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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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COMMUNICATION MATTERS FULLY FUNDED TRAINING AND DEVELOPMENT FOR AAC USERS
Peer Support & Mentoring Project: CM have funding from the National Lottery for the following training sessions (Zoom): 'Achieving Level 1 in Mentoring Qualification' Tuesday 2nd December 2025 2.00 pm - 3.30 pm: Becky Tyler (AAC user) and Verity Elliott (CM Mentoring Project Co-ordinator) This is an opportunity to find out…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Hi, my name is Zippy1983!
Hi everyone, very old soul here, fine vintage of 42 going on 92. Life long veteran of battling both mental and physical health conditions (The Acme Catalogue has proved useless 💣) Orignally from a small cotton mill town in Lancashire, now living in Middle Earth - I’ve yet to bump into the Fellowship. I am of Scottish,…
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Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
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Hi, my name is Annie015
I'm 38, and i'm a mother of one and live with my partner. I joined the online community so I can chat and discuss with other members whose lives are affected with disabilities and be able to learn more.
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Sudden Unexpected Death in Epilepsy SUDEP
Medical professionals need to be discussing SUDEP with their patients! The leading cause of death in epilepsy is rarely explained to patients by doctors, a grieving father has said. BBC News-SUDEP
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Breaking Barriers with Power Hockey
Ellis Palmer invited me to Greenbank to play power hockey. Greenbank offers a range of inclusive sports including power football, hockey, and boccia. We know moving with cerebral palsy is essential, especially as we get older. But it can be challenging to know where to start or even to meet fellow disabled people. Clubs…
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Invisible Disability Week & Blogging about my CP
Hello everyone, I hope you’re all doing well I recently learned that it’s Invisible Disabilities Week. Back in September, I finally plucked up the courage to start writing about my Cerebral Palsy in a blog. I wanted to share it with you all, but wasn’t sure how or when to do so. I’ve incorporated Invisible Disabilities…
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Consequences of Falls in Individuals with Cerebral Palsy
Please join us to learn more about the Consequences of Falls in Individuals with Cerebral Palsy Next Monday, October 27, at 1 am UK / 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This…
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Meet the Challenge Squad - BBC Children in Need
Last night, I watched the One Show introduce their Challenge Squad for Children in Need. All I can say, is what a great group of people to take on their challenges. I felt emotional listening to their stories. You can read more about them following the link below. Meet the Challenge Squad. Children in Need
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Frailty Index Could Improve Lives of Younger Patients
Researchers at a Scottish university have discovered a measure used to assess the health of older people can improve quality of life for younger patients. BBC News Cerebral Palsy
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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World Menopause Day 2025
To mark World Menopause Day, our friend has written a very informative and helpful piece on menopause and cerebral palsy (CP). For many women with cerebral palsy, ageing can bring its own special challenges, particularly during menopause. “Often, they feel unprepared for the changes their bodies undergo during this time,…
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Join CP Scotland's new AAC Group for Children
📣 Exciting new opportunity for children with cerebral palsy! Thanks to generous funding from The National Lottery Awards for All, we’re thrilled to launch a brand new group for children aged 1–5 years with cerebral palsy, focused on building communication skills through Augmentative and Alternative Communication (AAC). 🎈…
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Need help for my daughter who has Cerebral Palsy
I am in desperate need of some help. My daughter Aimee has Cerebral Palsy and recently had a sore mouth which led to her movement of her tongue to get worse and then her body movements in general. She and I are finding it nearly impossible to sleep. She has upped her Baclofen a week ago to 20mg three times a day but…
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Power chair for tall person
Hi everyone, I am really struggling to know what to do. My Son is a wheelchair user, he is 13, 6ft 3" and still growing! I am finding it very hard to push him because of my own health challenges and it is preventing us from ever getting outside. I've been searching the web for a powerchair that has the seat depth he needs…
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Mental Health Matters
This is a post from The Rosie Jones Foundation, which is doing some important work in the area of mental health and cerebral palsy. This World Mental Health Day, we continue to celebrate this week's announcement of our partnership with Disability Plus. This partnership focuses on providing lived experience-led mental…
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World Mental Health Day and CP
World Mental Health Day takes place every year on 10 October. It’s a reminder of the importance of good mental health and the need to prioritise and invest in good mental health. This year's theme is 'access to services - mental health in catastrophes and emergencies'. The theme highlights the importance of people being…
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Acrostic World Cerebral Palsy Day
A poem by Network CP member Jay for World CP Day Cerebral palsy makes us unique Every day we achieve something new. Remember we are unstoppable individuals will never stop until we reach the top. Every single day we learn a new skill. Being resilient is our biggest strength. Really proud of our accomplishments in our…
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Spastic diplegia at 44
Hello there, my name is Thomas I have just turned 44, and suffer with Spastic diplegic CP, in the last year I have noticed a sharp rise with chronic fatigue both physically, and cognitively, it is causing me to burn out much faster, and is impacting significantly on my ability to work, I currently work 4 days a week, even…
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Forty Years Later: The Viewpoint of Cerebral Palsy from a Sibling’s Perspective.
For World CP Day 6 October 2025. Warning- This article might contain information which some might find upsetting. When parents received a diagnosis of cerebral palsy and epilepsy in the 1970s and 1980s, it was an emotionally and practically overwhelming time. But what if you’re a sibling in this scenario? How does your…
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World Cerebral Palsy Day: a people’s history of CP
From Alex White Writes When I joined Scope’s disabled graduate scheme in November 1994, I knew very little about cerebral palsy. I joined the UK disability charity at a historic time, the Monday after it changed from The Spastics Society to Scope. Early on, I met Bernard, an older man with cerebral palsy who was looking…
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Bernie Smith: Wisdom from a Life Lived with Cerebral Palsy
Trigger warning: this article contains ableist slurs that some readers may find distressing. Bernie Smith got in touch with CP Network to share his story about living with cerebral palsy. Bernie is 88 years old and has lived a life. From being institutionalised, misdiagnosed as “mentally incapable", to travelling and…
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World CP Day 2025!
World CP Day 2025! It's taken a long time for me to accept my cerebral palsy. Now I understand it makes me unique, has given me opportunities I never thought possible, and united me with the CP community.
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World CP Day 2025 and Me
Hello, this is my origin story (of sorts) and the only time I'll use the word 'United' in a post. If you know me, you know why! I'll do it for World Cerebral Palsy Day 2025. I was diagnosed with cerebral palsy at the age of three. It makes the muscles in my arms and legs very tight, which affects my general movement.…
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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PIP why do they make it so hard?
Today we had the answer to whether or not my son was going to be put back on enhanced mobility . They put my appeal letter on the wrong pile! I decided to phone after not hearing anything for five months. it was then that I was told it was on the wrong pile .the argument is because he can walk for upto 200 metres .At the…
