-
You've Got to be Ballsy to Have Cerebral Palsy
Online Campaign Launch: "You've Got to be Ballsy to Have Cerebral Palsy” Thursday 2 October 2025 11:00-12:00 On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and…
-
NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
-
PIP why do they make it so hard?
Today we had the answer to whether or not my son was going to be put back on enhanced mobility . They put my appeal letter on the wrong pile! I decided to phone after not hearing anything for five months. it was then that I was told it was on the wrong pile .the argument is because he can walk for upto 200 metres .At the…
-
Left Knee Issues
I Have Cerebral Palsy, after 2 days of not doing physio my left knees achey and funny, added to that have been hospital for a while so suspect muscle atrophy. Thing is when transferring its like my left knee cant hold the weight and the pain gets worse as I lower myself. Any ideas?
-
Cerebral Palsy No Barriers for Oxford Student
Maisy Gallagher-Horwood, aged 21, who lives in Shipton-on-Cherwell has cerebral palsy and is a wheelchair user. For years she has championed disability rights and accessible employment opportunities, Now she’s landed a job with Oxfordshire County Council as its special educational needs and disabilities (SEND) media…
-
'She doesn't get another childhood': The lives on hold waiting for wheelchairs
Wren has cerebral palsy, affecting her speech, all four of her limbs and her posture, meaning she needs help with everyday activities. At home, the 11-year-old uses an NHS manual self-propelled chair. It took more than a year to get this chair, well over the NHS's official target of 18 weeks. While Wren's mum, Anna, says…
-
Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
-
World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
-
Hi, my name is Jack1703!
I’ve just recently moved into pershore after three years in Cheltenham and I think I prefer Cheltenham more as it’s more accessible and the people are more welcoming there A lot has been going on this year and I desperately want to talk about it and I can’t think of a welcoming community to be part of
-
Cerebral Palsy and Stigma Study with the University of Surrey
The study has now been published in an academic paper, and I wanted to again express my thanks for all the support that you gave with the project. You have all been thanked in the acknowledgements for the project, as we couldn't have done it without you. Description of study A University of Surrey researcher and 2 adults…
-
Mother Heartbroken Over Parks Poor Accessibility.
A mum says she is "angry, upset and heartbroken" over the opening of a new play park that does not cater for her daughter's disabilities, despite it being described as an "accessible space." Rebecca said there "wasn't anything" her two-year-old daughter Hannah, who has cerebral palsy and is non-mobile, non-verbal and…
-
A stranger grabbed my wheelchair and silently started pushing me
From The Metro Written by Melissa Parker I was completely at the mercy of this man (Picture: Melissa Parker) Wheeling myself around the town centre in July, I contentedly went about my day, running errands. I’d been about to enter a supermarket when I suddenly felt a heavy, foreign weight pushing on the back of my…
-
Get involved in a new physiotherapy game!
We have an exciting opportunity! Please see below to get involved! Hello! We're Aaruni and Pranathi. We made Plia Therapy. It's a digital platform for children with neurological conditions like cerebral palsy. We use games and Augmented Reality to make exercises fun. Our AI personalises these exercises for each child. They…
-
CP Sport's National Athletics and Activity Day!
With just over a week to go, we are so excited to see you all. We have 102 athletes competing this year! Plus, we have a host of other activities and sporting partners attending the day. If you haven't booked onto the free activities yet, please scan and book below or visit our website. With just over a week to go, we are…
-
'I'm the voice for Wrexham fans with a disability'
Charlie Buckland Source from BBC News Behind the newfound glitz and glamour of Wrexham AFC, people like Kerry Evans have acted as a pillar throughout the transition. Previously not even a football fan, she now makes sure no-one gets left behind as the club's disability liaison officer, and is also familiar face on the…
-
Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
-
Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
-
Welsh Disability Rights Plan Risks Failure
The Disabled People's Right Plan, aims to give people more rights across a range of areas in Wales. Key parts of the Welsh government's flagship plan to improve disabled people's rights need to be rewritten, according to the equalities watchdog. Read the story here: BBC Wales Disability Rights Plan
-
🌟 Attention Parents of children with cerebral palsy! 🌟
You have asked, and we have provided! Join our session on Education, Health, and Care plans (EHCPs). Connect through our live Zoom session with SEND specialists IPSEA. They will share general advice about EHCPs. 📅 Thursday, 18 September ⏰ 11:30am until 1pm 🚨 Limited spaces available Very limited spaces available - book…
-
Accessing botox
Hi! I have mild diplegic cerebral palsy. I had botox injections once as a child (now in my late 20s) but since then I have had no treatment/physio/consults etc so don't really know where to start with accessing support or treatment. I've been reading about Botox again and would like to explore this option and/or physio. I…
-
Relationships
Right first off I really don't know how to put this I'm 30 now and everytime i find myself constantly thinking about wanting that special relationship with someone. But I just don't know where to start. I've tried here not dating obviously but deep down I want mite than just a friend. Can you someone help? @pooleemily29
-
Calling All Adults Living with CP in the Island of Ireland!
The team at the Royal College of Surgeons in Ireland (Dublin) are conducting a research study to deliver and evaluate an online exercise programme designed for adults with cerebral palsy (CP). They are inviting adults with CP to take part in this study. Participants will be randomly assigned to one of two groups. The first…
-
Hi, my name is Jude_Cumbria_CP!
Hello everyone, My name is Jude, I am a family advisor for a charity called Cumbria Cerebral Palsy. We support individuals and families who have Cerebral Palsy. I am looking for people in my area to support and wondered if there may be people on here that may not know about us? We offer lots of support including help with…
-
Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
-
UK's first disabled strongman launches mission
From BBC News Alexandra Bassingham BBC News, West of England Claire Carter BBC Radio Somerset The UK's first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen. Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition,…
-
Anniversary of Stoke Mandeville Games-Paralympic Movement. Disability Pride 2025
The Paralympic movement at Stoke Mandeville is celebrating its 77th anniversary today. The first Stoke Mandeville Games were held on July 29, 1948. These games, organized by Ludwig Guttman are recognized as the precursor to the modern Paralympic Games. The anniversary will be marked by various events, including…
-
Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
-
Free transport and advice for disabled people. South of England
Queen Elizabeth Transport Advice Service. If driving is not an option due to a medical condition, disability or age related impairment, the free Transport Advice Service can signpost you to alternative, accessible transport choices. Guidance is available face to face, over the phone or on our website. Our friendly…
-
The world of inaccessible footwear
This month, for our CP Network theme was fashion. We discussed the difficulty of footwear and cerebral palsy. Samantha Sekirsky joined us. She is studying a master’s in Strategic Fashion Marketing. If you wear Ankle Foot Orthotics (AFOs), Knee Ankle Foot Orthotics (KAFOs), or are generally unsteady on your feet! You know…
-
Turning a Mini Passion into a Big Dream
This month, we’re celebrating amazing people in CP Network Meet Sam, 28, from Manchester. Sam runs an art business called sh3dart and has been supported by The King’s Trust Enterprise Programme. He’s even been featured in the London Daily News and on the King’s Trust Blog. Lucy: Hi Sam! Thanks for joining us. Can you tell…
-
Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
-
‘They get more confrontational’: A painter’s self-portraits capture life, and art, with cerebral pal
By Leah Dolan, From CNN Lucy Jones painted her first **** self-portrait at 50. She was in New York with her husband Peter Leach, she said, when he “took a picture of my backside. I thought, ‘Well I don’t look too bad from the back, so maybe I’ll paint it!’” Jones is sitting on a wooden chair the middle of a white-washed…