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Interview with Zach Eagling. Pride of Britain Winner 2025
Introduction. Sara Edwards and Lucy Hindmarch from the CP Network recently interviewed Zach Eagling, an inspiring fourteen-year-old who lives with cerebral palsy and epilepsy. Zach's journey began during the COVID-19 lockdown, when, motivated by Captain Tom Moore, he undertook a remarkable fundraising challenge. At just…
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Title: The Quiet Loneliness of Watching Others Move Forward
"There’s a specific kind of ache that comes with watching the people around you find their 'forever' while you feel like you’re standing in the same place. Lately, for me, that ache has started to turn into a real loss of hope. I’ve reached a point where seeing successful, intimate relationships doesn't just feel like a…
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Disabled person - it’s meaning too generalised today
Why the charity name change to Scope was both positive but a Trojan horse. Disability is talked about constantly, but severe and to a lesser extent any physical disability has increasingly been crowded out in practice. Access systems are overwhelmed, not because needs are wrong, but because very different forms of…
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Tomcat Trike
Morning All. I'm looking for suggestions as to What to do with my Son's Tomcat Trike? We got it for him 5-6 years ago and its barely been used. currently its sat in Storage waiting. We've hardly been able to use it primarily because of the impracticalities of getting him on it as he needs a hoist to transfer and of course…
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MyCP Webinar: Inside the Making of the First Adult CP Toolkit
This webinar from the U.S. features CP Research Network co-founder Michele Shusterman and Mary Gannotti, PhD, Jensiné Clark, MD, and Cristina Sarmiento, MD, four leaders from the CP Research Network, discussing the creation of the Adult CP Toolkit—the first comprehensive, evidence-based health and wellbeing resource…
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My CP and work.
Hi,my name is Daniel [removed by moderator - personal details] and I have mild CP.I have managed to work my entire life,but over the last few years I have really started to struggle both physically and mentally.Obviously,i have always struggled,but my age is now against me.I know i will not physically last until i'm 67,but…
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CP Network Wales winter meetings moved online. Please join us In One Month.
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pedro boot ,splint ,gaters
my daugther has not had her boot on for 4 mounth and now has to where splint and now gatters to has her tendens are very titte and finding it hard to walk ,I do not know that much about cerebral palsy ,she is 31 years old and 31 kg 4 feet tall ,born with small brain microcpaly ,I need some help with this she is wheel chair…
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Sheffield University. Recruitment for Adults with CP. Online, In Person
Known networks of patients for a workshop about digital health technologies Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. We're planning a workshop for people with a lived experience of cerebral palsy in adults including…
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Sheffield University Research Project Recruitment for Adults with CP
Researchers at the University of Sheffield are asking adults with Cerebral Palsy to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people's mobility during their daily life. We think that this kind of tool could help to identify…
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Recommendation for foot cream -splint user
Hello, my husband is suffering with calluses and bleeding from his foot and leg where he wears his splint. I want to get him some good cream and wondered if anyone had any recommendations as it goes beyond " dry cracked heels"
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CP and difficulty coughing
Hi. I have spastic quadriplegia and am a full time power chair user. More recently, I have been having difficulty coughing (particularly when I have a cold) due to spasticity and weak muscles in the chest. I just wondered does anyone else have this problem? If so, what helps? I have briefly looked at using a cough assist…
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HELP ME | Cerebral palsy
Greetings ! I have cerebral palsy and I am very tired of living. I have depression and apathy..... Are there any moms who also have children with cerebral palsy. I wonder if you could give me moral support. It's very difficult when you don't have someone to turn to with questions.
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Disabled teenager who was left in school during fire takes safety campaign
A teenage boy who was left alone upstairs during a school fire has taken his campaign for stronger safety rules for disabled students to Parliament. Lucas Vezza-O'Brien has cerebral palsy and says he was "terrified" when smoke began to fill the corridor on the first floor of his school in Hyde, Greater Manchester, in…
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What my disability taught me about parenting
What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…
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Back problem
Doctor tells me I have Severe bilateral facet arthrosis, basically no cartilage left between two vertebrae. Has anyone had this? What was the outcome?
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Spastic Diplegia
Hi, I was diagnosed with Spastic Diplegia at birth? Unfortunately, I was born before the internet. I cope fairly well with the physical side but its the psychological side which has affected me the most. I think I am fully aware of the psychological side now but it has destroyed by life. Anyone else have any experiences on…
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Rosie Jones says she carried ‘a lot of guilt’ in her twenties
Holly Bishop | Wednesday 26 November 2025 08:26 GMT Rosie Jones has shared a message to ableists as she reflects on her personal journey of learning to own her disability. Appearing on Katherine Ryan’s What’s My Age Again? podcast on Monday (24 November), the 35-year-old comedian said she “carried a lot of guilt” during…
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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Is Ableism Too Normalised?
Please complete this survey for a GCSE student: Is ableism too normalised in the UK?
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Hi, my name is Zippy1983!
Hi everyone, very old soul here, fine vintage of 42 going on 92. Life long veteran of battling both mental and physical health conditions (The Acme Catalogue has proved useless 💣) Orignally from a small cotton mill town in Lancashire, now living in Middle Earth - I’ve yet to bump into the Fellowship. I am of Scottish,…
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PIP why do they make it so hard?
Today we had the answer to whether or not my son was going to be put back on enhanced mobility . They put my appeal letter on the wrong pile! I decided to phone after not hearing anything for five months. it was then that I was told it was on the wrong pile .the argument is because he can walk for upto 200 metres .At the…
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Facebook charity page restored after ban mix-up
Article by Steve Beech and Dan Hunt, BBC Derby. Full Article The founder of a charity that supports teenagers with cerebral palsy has spoken about the "nightmare" of being unable to use its Facebook page for more than a year after it was flagged as having inappropriate content. CP Teens UK, based in Chesterfield,…
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Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Join an Exciting Project on Cerebral Palsy
We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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COMMUNICATION MATTERS FULLY FUNDED TRAINING AND DEVELOPMENT FOR AAC USERS
Peer Support & Mentoring Project: CM have funding from the National Lottery for the following training sessions (Zoom): 'Achieving Level 1 in Mentoring Qualification' Tuesday 2nd December 2025 2.00 pm - 3.30 pm: Becky Tyler (AAC user) and Verity Elliott (CM Mentoring Project Co-ordinator) This is an opportunity to find out…
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Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
