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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024“Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to organise an online…
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Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
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Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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Anyone on this group who has an adult child with severe CP and other issues
Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…
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Hi, my name is Ahdeel
Am 40 years old, got CP when I was born. Walking tiptoes. Had surgery age 16 age more surgery later on. Am Asian British Pakistan live in south Yorkshire. Rreply back to me, I tell u more about me. Thank you
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Direct payments - transition to adult services and needs fall between two services
My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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Cerebral Palsy Specialist-Cardiff
Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…
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Hip problem due to muscle spasm
I would like to know why a person with cerebral palsy can have pain in the hip I have a strange feeling of pain on the left side of my hip Is it because I am more spastic in my legs due to my spastic diplegia What to do I am 49 years old I have not been followed by a neurologist since I was 13 We do not have many resources…
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Having HCP and watching other people have s
Hi, it's @pooleemily29 here, ahd yes I know I sound like a broken record, but forgive me. I was out shopping this morning in my local shopping mall, and as I was wondering I suddenly felt this strange sense of sadness come over me. I'm about to turn 30 in a few weeks time and watching everyone else having relationships and…
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Man with cerebral palsy who gave up hope of finding work models for Primark
Grace Dean BBC News Rachel Price BBC News A man, Elliot Caswell, is sitting in an electric wheelchair in front of a blue backdrop in a photography studio. He is wearing a grey tracksuit and a black gilet and is smiling at the camera. A woman in a black top is taking his photo with a large camera. Elliot Caswell was…
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I’m Autistic And Have Cerebral Palsy — We Need To Get Menopause Support Right
"The average age for starting menopause is 51, but for people with learning disabilities, it tends to start earlier."By Emma Fraser I’m 43 years old, I’m autistic, and I have cerebral palsy. Now, I’m also navigating perimenopause. There are around 13 million people currently peri- or menopausal in the UK, equivalent to a…
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'In horse riding I don't have to depend on anyone'
Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…
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Discover Your Paralympic Potential events
Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…
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What's Life with Cerebral Palsy Like? My Neuro Survey 2024-2025
What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…
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Communicating with cerebral palsy: How Maddy found her voice
Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX
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Cerebral Palsy Therapy
SDR PROGRESSION SDR Progression offers therapy that is focused specifically for your child's capabilities and needs. This service is also extended to teenagers and adults. Therapy is offered to those suffering from Cerebral Palsy, and also those who have had SDR (Selective Dorsal Rhizotomy) surgery which attempts to remove…
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Mum writes play about her battle for son's cerebral palsy support
Mumfighter-Swansea play review. Powerful play explores life bringing up a disabled child. Wales Online Mumfighter play review
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Research: the Dating Experiences of Women with a Visible Disability
I am recruiting again for my study exploring Disabled Women's Experiences of Dating. I need a few more participants: Two to four as soon as possible. I have attached a poster if that helps. Or there is a link here to my Instagram Research page: https://www.instagram.com/antonia_research/ Or you can email…
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The Art and science of Living with Cerebral Palsy
For those of us that were not up and about at 4 am. Here is the recording of the webinar. This webinar was hosted by My CP Guide and presented by a lived experience panel in an open discussion facilitated by Stacey Cleary of CP-Achieve. This webinar explores individual experiences with medication. Each person from this…
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My CP Webinar Series: Update on Dystonia and CP
On Wednesday, October 30 at 8 pm ET, Midnight UK time, our MyCP webinar will provide a broad overview of all the progress toward addressing the issues raised by the community including the development of new educational materials, improvements in dystonia diagnosis and plans to study the effectiveness of common treatments…
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Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you!
Parents, carers and young people, ACTION CEREBRAL PALSY would like to hear from you! The Department for Education has recently launched a Curriculum and Assessment Review and we would like to hear about your experiences and to know what you think needs to be changed in the current curriculum, its delivery and assessment to…
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In Memory of Tina Sharp 1966 -october 2021
So, on the 17 October, it will be three years since my sister, Tina Sharp passed away at 55yrs . Whoever said time is a great healer, was wrong, as my grief for her, is stronger than ever. People do not understand how difficult it is to lose a disabled loved one. I was 5yrs when Tina was born, with quadruplegic cerebral…
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The Importance of Taking a break an listening to your body
[The image says: A gentle reminder If you don't schedule a break, Your body will take one for you, and it probably won't be at a convenient time.] This quote will resonate with many in the cerebral palsy community and the broader disabled community, and it certainly resonates with me! Just like many of you, I’m sure you’ve…
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World record for the fastest marathon by an athlete with hemiplegia
Marathon runner secures world record after completing global challenge. A runner who took on a prestigious global race series has broken the world record for the fastest marathon by an athlete with hemiplegia. Andrew Tomlinson, who has paralysis on his left side, finished the London Marathon in April in a time of 3:58:53 -…
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Tune in to The One Show on BBC One tonight at 7pm to catch Emily's incredible story!
Emily and the BBC Children in Need Challenge Squad Home > News > Emily and the BBC Children in Need Challenge Squad The One Show welcomes back the epic fundraising challenge, The Challenge Squad for BBC Children in Need, and we’re so excited to announce that Emily – a long-standing CPotential friend and service user – is…
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The joy of accesible sport and CP
Paul McAuley Community reporter for Liverpool Echo Ellis Palmer is now working alongside British Power Hockey Association.(Image: Ellis Palmer ) A man is doing the “unimaginable” after “giving up” when he was a teenager. Ellis Palmer, from Birkenhead, has been a wheelchair user for most of his life, having been diagnosed…
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Power hockey taster session
The British Power Hockey Association is having a taster day on 2nd November between 11AM - 14PM For more information go to British Power Hockey Association Website Image description: Full shot of a poster promoting a "Power Hockey Taster Day." The top portion of the poster features three images, each showing multiple…
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Sex Education star on living with lifelong condition and Netflix success
The actor stressed the importance of disability representation within the creative industry. By Ayaan Ali of The Express You might recognise Keron Day from Sex Education and Kirkmoor, but his path to success has been anything but easy. Keron has shared his experience of living with a lifelong condition, cerebral palsy,…
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World Menopause Day: Early Menopause and cerebral palsy
For many women with cerebral palsy, the journey through ageing presents a unique set of challenges, especially when it comes to managing menopause. “Often, they feel unprepared for the changes their bodies undergo during this time, facing both physical and emotional hurdles.” As Friday, 18th October 2024, marks World…
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
