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Research opportunity: we need your help
We’ve been contacted by a postgraduate researcher seeking to hear from people with cerebral palsy who have studied at university. If this is you, or someone you know (in the UK or US), they would love to hear about your experiences. This will help shape their dissertation. Taking part is voluntary, and you can share as…
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"I didn't even have a drink or a urine bottle." Nina's Law
"I didn't even have a drink or a urine bottle." In this powerful episode, Richard Luke, Cerebral Palsy and Membership Programme Lead at Scope, shares his experience of living with quadriplegic cerebral palsy after being diagnosed at the age of 3 following a negligent birth. It was the shocking reality of a hospital stay in…
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Cerebral Palsy Teens: Sheffield Summer Social
Our next in-person social is the Summer Social in Sheffield on Saturday 4th July. Bowling followed by food. 3:30 pm start. Changing Places facility available. Contribution towards travel costs for anyone outside a 25-mile radius. Last chance to register! Full info/sign up:
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Dystonia
is there anyone else here who has cerebral palsy and suffers with dystonia I’ve been having bad flare ups where I’m locked in for days recently and it’s painful how do you deal with it?
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Breaking the sex taboo: Andrew Gurza
As it is Pride Month, I wanted to highlight a trailblazer in the cerebral palsy community. I have known about Andrew Gurza since my second year of university. I was writing an essay about sexuality and disability. That is when I found #DisabledPeopleAreHot. Gurza created it. I have been a fan ever since. I have mentioned…
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Cerebral Palsy Scotland Community survey 2026
Got 10 minutes to help shape the future? We know completing surveys isn't at the top of your to-do list, but a few minutes of your time can make a real difference. Every response helps us understand what's working, what could be improved, and where we should focus our efforts next. The more people who take part, the…
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University of Surrey CP Link research study
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pip tribunal CAB can no longer represent my son - do I give up?
Hi, my son (20)has a left sided hemiplegia since birth. he has his struggles like most people but he has a positive outlook on life . He has Pip currently daily living enhance rate and mobility standard rate . He used to have enhanced mobility but that has been taken away .I have been helping him to get back the enhanced…
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Student with cerebral palsy 'can achieve anything
Source from BBC News John Ayres A student with cerebral palsy who was told she would never walk or talk is about to graduate in criminology and has recently completed a half marathon. Issy Hart, 22, from Chipping Norton in Oxfordshire is studying at the University of Plymouth and recently completed the city's half…
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Cerebral Palsy Awareness Month "Embracing Identity Through Laughter" Rhys Thorne
I recently had the pleasure of speaking with Welsh comedian Rhys Thorne, whose fresh voice, quick wit and lived experience bring something truly special to the comedy scene. Our conversation explored the intersections of cerebral palsy, LGBTQ+ identity, creativity, and personal resilience. And how humour becomes a powerful…
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'Once I am on the bike it feels amazing'
From BBC News A teenager with cerebral palsy says she is "nervous and scared" but "excited" to be taking on a charity cycling challenge from Land's End to John O'Groats. Chloe Marriage, 17, from Newbury, sets off on her journey on 26 July and is expected to complete the 1,000-plus mile ride on 12 August. Her dad Tom said…
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Challenges of being a disabled parent
Hi everyone my name is Laura and I have cerebral palsy. I have a 2 year old son and am facing the daily challenges being a disabled parent brings. Wondering if anyone else is in the same boat? X
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Protecting the Past for the Future
Visiting the Wellcome Collection in London on behalf of Scope was a real privilege. I was there to support Dr Vicky Long with the important task of categorising years’ worth of Scope documents for a potential exhibition called Rights of the Disabled Child. It was one of those moments where history, activism, disability…
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Understanding and Managing the Emotional Impact of Cerebral Palsy
It is Mental Health Awareness Week. So I wanted to talk about the emotional impact of living with cerebral palsy. Living with cerebral palsy can affect much more than movement. For some adults, it can also have an impact on emotional well-being, confidence, relationships, work, independence and social life. This does not…
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🌟 Are you looking for a free hand dexterity test? 🌟
