-
CP Sport Swimming Nationals are BACK 🏊♀️
Entries are now open for this year's event Date: Saturday 18th April 2026 Location: Alfreton Leisure Centre Church Street, Alfreton, DE55 7BD, Derbyshire, United Kingdom Time: 9am until 3:30pm (subject to change) Age: 10 + (as of 31/12/2026) Entry Deadline: Sunday 29 March 11:59pm Register today
-
All Wales CP Network Meeting. Five Days
Good afternoon, everyone. There are only 5 days until I host the first Scope All Wales CP Network Online Meeting. If you are an adult with cerebral palsy, or a carer or friend and live in Wales, it would be lovely to see you at this event. Tuesday 20 January at 6pm. Please sign up through the link below. It's FREE to…
-
40 and struggling
I've always said I have mild cereal palsy ..my left side. I work full time and have a lengthy commute. I'm struggling more and more physically and I have suffered spells of depression since childhood. I don't really know what point to make. I just am noticing a real struggle now. I've always tried to push on through but I…
-
Cerebral Palsy Teens Up Coming Events
We have lots of upcoming initiatives and activities! From online quiz nights and relaxed lunch socials to creative workshops and our annual Sponsored Wobble through Chatsworth Park, there’s something for everyone What’s on offer: • Social meet-ups - bowling, lunch clubs & relaxed catch-ups online and in-person • Virtual…
-
State-of-the-art new NHS lab to help support people with conditions like CP
A new "gait lab" has opened at the Freeman Hospital in Newcastle Sam Volpe Health Reporter Chronicle Live A new "state-of-the-art" service for children and adults has opened at the Freeman Hospital. The "gait lab" will support those with cerebral palsy, spina bifida and a range of neurological conditions affecting…
-
Automatic tool to prevent hip dislocation in children with cerebral palsy
Researchers from the Universities of Manchester and Liverpool, together with Manchester Imaging Ltd, (a local company that specialises in developing AI medical devices), have received a £1.2 million grant from the National Institute for Health and Care Research’s (NIHR) ‘Invention for Innovation’ (i4i) programme, to build…
-
Finding the perfect powered wheelchair
Hello, everyone. I hope this is the right place to ask this and that it's okay to do so. I have Cerebral Palsy Spastic Diplegia. I have limited mobility and and have used a manual wheelchair all my life, with e-motion wheels for the past 15 years or so. As a 30-something, I desperately want more independence and I think a…
-
You’re invited to a very special CPM premiere!
Cerebral Palsy Midlands is proud to invite you to the premiere of our original musical film: Every Life Has Its Purpose Created by our incredible Being Heard Music Group, and supported by Director & Composer Richard Ganner alongside Craig Keogh, this powerful film tells the story of Dr Earl Carlson and the founding of the…
-
Counil Disability Services Compared
Hi Everyone, I would like some insights into your experiences with disability support in your region. I have ataxic/spastic cerebral palsy and moved to Wales from Reading because I was led to believe that disability support was much better there. I sold my flat, and moved in with my mother while I looked for a place…
-
Do you have cerebral palsy?
Did you know that exercise is vital for cerebral palsy? Just like a car needs fuel (or electric!), if a car hasn’t got any fuel, it simply won’t start! Or if it has limited fuel, it simply won’t get very far! Cerebral palsy is a neurological condition, but it is also known as a motor disorder affecting movement! So the…
-
Launch of new national council to shape wheelchair provision
Wheelchair users in the UK are being invited to join The Wheelchair Collective – the first national council of wheelchair users. Led by the Wheelchair Alliance, the initiative will give wheelchair users with lived experience the power to influence how wheelchair services are designed, delivered and improved. Backed by…
-
Kerry Evans on transforming accessibility at Wrexham AFC
In 2021, Kerry Evans’ dream became reality when Ryan Reynolds and Rob McElhenney invited her to join Wrexham AFC as a full-time employee. Today, she’s helping raise the bar for accessibility in football. Kerry will be speaking at Naidex on 25-26 March 2026 at the NEC Birmingham. Read the full story
-
My life now, never thought it would happen
Hi. I'm Steph. When I was a teenager, I absolutely thought that, at best, in the future, I'd be living in a flat with a carer. I believed that that would be my life. Man, was I wrong…. It wasn't because I thought that I couldn't do it, i just didn't even consider it because, unfortunately, society told me that it wouldn't…
-
Opportunities to Try a New Sport in 2026. Disability Sports Wales
Opportunities to try a sporting activity are limited for me. Contacting a group and telling them I have Cerebral Palsy makes it difficult for sporting groups and gyms to find a way to adapt their services for a disabled person. I want to try something new in 2026 and have found Disability Sports Wales are hosting three…
-
London to host major exhibition celebrating the work of disabled artists
A major international exhibition marking the 70th anniversary of the disabled artists movement is to be held in London in the spring, The Standard reports. The event, called 'Defying Limits, Defining Art: 70 Years of the Mouth and Foot Painting Artists', will give visitors a rare opportunity to meet some of the world’s…
-
‘You just feel so light!’: two wheelchair users – one 81, one 25.
