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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
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As Someone with Cerebral Palsy, Here's How I Made My House a Sanctuary
By Kelly Dawson Good Housekeeping.com (USA) Navigating a largely inaccessible world can be exhausting, but I made sure my apartment would be the ultimate place to relax. A year ago, when I moved into my own apartment, I aimed to cultivate a setting that made me feel safe. As a woman born with cerebral palsy, I have legs…
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Hi, my name is legomum1984!
Hi all, I've joined the scope forum as I have started to notice changes as I get older and I'm hoping I may find some answers here. Quick bio: I'm turning 40 this year, married, we have been together 19 years and have two teenagers. I work full time in admin. I have right sided hemiplegia with ataxia and muscle stiffness,…
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My Neuro Survey 2024
Campaigning for real change for the neuro community Get involved Please help build a picture of treatment, care and support for people affected by neurological conditions in the UK and the Republic of Ireland. Complete My Neuro Survey 2024 now. It’s anonymous and secure and takes around 20 minutes. Find out more here. Sign…
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Hi, my name is wisdom39!
Nice and caring
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My Son has cerebral palsy and looking for support groups!
HI all My Son has cerebral palsy he is only 16 months old..however I want to support him as much as possible and would love to get help from others in a similar situation or help other families. Can anyone point me in the right direction, or shall I create my own!! Thanks Dale
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Boccia UK. Have you got what it takes to be a Paralympian?
Boccia UK Are You Competitive? Thrive Under Pressure? Good At Strategy Games? A Creative problem Solver? To play boccia at international level, we are looking for people in BC1-4 classification. Athletes in these classifications are QUADRIPLEGIC, as a result of: Hypertonia Ataxia Athetosis Limb deficiency Impaired muscle…
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The Everydayness of Falling:consequences and management for adults with cerebral palsy
Dr Sonali Shah, The University of Nottingham and Scope are happy to share our research article published in the International Journal of Disability and Rehabilitation. You can read the full article here. Have you experienced an increase in falls? When discussing falls, this would be a good piece of research to share with…
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The Royal College of Podiatry issued a policy document concerning Cerebral Palsy
The Royal College of Podiatry issued a policy document concerning Cerebral Palsy. In the July/August edition of The Podiatrist, there was a 3-page learning module about CP The RCPod publishes a new policy statement about the podiatric management of children and adults with Cerebral Palsy
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Reducing Anxiety by Challenging Negative Thoughts
This session will help you to understand how anxiety and stress affect our thoughts, feelings and behaviours We will explore how you can use strategies from Cognitive Behavioural Therapy to begin to challenge negative thinking. This will help you to feel better equipped to tackle difficult situations or situations that…
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Understanding and Addressing Behaviours of Concern in CP
Understanding and Addressing Behaviours of Concern This online session will help parents, carers and other adults to make sense of what a child, young person or adult’s behaviours mean and explore ways of reducing behaviours of concern. Focus will be placed on practical assessment and intervention tools that can be used in…
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An inspiring story about football, fitting in and true friendship
An brilliant new upper Middle Grade novel…Raz Beri by Matt Stephens Publication Date: 29th August 2024 9781915444615| £7.99 | Paperback | 10 years + available to order now on Amazon: An inspiring story about football, fitting in and true friendship Billy has cerebral palsy and he’s had enough of his classmates treating him…
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Vicki Wilson – Winner of The Inspirational Participant Award-Heart and Soul Awards 2024.
I interviewed Vicki last week. Here is her inspirational story. I’m Vicki, aged 48 from Oswestry, Shropshire and I was born with spastic quadriplegic cerebral palsy. I’m a wheelchair user, but I can walk small distances with a custom-made walking frame. This has been possible through my own strength and determination and…
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Clothing for Children Disability Research
Hi fellow community members! I’m a PHD student researching the lack of choice for children’s clothing for those with disabilities. My little brother had CP and we had a nightmare buying right fitting clothes for him. Hoping to shine a light on the issues our community faces. Would you be so kind as to share your child’s…
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Mental abuse and bullying the disabled in council homes
I'm reaching out to anyone else who has experienced mental abuse in a council home because this has been my experience as well. I'm on disability, have a strong passion for music production that dates back almost 20 years, have no music equipment, and my grandmother doesn't seem to care about what I do. She also seems to…
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Radio DJ with cerebral palsy inspires school pupils
Radio Cumbria A young radio DJ with cerebral palsy has given his first assembly at his old school, speaking to pupils about his journey and following his passion, whatever the obstacles. Harrison Holmes, 23, from Barrow-in-Furness realised his dream last year when he was invited to BBC Radio 2 to meet his hero, Michael…
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Mate needing some practical advice with CP and encouragement
My mates feeling down, Carers this morning seeing if he could put his top on in the commode chair, he was scared of fallin forward but he did it. They were happy but saying about needing to be independent when talk about moving and how is he gonna do toileting etc, and he's just in the pits emotionally. He's scared he wont…
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Our Next Welcome Café is Monday 9th of September 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