We are inviting young people aged 12 to 21 years old with hemiplegic cerebral palsy to take part in a University of Leeds research project. This involves simple hand and arm activities in a friendly and supportive environment. The activities are designed to be comfortable, enjoyable, and easy to complete. We also offer an…
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As a disabled founder, I know the biggest barriers aren’t physical
Dr Lucy Reynolds was born with cerebral palsy and says the biggest barriers she’s encountered are attitudinal. Writing for Business Cloud, she says while the key drivers of successful entrepreneurship are often cited as creativity, innovation, persistence and courage, lived experience is something that remains…
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Exoskeletons for people with cerebral palsy are now a reality
Exoskeletons for people with cerebral palsy are now a reality – but there’s still much to figure out Article by Stephen Khan, Editor-in-Chief of The Conversation UK Cerebral palsy is the most common disability that starts in childhood, affecting about 50 million people worldwide. Cerebral palsy can impact a person’s…
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Pride Cymru 1999-2026
Where it began. In the summer of 2024 celebrated 25 years of pride in Wales. The first Cardiff Mardi Gras was held in 1999, after South Wales Police noted a surge in hate crimes towards the LGBTQ+ community. Working with Safer Cardiff, the first ever Cardiff Mardi Gras was held and attended by 5-6000 people. With the…
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Research to explore experiences of Botox treatment in upper limbs
The closing date for this is 26th June 2026.
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Benefit Cheats & genuine people who are chronically unwell.
Hi, I would just like to post a discussion on here to address the issue that I have with one of the annoying TV morning shows on TV Jeremy Vine on channel 5. I was watching it yesterday on YouTube and they were talking about benefit cheats now I don't know about you but it really hacks me off when people like that panelist…
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Derotation osteotomy
Hello, My Husband (38) with CP, has had a femoral/tibial derotation osteotomy. He was completely independent before (no walking aids). 6 months post surgery he is walking with elbow crutches & has reached a plateau in his rehab, and he's becoming frustrated with not being back to his baseline mobility yet (although we were…
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BBC The One Show. One Big Thankyou. Lily Blackburn
Lily Blackburn was recognised on BBC’s The One Show after raising more than £75,000 for Haven House Children’s Hospice through a series of inspiring fundraising challenges. As part of the programme’s One Big Thank You series, the 13-year-old received a surprise appearance from former One Direction star Zayn Malik in…
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Callout for parents of children with cerebral palsy
A researcher from Cardiff University is looking for parents to share their experiences. The study is about Kinesio taping used on the upper limbs (arms/hands) of children with cerebral palsy. The researcher wants to understand how this treatment is used and how it may affect children’s daily activities and play. Who can…
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How accessible is Eurostar?
Source from The Independent Eurostar has introduced improvements on its trains for travellers with disabilities – Carrie-Ann Lightly boards at St Pancras to see how they stand up in practice Train travel gave me my independence. In my early twenties, it opened up a version of the world I hadn’t thought possible. It was the…
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Can CP get worse with age?
Hi there, I'm a 48-year-old woman with Athetoid CP, and up to now, my involuntary movements haven't been a problem, maybe the odd month or two. However, every time I drink, my head flips back, and the drink goes all over my head. It has got to the stage where I'm scared to drink even though I'm thirsty. I would really…
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Protected characteristic
Does anyone have it in writing or know where to find that Cerebral Palsy is a protected characteristic in terms of employment/equality act?
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Research participants request
Hi, I’m Jess. I’m a nurse and a Master’s student at King’s College London. I am looking for adults with cerebral palsy to share their experiences of pain in hospital. Who can take part: Adults aged 18 and over with cerebral palsy People who have stayed on a hospital ward in the last 10 years You only need to share what you…
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National Epilepsy Week 2026.
Shout out to all those living with epilepsy and the support network around them.
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National Epilepsy Week 2026.
Celebrating National Epilepsy Week 2026. Shout out to all those living with epilepsy and the support network around them.
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I became my sister's carer at six - she amazes me every day
From BBC News Shannen Headley West Midlands Trigger warning - mention of sexual assault. One of Sarah Lilly's earliest memories is pushing her younger sister Vicky's wheelchair aged four. She became her second carer two years later. Vicky was diagnosed with both quadriplegic and athetoid cerebral palsy at birth, and Sarah,…
