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Ageing well with cerebral palsy: Dr Kirsty Colquhoun and CP Scotland
This webinar, which took place on 25 March 2025, was hosted by our friends at Cerebral Palsy Scotland as part of Cerebral Palsy Awareness Month. The webinar featured a presentation from Kirsty Colquhoun, Consultant Geriatrician, NHS Greater Glasgow and Clyde. Kirsty looked at how cerebral palsy can impact the ageing…
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Share your transport experiences in the National Accessible Transport Survey
You are invited to take part in the National Accessible Transport Survey and share your experiences of transport and travel. We will use the findings to tell the Government, the transport industry, the media, and the public about the state of transport accessibility, and why it must improve, so that disabled people can…
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those with…
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Assets and Support Plan
I'm 27 years old born with Cerebral Palsy affecting mobility. I live will my parents. My parents are planning to buy the house and received Right to Buy Landlord offer. My parents are planning to add my name to this property. But I want to know if the council will count this house as my 'Asset' if my parents add my name?…
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Research into Quality of Life and Physical Activity in Children and Young People with CP
Research Opportunity This project aims to explore the link between physical activity and quality of life in children and young people with CP (ages 8-17). The study involves a short survey where children and young people with CP provide insights into their physical activity levels and well-being. Parents and guardians are…
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Forty Years Celebrating Disabled Artists Across the UK
Let's keep raising awareness during Cerebral Palsy Awareness Month. An artist who has quadriplegic cerebral palsy is one of many showcasing her creativity at a 40th anniversary festival to celebrate disabled and deaf artists. BBC Celebration of Disabled Artists
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Changes to PIP
hello everyone, I submitted my pip review on the 19th November 2024. I had them say in February that they have it. I am currently in receipt of the higher rate. With these awful changes announced by the government, will I still be entitled to what I currently receive? also, with these new changes coming, even if I don’t…
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Meet the Author-Samantha Maxwell. CP Isn't Me and other ventures
Samantha Maxwell-Interview with Sara Edwards-Cerebral Palsy Specialist. Samantha Maxwell from Wrexham is the author of CP Isn’t Me and Disabling Ableism. I caught up with Samantha to discuss the inspiration behind her writing, the impact of her books and what the future holds. Samantha has a mild form of cerebral palsy. In…
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Ageing well with cerebral palsy: Dr Kirsty Colquhoun and CP Scotland
This webinar, which took place on 25 March 2025, was hosted by Cerebral Palsy Scotland as part of Cerebral Palsy Awareness Month. The webinar featured a presentation from Kirsty Colquhoun, Consultant Geriatrician, NHS Greater Glasgow and Clyde. Kirsty looked at how cerebral palsy can impact the ageing process, as well as…
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Ageing Well with Cerebral Palsy: Dr Kirsty Colquhoun and CP Scotland
This webinar, which took place on 25 March 2025, was hosted by our friends at Cerebral Palsy Scotland as part of Cerebral Palsy Awareness Month. The webinar featured a presentation from Kirsty Colquhoun, Consultant Geriatrician, NHS Greater Glasgow and Clyde. Kirsty looked at how cerebral palsy can impact the ageing…
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Hi, my name is Affenpenscher_2!
hi I have a son who is 44 now and he has cerebral palsy. Born with it through lack of oxygen at birth.
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Man with cerebral palsy shares how working with escorts has 'changed his life'
Andrew Gurza, who has cerebral palsy and is a full-time power wheelchair user, has opened up about his experience with sex work and why it's helped to change his life. When it comes to sex work, people's opinions vary greatly. However, one man has recently shared how it has transformed his life. Andrew Gurza, who…
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Are You a Premature/Pre-term, NICU Baby?
FROM NICU TO NOW YOUNG PEOPLE’S VOICE IN RESEARCH Were you in the NICU as a baby? We’d love to hear your story! The Neonatal Medicine Group at Imperial College London is looking to set up a group for young people (aged 17-24) to help shape neonatal research. Why join? Inform neonatal research Share your thoughts and…
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Can My 12-Year-Old Nephew with Severe Cerebral Palsy Get Medical Support in the UK?
Hi everyone, I am seeking advice on whether my 12-year-old nephew with severe cerebral palsy can get medical treatment in the UK. He was diagnosed at birth, but unfortunately, he has never received proper medical care. He cannot speak, stand, or walk.
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How to Achieve Optimum Quality of Life for People Living with Dysphagia
This nutrition-themed blog has been written by Sophia Cornelius, Development Dietitian for Wiltshire Farm Foods, about improving life for people living with dysphagia. An alarming 51% of people living with swallowing difficulties – also known as dysphagia – are at risk of malnutrition1. The physical and psychological…
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Help for a teenager with cerebral palsy learning English as a second language
I would like to know if there is any support available for teenagers who are learning English as a second language who also have cerebral palsy. I understand some people with CP may have motor difficulties with writing by hand, for example. Are there any tools that make writing easier? She may have to do handwritten exams.…
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Naidex: More than a Convention
Naidex 2025, taking place on 19th-20th March at the NEC Birmingham, is more than just a convention—it's a vital gathering for disabled people, their families, professionals, and advocates. While it showcases the latest advancements in assistive technology, mobility solutions, and accessibility services, its true power lies…
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Hi, my name is sunshine93! Hi, I’m a mom of four and I take care of my disabled sister. She has ...
