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Creative Pathways is back for 2025!
Creative Pathways is back!! In association with Scope and The Rosie Jones Foundation. 28 & 29 August @ Here East, London. FREE!!! We’re back with another amazing lineup of creative professionals to move and inspire you!! Including the incredible Rosie Jones! If you’re between 11-19 (secondary & above) and have cerebral…
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Cardiff CP Network-In Person Event. Cardiff Central Library.
Good afternoon all. I have some news I'd like to share, especially with people living in Cardiff and surrounding areas. On behalf of Scope, I have organised the first Cardiff CP Network meeting. It will be held on Monday 15th September 2025 at Cardiff Central Library. Please see the attached posters for more information…
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UK's first disabled strongman launches mission
From BBC News Alexandra Bassingham BBC News, West of England Claire Carter BBC Radio Somerset The UK's first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen. Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition,…
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Anniversary of Stoke Mandeville Games-Paralympic Movement. Disability Pride 2025
The Paralympic movement at Stoke Mandeville is celebrating its 77th anniversary today. The first Stoke Mandeville Games were held on July 29, 1948. These games, organized by Ludwig Guttman are recognized as the precursor to the modern Paralympic Games. The anniversary will be marked by various events, including…
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Hi - Building CP games
Hi everyone, I'm a bioengineer, building games to make physiotherapy more fun/easier :)
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Free transport and advice for disabled people. South of England
Queen Elizabeth Transport Advice Service. If driving is not an option due to a medical condition, disability or age related impairment, the free Transport Advice Service can signpost you to alternative, accessible transport choices. Guidance is available face to face, over the phone or on our website. Our friendly…
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The world of inaccessible footwear
This month, for our CP Network theme was fashion. We discussed the difficulty of footwear and cerebral palsy. Samantha Sekirsky joined us. She is studying a master’s in Strategic Fashion Marketing. If you wear Ankle Foot Orthotics (AFOs), Knee Ankle Foot Orthotics (KAFOs), or are generally unsteady on your feet! You know…
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Turning a Mini Passion into a Big Dream
This month, we’re celebrating amazing people in CP Network Meet Sam, 28, from Manchester. Sam runs an art business called sh3dart and has been supported by The King’s Trust Enterprise Programme. He’s even been featured in the London Daily News and on the King’s Trust Blog. Lucy: Hi Sam! Thanks for joining us. Can you tell…
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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‘They get more confrontational’: A painter’s self-portraits capture life, and art, with cerebral pal
By Leah Dolan, From CNN Lucy Jones painted her first **** self-portrait at 50. She was in New York with her husband Peter Leach, she said, when he “took a picture of my backside. I thought, ‘Well I don’t look too bad from the back, so maybe I’ll paint it!’” Jones is sitting on a wooden chair the middle of a white-washed…
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Disability Pride 2025
What does Disability Pride mean to me? Sara Edwards CP Specialist When I first heard the term Disability Pride, I was confused by its meaning. In June we celebrate the LGBTQIA+ community and hold Pride events. I assumed Disability Pride was an extension of this, celebrating the LGBTQIA+ disabled community. In 2024 I was…
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Please sign our open letter to the Secretary of State for Health and Social Care,
Tell the government: we need action now, not words Thank you for your continuing interest in the work of The Neurological Alliance.Earlier in July, we published the results of the 2024 My Neuro Survey, our national survey of people affected by neurological conditions, including adults, children and carers. The message is…
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Participants needed!
Are you physically disabled? If so, please consider taking time to be a participant for this research project. Attached is a QR code which will ask you some questions and if you are eligible and happy to be interviewed that would be appreciated to contribute to physically disabled daily lives.
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Hi, my name is Delano!
