Invisible Disability Week & Blogging about my CP

lillymay88

Hello everyone, I hope you’re all doing well 

I recently learned that it’s Invisible Disabilities Week. Back in September, I finally plucked up the courage to start writing about my Cerebral Palsy in a blog. I wanted to share it with you all, but wasn’t sure how or when to do so.

I’ve incorporated Invisible Disabilities Week into my latest post on Substack (@ravenmariec88). I would really appreciate it if you could take the time to read what I’ve written and let me know your thoughts. You can also follow along by subscribing for free using your email address.

Thank you so much 

Lucy_Scope

Hi @lillymay88,

You can share the link or copy it over ☺️

Best wishes,

Lucy

Mary_Scope

Hi @lillymay88

This is great news! Good on you as well for being brave and doing something you've wanted to do, that isn't always easy! How are you finding blogging so far?

You can copy the URL from Substack and paste it in a comment or a post on the community and this should allow us to click on the link and read the posts directly😊

I look forward to reading it😄

lillymay88

Thank you 😊 At first I was very scared but as I started writing it has gotten easier each week. What helps is planning ahead what I want to write.

https://open.substack.com/pub/ravenmariec88/p/the-signs-were-always-there?utm_source=share&utm_medium=android&r=dtwk3

Rachel_Scope

You have a lovely way of writing, I really enjoyed it. It was a good glimpse into your journey so far 😊 Please keep going with it I'd love to read more.

kitsmum

Very insightful and well written. How did you get to the point of understanding rather than overcoming? I have a plethora of invisible illnesses and life is hard and I am very limited. Well done on blogging. Keep going.

lillymay88

I am still learning in regards to my CP, with my Dyslexia I was battling against it for so long till situations made me realise there are positive elements to it 😊

Ostia

Thanks for that, so interesting. How did you find out about the cause of your symptoms, was it through a brain scan? I thought that CP was always visible even if mild..

I love your phrase about understanding rather than overcoming, much more compassionate.

best wishes

trouble5316

I only found out i had mine after a work accident. Told me i had eight incurable disabilities not worked since my twenties 53 tomorrow

lillymay88

I found out while waitressing after graduating from University, end of 2014. It was my first proper job (I worked at my university but not many signs presented themselves as I had an office job) and I kept dropping things (breaking them) and tripping up/falling. A colleague was so kind and asked if I was okay and wondered if I had MS (he didn't know much about CP). He encouraged me to go to my doctor to get referred to the hospital to get a MRI scan. With the support of my family and him that is what I did. I got the scan in 2015 and got diagnosed in 2016. 2018 is when I started seeing CP specialists. I left the job in 2015 (moving forward only doing office jobs) and made sure I thanked the colleague.

SaraC_Scope

Thank you for sharing such an authentic piece of writing @lillymay88

Mary_Scope

I really enjoyed reading your blog @lillymay88, it was really insightful so thank you for sharing it! Your voice and stories are important so please keep going!