‘You just feel so light!’: two wheelchair users – one 81, one 25 – on welfare cuts, housing and the joy of swimming – The Guardian A lot has changed for people with disabilities since the 1950s, when the then seven-year-old Alice Moira was given her first wheelchair – not least the fact that it was made of wood and she…
-
'I'm just a disabled kid but I could change the law'
A 17-year-old boy with cerebral palsy said it was a "surreal moment" to have his petition on fire safety debated in Parliament. Lucas has been campaigning for evacuation chairs to be compulsory in schools after being left "petrified" on his own in his wheelchair in an upstairs room when a fire broke out. His experience at…
-
Extra Help at School in Wales. Individual Development Plans
A new education law came into force in Wales on 1 September 2021. The Additional Learning Needs and Education Tribunal (Wales) Act 2018 changes how children and young people aged 0-25 years with additional learning needs (ALN) will have their needs assessed, planned and monitored. These changes have been gradually…
-
Three-year outcomes of repeated botulinum neurotoxin in Children
This study aimed to evaluate the effectiveness of repeated botulinum neurotoxin A (BoNT-A) injections on gross motor function over 3 years in ambulant children with spastic cerebral palsy (CP). Results indicated that repeated BoNT-A injections over 3 years were not associated with improvements in gross motor function or…
-
Weight Issues in People with Cerebral Palsy: Understanding Sarcopenia
By Stephen A. Dantzig, Psy. D., Education and Outreach Program Manager, United Cerebral Palsy Association of Hawai’i Weight concerns are a significant public health issue in the United States. The Centres for Disease Control and Prevention reports that from 2017-2020, 41.9% of adults were living with obesity, and 9.2% with…
-
Title: The Quiet Loneliness of Watching Others Move Forward
"There’s a specific kind of ache that comes with watching the people around you find their 'forever' while you feel like you’re standing in the same place. Lately, for me, that ache has started to turn into a real loss of hope. I’ve reached a point where seeing successful, intimate relationships doesn't just feel like a…
-
Council Tax suspension
Hi . I had a letter today to say my council tax is being suspended along with my housing benefit. I have no idea why . They did not explain. I have to send in photocopies of letters etc .they did not tell me what either Has anyone else has this happen or know anything about it. Thanks
-
Disabled person - it’s meaning too generalised today
Why the charity name change to Scope was both positive but a Trojan horse. Disability is talked about constantly, but severe and to a lesser extent any physical disability has increasingly been crowded out in practice. Access systems are overwhelmed, not because needs are wrong, but because very different forms of…
-
Tomcat Trike
Morning All. I'm looking for suggestions as to What to do with my Son's Tomcat Trike? We got it for him 5-6 years ago and its barely been used. currently its sat in Storage waiting. We've hardly been able to use it primarily because of the impracticalities of getting him on it as he needs a hoist to transfer and of course…
-
MyCP Webinar: Inside the Making of the First Adult CP Toolkit
This webinar from the U.S. features CP Research Network co-founder Michele Shusterman and Mary Gannotti, PhD, Jensiné Clark, MD, and Cristina Sarmiento, MD, four leaders from the CP Research Network, discussing the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource…
-
My CP and work.
Hi,my name is Daniel [removed by moderator - personal details] and I have mild CP.I have managed to work my entire life,but over the last few years I have really started to struggle both physically and mentally.Obviously,i have always struggled,but my age is now against me.I know i will not physically last until i'm 67,but…
-
CP Network Wales winter meetings moved online. Please join us In One Month.
-
pedro boot ,splint ,gaters
my daugther has not had her boot on for 4 mounth and now has to where splint and now gatters to has her tendens are very titte and finding it hard to walk ,I do not know that much about cerebral palsy ,she is 31 years old and 31 kg 4 feet tall ,born with small brain microcpaly ,I need some help with this she is wheel chair…
-
Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
-
Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
-
Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
-
Recommendation for foot cream -splint user
Hello, my husband is suffering with calluses and bleeding from his foot and leg where he wears his splint. I want to get him some good cream and wondered if anyone had any recommendations as it goes beyond " dry cracked heels"
