I've had three sessions of physio and carried on the exercises at home. It has been tough, but I've recently noticed small improvements. This has shown me the hard work is worth it and those feelings of frustration are becoming moments of celebration.

Please keep in touch. I'm not sure if you are already a member but Facebook has the Cerebral Palsy Adult Advice UK which is a great place for support and advice.

@SaraC_Scope

Cerebral Palsy Specialist Cardiff

Behi

https://forum.scope.org.uk/discussion/comment/953680#Comment_953680

Hi dear Mary

I hope you are doing fine. Yeah Journaling is wonderful, I do it almost everyday but sometimes I feel full. I need to speak up about it. But I agree with you about Journaling

Thanks

Behi

https://forum.scope.org.uk/discussion/comment/953696#Comment_953696

Hi dear Sara, thanks for informing about the cool community you have guys, really great .also, congrats about your improvement dear(practice makes perfect ☺️).

But unfortunately, right now I'm not living in Uk to have address... Although, if I could be a member, it would be a great opportunity for me.

thanks for kindness