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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Join our special online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Our Next Welcome Café is Monday 14th of July 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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A Tribute to Jonathan Bryan
Jonathan Bryan was an extraordinary young man whose courage, creativity and unwavering spirit inspired everyone he met. Born with severe quadriplegic cerebral palsy, he defied every expectation placed upon him, refusing to be defined by labels or limitations eyecantalk.net+9goodnewspost.co.uk+9premiernexgen.com+9. From a…
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Looking for Participants
Hello everyone! I'm a Master's student with Cerebral Palsy conducting research on the experiences of young women with physical disabilities. I'm seeking participants who are: -Female -Gen-Z (ages 18-28) -Living with any physical disability (not limited to Cerebral Palsy) -Based in the UK Your voice and experiences matter,…
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Carers Week
A carer is a person of any age who provides unpaid care and support to a family member, friend or neighbour who is disabled, has an illness or long-term condition, or who needs extra help as they grow older. (Carers UK, 2025) I have cerebral palsy and epilepsy; my mum has a dementia diagnosis. Families like ours, rarely…
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BBC Make a Difference Awards in Wales.
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Hen Weekend - feeling a burden as a wheelchair user?
Forgive the slight ramble but I've recently been asked to be part of my best friend's wedding, which includes the hen weekend. I'm a full time wheelchair user (the only disabled one in the group) and while the discussions are all around a party resort in Spain, I can't help but worry I'll be a burden if they're all looking…
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Out Of My Mind’ Star Phoebe-Rae Taylor & Director Amber Sealey On Championing Disability Stories
The Disney+ original movie Out of My Mind, based on the novel of the same name by Sharon M. Draper, follows preteen Melody Brooks (Phoebe-Rae Taylor), a girl with cerebral palsy. Melody has a sharp mind, but due to her being non-verbal and using a wheelchair, she is not given the same academic opportunities as her…
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Join us to discuss chronic lower back pain in adults with cerebral palsy
Next Thursday, June 12 at 1 am BST (British Summer Time) 8 pm ET the MyCP Webinar will feature Julie Stutzbach, PT, PhD and Mary Gannotti, PT, PhD speaking about new research on chronic lower back pain in adults with CP and strategies to improve care through shared understanding of the nature of pain, communication about…
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Parallel Windsor Event
ParalympicsGB has 100 free entries available for challenge events at Parallel Windsor, taking place in the beautiful Windsor Great Park on Sunday 6th July. Participants can walk, push, or run alongside Paralympic athletes and choose from a range of distances—100m, 1K, 5K, 10K, or the unique SuperSensory 1K. There are no…
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British Ice Skating's Let's Skate Project
British Ice Skating's Let's Skate project, launched in 2024 aims to grow the opportunities for disabled people to participate in ice skating. A number of ice rinks and clubs have signed up to the Let's Skate project to deliver new inclusive ice skating sessions. Watch this space as CP Sport are teaming up with British Ice…
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Para Ice Hockey - Sheffield
📣 CALLING ALL FUTURE STEELKINGS 📣 We're always on the lookout for the next Steelkings players to join our growing family! And that could mean you! 😊 On the 20th June, we are running an introduction to para ice hockey for those people who are interested in getting involved in the coolest team sport going! We're particularly…
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Volunteers Week-Celebrating Welsh Volunteers
Volunteers are the lifeblood of voluntary and community organisations in Wales. They are at the heart of a wide range of services, providing support to a huge diversity of people and communities who rely on them. In Wales it is estimated that approximately 938,000 volunteers contributed a total of 145 million hours of…
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Thinking about buying a reborn doll
For years I've always wanted to be a mum and it's getting to me now. Even when I was at school everyone had infant reallife simulator and I never had one. Now it seems that feeling is getting even harder to bare even more than finding a boyfriend. @pooleemily29
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DisabilityPlus Supporting Your PIP Applications with Specialist Reports
Why is a Mental Health Professional's Report Beneficial for Your PIP Claim? Applying for Personal Independence Payment (PIP) can be a complex process. We understand that clearly communicating how your mental health condition, alongside any disabilities, affects your daily life and mobility is crucial for your application.…