Hi, I’m a mom of four and I take care of my disabled sister. She has cerebral palsy . I have a problem with the housing and I really need help with any advice of what to do. We live in a 3bedroom rented house and joined the house register 2.5 years ago when my sister had a really bad fall on the stairs and since then her…
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Disability self employment migrated to UC
My son has enhanced ADP (formerly PIP) he has cerebral palsy and is limited in how much he can do. He got the severe disability element of Working Tax and has now migrated to UC. They asked him to ask the doctor for info for the jobcentre work coach but he got angry and refused and wanted to talk to the work coach. He said…
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Hi, my name is saadiya!
My baby is cp child
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Living with cerebral palsy and why society’s perception needs to change
Network CP paired up with Media Planet for Health Awareness’ Neurological Care Campaign. The purpose of the campaign is to give a voice to a range of neurological conditions, including CP! We covered a lot in 350 words – from healthcare, ageing, to attitudes. You can read the Article in Health Awareness You can read a…
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New National Cerebral Palsy Football League and CP Cup Sponsorship – Brain Injury Group
New National Cerebral Palsy Football League and CP Cup Sponsorship – Brain Injury Group We're delighted to announce that Brain Injury Group are proud sponsors of the following National Cerebral Palsy Football fixtures, plus the CP Cup held at St George's Park on 10th May 15 March, Salford Community Stadium 29 March,…
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My cerebral palsy and epilepsy journey. Cerebral Palsy Awareness Month
I was diagnosed with right sided hemiplegia at the age of one in 1977. I had my first seizure at the age of two and was diagnosed with epilepsy soon after. In the early days physio was part of my childhood routine, and I accepted it. But as I got older, I noticed people would stare at me when we were out and even though I…
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Motability Scheme Live, Birmingham, 2025
I am considering attending 'Motability Scheme Live' in May 2025. I am particularly interested in learning more about vehicles and adaptions available to disabled drivers. I am hoping to find out more about drive from WAV's. Has anyone been to these events in the past - they were known as 'The Big Event' and 'One Big Day' -…
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Non-Speaking teenager who wrote a book with his eyes says he's 'voice of the voiceless'
A teenager with severe cerebral palsy who wrote a book using his eyes has urged teachers not to underestimate their pupils. When Jonathan Bryan started school, he was given the label PMLD, which stands for profound and multiple learning disabilities. It meant he was placed on a sensory curriculum - essentially early years…
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Hi, my name is CPYogi! I'm 66 with mild CP but increasingly debilitating osteoarthritis ...
Hi - I'm 66 with mild CP but increasingly debilitating osteoarthritis that's severely cut down mobility last 5 yrs. Interested in CP and ageing resources.
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Network CP Featured In The Guardian!
Network CP is proud to be part of the Neurological Health Campaign. I am thrilled to (finally) share that I have written an article that will feature in The Guardian print on 12 March 2025. I will also share the article on Scope's Online Community. This is a fantastic opportunity to raise national awareness of cerebral…
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CP on Morning Live!
Traitors winner Jake Brown featured on Morning Live. He talked about the importance of sports inclusion. As well as the impact of having a hidden disability. You can watch the segment on BBC IPlayer
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Eating and Drinking Ability Classification System for people with Cerebral Palsy (EDACS)
Since 2023, Sussex NHS Trust and Scope have worked together on an Eating and Drinking Classification System for people with cerebral palsy (CP). EDACS describes how people with cerebral palsy eat, drink and swallow using five distinct levels. EDACS is now used internationally. People with cerebral palsy cannot use the…
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New wheelchair
Hi, My son has his new wheelchair and it’s a quickie Qs5x and it’s excellent, however the footrest board is not quite right at the moment. He has CP with spasticity and dystonia and has pronation of his feet. His previous wheelchair footrest boards have been angled back slightly by his physiotherapist when he was at school…
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Why Cerebral Palsy (CP) Awareness Month is Important
Cerebral Palsy Awareness Month, observed every March, is important because it shines a spotlight on the most common motor disability in childhood, yet one that is often misunderstood or overlooked. Here’s why this month matters: 1. Raising Awareness Many people have a limited understanding of what cerebral palsy (CP) is…
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Dr Lin Berwick: The Importance of CP Awareness Month
As a woman with cerebral palsy commonly known as CP, I have battled my way through life for the last 75 years. It is thought that I am probably one of the oldest women with CP, yet I’ve managed to achieve great things way beyond anyone’s expectation. Life at 75 is a tremendous problem especially when there is a great deal…
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Shoes
Hi all, I'm just reaching out because we are struggling, and wanted to see if anyone had any helpful advice. My husband has spastic diplegic CP, and is somewhat unbalanced on his feet, but is able to walk independently. He would love to be able to find a pair of trainers that he could then have adapted. (he has several…