I am 65 and seeking a new challenge. I have been working in security the last seven years but for various reasons need a new role. I have mild cerebral palsy and dyspraxia. I am very conscious that at my age I would not be able to do the same kind of work I did a few years ago and am anxious to find an employer who would…
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Take the CQC's Short Survey to Help Improve health and Social Care
Use this form to tell us about: an experience of care - it can be good or bad a concern about a service you work for Give feedback on care - Care Quality Commission Your feedback helps make care better We use what people tell us to understand the quality of care they get from services like care homes, care agencies,…
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I need a little favour
and it won’t cost you anything…. well maybe 30 seconds. Please take a moment to support my cousin who has CP. On 12 June, my disabled cousin was denied boarding by British Airways staff in Cairo. His sister was told it was because “last time it took half an hour to board him” on a previous flight. Just too inconvenient.…
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UPs response to the 10 year Health Plan
As many of you will have seen, the Government’s 10-Year Health and Disability Plan was recently published. While there are some positive developments, the plan does not meaningfully acknowledge the needs or lived experiences of adults with cerebral palsy—a gap that we believe needs urgent attention. As a member of the…
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Disability Pride '25
As we celebrate Disability Pride—a celebration that is as much about recognising our strengths as it is about acknowledging a shared journey. I want to discuss what Disability Pride means, why it matters, and how each of us can contribute to a more inclusive society. What Is Disability Pride? Disability Pride is more than…
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World Wellbeing Week
On the last day of World Wellbeing Week, here is a simple and effective technique to help manage negative thinking. We live in a world filled with uncertainties and it's all too common to be overwhelmed by stress and anxiety. This state of being can often lead to negative views of feeling worthless or unloved. Emotions…
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Free London Art Exhibition in July
'Fruiting Bodies' - Free Art Exhibition by Yasmine Rana Yasmine Rana is a traditional artist from London, UK. She was born with cerebral palsy and has lived over half of her life with other chronic illnesses as well. These impact not only the subject matter of her work, but also how she paints, making each piece a unique…
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How an eBay find has helped to transform the life of a man from Tyneside living with cerebral palsy
Cory Hall has had treatments and surgery to try to ease his clenched fist, but none solved the issue until a budget find on eBay changed his life. Watch on ITV
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CP Network meets Matt Stabb
Lucy had the pleasure of interviewing CP network member Matt Stabb. He has written a book about living with Cerebral Palsy. Lucy: Hi Matt, thank you for speaking with us about your new book, Keep on Keeping on: Cerebral Palsy. It’s about your life living with Cerebral Palsy. As someone with CP myself, it was refreshing to…
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Children with Speech Issues Risk Poor Mental Health.
Children struggling with their speech and language are at greater risk of developing mental health problems like anxiety and depression, the charity Speech and Language UK has warned in a report seen exclusively by the BBC. BBC News Speech and Language Issues Related to Poor Mental Health
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Children help develop 'fun' new physio aid
From BBC News An award-winning Loughborough designer has created a potentially life-changing physiotherapy aid to help children with learning and movement disabilities. Katie Michaels was inspired to create Moti Me - which uses animal characters, colourful lights and dozens of mini games to develop movement - when a family…
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Comedian explains why cerebral palsy was never going to hold her back
From The Express Comedian and writer Rosie Jones has never let cerebral palsy hold her back and, as her brilliant (and controversial) new sitcom in which she plays an unlikely drug mule reveals, disabilities shouldn't be a barrier... even to a life of crime Comedian and writer Rosie Jones breaking down barriers for people…
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Craft
I'm currently crafting a blanket that is Netflix Witcher themed. I'm loving the process do far and it's good for my mental health and for my hands. Emily ❤️
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Cerebral Palsy and back pain
Watch Cerebral Palsy Research Network's Webinar about cerebral palsy and back pain. It is very informative and has some practical tools for prevention as well as what to do when you are experiencing back pain
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Scared
I'm worried that having cerebral palsy a developmental delay and a learning disability. Will cause problems within the community when I don't mean to
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Hen Weekend - feeling a burden as a wheelchair user?
Forgive the slight ramble but I've recently been asked to be part of my best friend's wedding, which includes the hen weekend. I'm a full time wheelchair user (the only disabled one in the group) and while the discussions are all around a party resort in Spain, I can't help but worry I'll be a burden if they're all looking…