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PIP isn't a luxury. It allows me to work and contribute to society
As the government proposes changes to disability benefits like PIP, writer Jennifer McShane, 37, shares how cuts could impact her life with Cerebral Palsy I use my PIP payment to live and work, I'm terrified of the DWP taking it away
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Expansion of CP Network in North Wales
Hi everyone. The CP Network and Cerebral Palsy Adult Advice UK group, are looking at expanding our network meet ups in the North Wales area, allowing more people the opportunity to attend sessions. Please could members in North Wales state which area they live in the comments below. We can then pinpoint suitable locations.…
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Carmarthenshire CP Network
Good afternoon. After the success of our joint Scope and Cerebral Palsy Adult Advice UK Wrexham meet up, I'm working with a small group of people to create a Carmarthenshire CP group. Are there any members local to Carmarthenshire who would be interested in being part of this network? Please comment below or reach out to…
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Lasting Power of Attorney - Finances & Property - Advocacy
This is a really hard for me to write 😔 I am at rock bottom and I’m scraping the sides of the barrel. I have struggled with both Mental and Physical Disabilities ever since my first breath. It’s fair to say that my life has been like the Himalayan Mountain Range and for the last five years I’ve been stuck on the Hilary…
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Should I start maybe thinking of finding a boyfriend online through another community?
Hi currently I'm limbo or rather feel as i am, I've been trying wirh the idea for ages now about joining another online disabled community, but I'm feeling like I can't because I'm too scared of what my family will think and tell me to get off it! Or do I don't for me and **** the consequences. @pooleemily29
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If you can, plan ahead , a success story
I was born with cerable palsy, .My parents were told that I would never be able to read, walk and speak properly. However thanks to their support I managed to overcome most of these difficulties. I started working with a few minor jobs until my early 30s. I was then fortunate enough to find a well paid job, get married and…
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Interested in More Touch and Affection in Your Life? 💛
Are you disabled? Are you non-disabled? Either way—you’re invited to join us in creating something special.We’re building inclusive, welcoming workshops for: People with physical disabilities Neurodivergent people Their friends, allies & curious peers All focused on affectionate touch, consent, and connection.Join Us for…
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Scared
I'm worried that having cerebral palsy a developmental delay and a learning disability. Will cause problems within the community when I don't mean to
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Mental health, Cerebral Palsy & hobbies
Hi everyone, I’m not sure this is under the right topic but I’m really in need of some advice. I have Cerebral Palsy, mental health issues & numerous other health issues. Unfortunately I lost my best friend, my mum a year ago. So it’s now just me & dad. We’ve been through so much in the last few years meaning stress levels…
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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Assets and Support Plan
I'm 27 years old born with Cerebral Palsy affecting mobility. I live will my parents. My parents are planning to buy the house and received Right to Buy Landlord offer. My parents are planning to add my name to this property. But I want to know if the council will count this house as my 'Asset' if my parents add my name?…
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Mental health awareness for people with disability
Hello, I’m William and I’m 31 years old and I have cerebral palsy and dystonia. I have struggled with my mental health for the last few years, especially feeling lonely and depressed. I realised I had to talk to people and even ended up seeing professionals (psychologist) and taking anti-depressants. I’m still struggling…
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Hi, my name is Roughyed1485!
Hi all, I’ve been on here previously under a different username, but took a step back into the shadows. Just call me Count Duckula! I can find things too overwhelming at times due to the many mental health conditions I have, I can be especially Grumpy at times, well saying that I am old - well I feel it and my body does…
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin Fairy®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achieves…
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Creating Awareness
hey ya, I’m fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- I’m based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scary…
